Bone mets in skull: I feel I’m on one... - SHARE Metastatic ...

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Bone mets in skull

Glas0824 profile image
6 Replies

I feel I’m on one of those one bad news after another moments. I knew I had liver progression, but bone scan came back and there is also a fair bit of progression there including the skull. This news terrified me… any words of wisdom? I’m currently looking at my kids with tear-filled eyes xx

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Glas0824 profile image
Glas0824
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6 Replies
Mary115 profile image
Mary115

Oh those tear filled eyes gazing at the kids... I have no words of wisdom, but just wanted to be near you in your loving moment for them, and feeling the power of that love for our kids.. I have been empowered by that love from my past, and am strongly surmising that your children are the recipients of that love of yours.

Nocillo profile image
Nocillo

Hopefully you will be able to get the right medicine to stop your bone progression. I’ve had metastatic to all my bones, including skull since 2015 and only had to change medicine because my lobular cancer went to my stomach lining. I’m assuming it’s my ductal cancer in my bones. I know nothing about liver progression (and I hope never to know) but one can do quite well with bone mets depending on meds, type etc. Good luck to you!

Ursula_I profile image
Ursula_I

Hello lovely

Make sure there is someone/somewhere you can let your emotions out. I know you won't want that to necessarily be with hubby and not in front of your children. I've just had a counsellor recommended to me who looks brilliant... the psychologist in hospital wasn't really very helpful. Then you can carry on being positive, upbeat and hopeful in other moments of your life.

My liver was in a really really bad way in October, it is much improved now. I also have skull mets. There can be complications, but try not to worry. Slow your life down if necessary.

All best wishes to you and good luck with all your treatment

Lucy xx

Wintervt profile image
Wintervt

I have two school aged daughters and my first thought when I was diagnosed was I need to be here for them. I had/have extensive bones mets including the skull. Four and a half years later I am still here and my mets are stable. I feel hopeful with all the new research that we all can thrive for quite some time. Thinking of you and sending ❤️.

Jade

mariootsi profile image
mariootsi

Sending love and hugs.

Rego-park profile image
Rego-park

Has anyone had taxol ? Got brain Mets?

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