Looking for Info: Is there anyone on... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,607 members8,142 posts

Looking for Info

Justme153 profile image
6 Replies

Is there anyone on this sight anymore that is still in contact with Sandra who use to be on this sight? If so please let me know.

Written by
Justme153 profile image
Justme153
To view profiles and participate in discussions please or .
6 Replies
TammyCross profile image
TammyCross

Yes, there are people who switched to PM or other non-public communications with her. One of them may PM you, probably already have.

hdhonda profile image
hdhonda

I was wondering the same thing. Also, about Sophie, Lynn and the others who left. Most of the folks on here are new. Does anyone know anything about Kearns? I used to feel like I knew everyone but not so much anymore. Hannah

kearnan profile image
kearnan in reply to hdhonda

Hi. I just logged back in. You can see why I was gone. I created a post about Enhertu. I have been and am still am in hell from deciding to try this fast-tracked FDA treatment option after being told that now my entire liver is filled with cancer and I have two months left. (I should be dead by now according to my onco so so much for her. I am now in process of contacting the FDA and the company that makes this medication. I do not believe it was the medication, but the careless of my onco and the people who administered my first and only "infusion." I am still so depressed over what occurred. My post on it is long but it was one of the worst experiences of my life.

Thanks for thinking of me. I appreciate it. Now, I need at home hospice bc of the treatment. I wish I had never agreed to it.

hopehope67 profile image
hopehope67

I often look for answers in old posts and find Sandra in traces. In the answers of other members, you can feel Sandra's compassion, calmness, understanding, and above all great knowledge. I, as well as you and I assume many others, miss Sandra very much. These Christmas holidays full of joy and hope are a moment when we should thank Sandra and all the other amazing members who made a great contribution to the creation of this page. Thank you so much! Hoping 2023 brings health and happiness to you all !

Ntash01 profile image
Ntash01

Can I add Arisgram too… in her last post it seemed as if she wasn’t doing too good. Discocat also.

Sophie’s last message was she felt the forum as she felt it wasn’t for her as she she was doing better and Lynnfish disappeared without a word - she was great, full of info. After Sandra left - it sadly all changed.

I was fortunate to join the board when all the names mentioned were active and benefitted hugely as a newbie back then.

Massive thanks to all that post questions, thoughts, experiences, feelings and much much more - it’s very much welcomed & needed.

Nx

Justme153 profile image
Justme153 in reply to Ntash01

I do remember all those you listed also Barbteeth ,Nancy, and a few others that i cant recall the name they used . This is one of the down side to this site. You feel like you get to know these people and truly connect. Then there gone! Some let us know they are leaving and why others we are left to guess did they decide they didnt need the site anymore , are they too busy with life to get on and post, are they to ill to even particapate anymore?? ,and the all dreaded Did they pass away?

You may also like...

The Latest Info About MBC!

Looking for encouragement

from the weight discomfort, I’m not in pain and still have some energy. And grandkids will visit...

Anyone have info about cardiac effusion with mbc?

How much info is too much, too soon?

there was a reason to change my medication. I don't know whether to be grateful that he was...

Important info about SSDI eligibility for MBC