Nervous beyond belief: I'm really at a... - SHARE Ovarian Can...

SHARE Ovarian Cancer Support
1,918 members622 posts

Nervous beyond belief

Greeneyes80
Greeneyes80
8 Replies

I'm really at a loss and super confused. Have Bilateral complex masses on both ovaries. High ROMA test results....I'm 38 y/o....In the process of being sent from GYN to GYN ONC....

8 Replies
oldestnewest
Tesla_7US

Green eyes, whatever it is, a gyn onc will know exactly what to do. Fear can be managed. You are going to take care of yourself one step at a time. Love to you. ❤

1 like
Reply
Neona

I had bilateral complex cysts. Had not had many symptoms but eventually couldn’t eat. I had debulking surgery and chemo. Chemo didn’t work but have bern on a clinical trial for 21 months. So even if it turns out to be ovarian cancer please don’t despair- there are a lot of treatments out there and more being developed. Fingers crossed for you- please let us know how you get on.

1 like
Reply
SoonerGirl

I completely understand the fear you are going through-but here is something that you should hold onto. I didn’t take a ROMA test, just the CA-125. I was told by my gynecologist not to panic if the score came back high, because it could mean a number of things. I don’t know how accurate the ROMA test is...I had complex masses on both ovaries. I requested removal of the ovaries and two weeks later I had the surgery. Pathology came back and the masses were benign. Don’t let your mind wander during this time of waiting. Get busy and be productive. I finally got to the point of saying to myself-well if it turns out to be the worst case me worrying won’t change the outcome. If you are a person of faith, talk to God. I relied heavily on the support of friends and family and my faith to help me get through the waiting period. Wishing you all the best on a healthy outcome!

3 likes
Reply
3pups

The hardest part is the waiting, my surgery is Thursday and I have to remember to take one day, hour, minute and second at a time.

We are forced to be stronger and more courageous than we ever thought we could be. I wanted to run 🙂 away. Remember you're not alone, you are brave and we're here for you.

3 likes
Reply
Archeveritas
Archeveritas
in reply to 3pups

How did your surgery go? Hope you have a quick recovery. Thinking of you.🐶❤️

Reply
Greeneyes80

SHOULD HEAR FROM ONCOLOGY TOMORROW FOR WHEN MY APPT IS. FINALLY GETTING AN ONCOLOGIST!!!!

Reply
Archeveritas

Glad you are going to gyne-onc. You are young and strong. We are here for you in thought and spirit. I know they are just words but they are always from the heart from those of us that have our own stories to tell battling this beast. Please keep us posted as you move thru this.

Reply
Greeneyes80

Thank you so very much. Means more thank I could ever express..... I am scheduled to have my appt with ONC on 10/17. I should then get a surgery date for the SOONEST POSSIBLE TIME. Have a doctor tell u that, "clinically" I have malignancies, but havent been able to be SURGICALLY evaluated for confirmation until now. God has his reasons.....Just taking it one day at a time, sometimes one minute at a time. Will update after appt. Until then💖💖💖

Reply

You may also like...