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I'm not for sure what to write here but I'm sure someone will help me along the way

mustang93cars
mustang93cars
43 Replies

Just a quick statement I had 2 cat scans and ultrasound found 7cm tumor starting at my ovary area ca125 off charts could someone give me advice statements anything surgery Feb 7th 2017

Great full mustang93cars

Mary

43 Replies
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Nicky100

Hi Mary,

Have you had any biopsies or a formal diagnosis yet? That would be my first question. Whether they know exactly what you have yet.

Have they mentioned chemo at all? If not, you may have a simpler journey ahead.

Saying that, you are new here and this will be a scary time for you. There are many people here who can help you.

You should know more after surgery I would think. And I hope this goes well for you. Make sure you rest well after your operation and do not lift anything heavy. Do you have a support nurse you can also speak to?

Best of luck at this stage and love to you.

Nicky

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mustang93cars

Could not do biopsy .. I do no this happened after menopause and I went t have regular pap smear because it was abnormal

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mustang93cars

Nicky

Hi doctor tried but I went through menopause @ 50 and she said she couldn't get it my cervix closed up . So I will not no anything until after surgery . And thank you so much

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Nicky100

Please pm me if you need to chat or need any advice.

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Nicky100
Nicky100
in reply to Nicky100

If you are having a standard surgery, you will be fine I promise. They do good things these days. Just ask plenty of questions and anything you need to know. The speed of recovery will surprise you but make you get plenty of rest and do not do too much xx

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mustang93cars

Hi Nicky thank you so much for your responses

A little bout my surgery she is removing uterus cervix tubes thingys lymp notes if needed she is cutting me up /down says just to make sure she said if needed intestinal as well so I'm scared and surgery 4.5 hours .. could you please tell me some questions to ask I totally confused lost sorry if I misspelled words ..

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Nicky100

You should be getting some rest my dear. Please go and rest. Please do not be scared. It is easy to say I know, as I was terrified. But I had not found this lovely forum and we are all here for you.

It can help to be prepared by writing down a list of questions to ask.

The most important thing is that you understand what the Dr is telling you.

It can help if know what to expect during treatment. You may want to ask questions about any treatment side effects and who can help if you have problems with treatment.

A few questions could be....

What will the treatment be like and how long will it take? Will there be side effects, and what can I do about them?

What is the aim of my treatment?

Can I get a second opinion?

Are there any complementary therapies that might help?

Is there any help or support that I can have at home?

Are there any support groups in my area?

Remember that you can continue to ask your healthcare team questions even after you have left hospital.

My biggest advice is to rest after the op and do not be forced into getting up and walking if you do not feel up to it. They tried to get me up but I did not feel ready. Remember..it is your body and you know best. If you need to wait a day or two, then tell them.

I am thinking of you and wishing you so much luck and love.

You will be absolutely fine and in good hands I promise xxx

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mustang93cars

Thank you so very much ..

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Nicky100

So much love to you dear girl!

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mustang93cars

Hello again I made it feeling better she said she got all the cancer out but one lymph nodes looked a little angry but she said whatever same results chemo I have heard some horrific stories on chemo she said 4to6months on some powerful chemo .

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Nicky100

I am glad you are ok. And you will be fine on chemo.It passes and many people have it now. So pleaesed you are doing well.

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mustang93cars

Thank you so very much 👍😉 your words are so inspiring !!

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Belsie

Are you asking should you have the surgery? If so I would have it. You will heal and then you will more than likely get 6 rounds of chemo. Then a scan. But the chemo won't come directly after surgery the will wait some weeks and then administer the chemo. Blessings and keep on going.

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mustang93cars

No surgery Tues. 7th and I was scared not of surgery afterwards my ca125 4000 doc. Says she is going to do a incision up and down so she can see and get all the cancer but nurse told me it appeared to had started on right ovary ..

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Nicky100

Are you going in tomorrow? Surgery will bring your ca125 down if they remove it.

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Jerierhode

I am one year out from Chemo. I have my 1 year check up the day you have surgery. I will be thinking about you. My tumor was 12.4 pounds and the size of a basket ball. Surgery wasn't bad at all. I had Chemo once a week for 18 weeks. Each session was 6-7 hours, but in a lovely setting with a great group of nurses. Just really getting my energy back but feeling fine. I still don't have hair and probably won't. I took taxoter and they are finding out that it's not unusual. Be strong.

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mustang93cars

Please keep me posted on your check up I no your going to have great results ! Few questions was your ca125 high as well may I ask your age where did your cancer start .. wow you are simply wonderful 😊

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Nicky100

My ca125 was nearly 7000. It came right down after surgery and then chemo mopped up the rest

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mustang93cars

Your such a strong lady please keep me in touch and I will too..

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GwenHP

Hi Mary - I'm a Stage 3C ovarian cancer survivor. My initial debulking surgery was Febrary 7th, 2005, 12 years ago to the day of your surgery. My CA125 at the time of my surgery was 6540, obviously not a false positive. The surgery is an important part of the journey and gives your doctors a chance to get all of it that is visible out of you. I started my chemo 10 days later, but not everyone starts that quickly. It depends on a lot of factors. I hope your surgery is scheduled with a gynecologic oncologist. They are the specialists that are trained to do the kind of staging that will give you the best chance at a good prognosis. Keep us posted.

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mustang93cars

Hii Gwyn

Oh thank you so much I'm going to do surgery it's at 5am n the morning just scared and yes I do have a great doc.i have had t cat scans they can't see anything tumor is 7cm boitball size in the way of everything so that won't no until day of surgery I remember telling her not knowing the severity of this . I said doc since it's on 1ovary heck I said take the other one out too .. but she says ohhhhh Mary were going to better then that it's all coming out ..She said lipnotes as well and some intestinal if needed .

And you are wonderful way to go .. simply wonderful how long was your stay n the recovery and hospital stay .. are you completely done with chemo .. thank you so much for sharing your story ..

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GwenHP

My first surgery I was in the hospital about 5 days. I started chemo 10 days later. I had a recurrence, but I have been NED (no evidence of disease) since November 2008.

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Nicky100
Nicky100
in reply to GwenHP

Wow could I email you in a pm?

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mustang93cars

Sure you can !

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mustang93cars

Hey my surgery went well the removed all cancer next chemo doc. Said she is going to try a new chemo very strong but would not make me sick just weak . Sorry delay response stated n hospital 5days now home trying to recuperate very sore and lots of pain . I hope you are well ..

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Terrified24-7

I'm at Stage III-b, low-grade serous cancer. You give me hope!

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mustang93cars

I'm also grade III b serous .We will give each other hope ..

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mustang93cars

Tues 7th is my surgery my ca125 is 4000 doctor says tumor big as football they have gave me 2cat scans they are going to make incision top to bottom do not no what type or where it started tumor blocking everything so doc will not no anything until surgery . Doc said everything is coming out she said operation will b 4.5 hours will I go t normal room and after surgery how long n recovery when will chemo start how long

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Terrified24-7

I think you're doing the right thing. I'll be thinking about you today and asking the powers that be to intervene on your behalf. Please let us know how you are doing in a few days when you're feeling better. All your sisters in cancer are behind you!

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mustang93cars

Surgery went well removed all cancer she said their going to do a new chemo on me . Doc. Going to call me to tell me more

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mustang93cars

Surgery went well got all cancer doc. Going to try a new type of chemo plus another at same time said it's going t b strong

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DSK-C
DSK-CSHARE Volunteer

I hope all went well with your surgery. I am a four year survivor, Stage 3C. A week after my surgery we had my daughter's wedding shower in our apartment and four weeks later I was dancing pain free at the wedding. Recovering from the surgery is the easy part! Chemo is tougher but well worth it!

Remember, you are not a statistic. Everyone is different, heals differently. I really believe a positive attitude is important. Keep believing that you will be in that percentage of survivors.

Heal well! Wishing you good luck as you start on this journey.

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mustang93cars
mustang93cars
in reply to DSK-C

Wow ... I will cherish those words plz keep n touch don't no for sure the stage she thinks 2 possible 3 best of luck to you ..

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mustang93cars
mustang93cars
in reply to DSK-C

Hello again

Could you tell me about chemo I know it won't be same in each individual but to know something is better then nothing .

Your story simply wonderful and strong ..

Thank you

Mary

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Nicky100

Hi Mary,

I had been terrified about chemo, but...once you get started, you will get into a routine and much of the fear of the unknown will vanish. The first 2-3 weeks will be the test of how you feel and you will have days where you feel tired, some days that you might feel a bit fluey and some days that you will be OK! The day after my first chemo I went to a party and went away for the weekend, so you really can keep doing things. But bear in mind steroids on the day will give you a false boost, so do not try and run a marathon! I felt like I could. The thing to do is rest plenty. And drink masses of water to flush out all the nasties. They have good medication nowadays to deal with nausea etc. I hardly felt sick at all. Just keep a strict eye on your temperature, as a raised temperature can mean an infection, so keep watch on that. Lots of love and stay in touch xxx

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mustang93cars

Thank you so much .... It really means alot to me to talk with someone that really knows .. again thank you so much and just simply thank you from the bottom to top of my heart

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DSK-C
DSK-CSHARE Volunteer

Wonderful news to hear about your surgery. Sounds as tho you were optimally debulked (all known malignancies were removed). Chemo will be the next battle--I also opted for a strong chemo. I was 3C high grade serous. God luck and keep us posted when you start chemo and how you are doing. There are good meds now for nausea and other side effects. Ask your doctor for them! You want to be as comfortable as possible.

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mustang93cars
mustang93cars
in reply to DSK-C

She said the only side effect would be my hands and feet stay cold , she also said I would not get sick but I donno but I will definitely ask again I will do chemo four to six months . And I will keep n touch . Thank you so much for all and any information you have offered and gave ..

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mustang93cars

I thank all of y'all for sharing your stories... all I can say is thank you and with y'all we all can beat this ! From my heart thank you all ! and I will keep n touch my chemo will probably start around middle of March ..

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caf132

Do you know which chemo you will be having? Once you get started it goes fast. Drink drink drink lots of water to flush it out of your system.

I finished 18 weeks of chemo last October in 20 weeks. Delayed due to low blood counts. I am stage 3b, currently NED. Please keep us posted! You are in our thoughts and prayers!

Xx Carol

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mustang93cars

I got my cat scan results today doctor called and said looking good nothing was found that I'm on a good road .. but very calmly when I'm excited totally get it .. now chemo starts March 20th 6 hours the 1 he every 8 days .. I'm ready. Blood work 16 th and I had a genetic test ...

Thank y'all so very much

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Fearlessone

Hello Mustang,

I wish you the best during and after your surgery. Keep up the good fight. I just had my surgery on February 16,2017. I'm doing o.k. It's been a rough ride!!!!!!!!. and remember .Only The Strong Will Survive. Take Care and may God Be With You.

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mustang93cars

Thank you and we got this ! Yes surgery is hard .. once we get over the hump it saling the rest ! Please tell me about your surgery .. and besides your surgery was right after mine we are going to breeze right on through this 😊 and as you my friend God bless you keep n touch Mary

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