Piqau

[24681]

Hi just wondering if anyone had issues with piquay, ibrance has failed me, so my onc wants to change me to that. I’ve had no problems with ibrance and very nervous about the change.

Thanks

[Adele_Julia]

If you meant Piqray, yes ! I’ve been on Piqray since Dec of last year. No side effects and it’s kicking my cancer so I’m very pleased !!!! My CA 27.29 markers are 16. 20 below I mean below normal of 36 !!

[24681 in reply to Adele_Julia]

Thankyou so much, I’ve been a basket case with all the horror story’s I’ve read! 🙂

[Adele_Julia in reply to 24681]

Join the Piqray Facebook. Just go to Facebook and type it in- great group of ladies. Every drug has its horror stories. I’ve had nothing but raving success ! Feel free to private message me if you want to connect by voice. I live in AriZona . Heart higs !

[mariootsi]

Piqray is also in my future as I have the mutation. Please report how you tolerate it. It is a very effective treatment! Hope no side effects!

[24681]

My fingers are crossed! I’ll let you know!

[Rbeth]

I was on Piqray 300 and my numbers went down to 91 so my oncologist lowered it to Piqray 150. My numbers went up to 143 so I am now on Piqray 200 and we’ll see if this works better. I feel better on Piqray than Xeloda, which I was on previously. Xeloda made me angry. They don’t list that as a side effect.

My side effects on Piqray are diarrhea which I’ve had on all my meds. I have Type2 diabetes and use the Libre to monitor my sugar. 20% of Piqray users get Type2 diabetes. There is a endocrinologist at Sloan in NYC that specializes in Type2 caused by medication. I suggest you contact him if this occurs. Most Local endocrinologists suggest you on insulin, mine did. I read that this increases your cancer.

My endocrinologist is James Flory at MSK. I teleconference my appointments. I have an oncologist at MSK for a second opinion. This has been my lifeline. My current oncologist only has me on Piqray and he is retiring. I have not met my new oncologist yet. A bit nervous about this.

All oncology meds come with a list of side effects that are scary. Piqray has a bad rap. But I have adjusted to it. You need to take it with food. I used to take it at lunch time and my oncologist said to take it at dinner. So I have my watch alarm set for 7 PM. Works better for me. There are a lot of sharing folks on this site with helpful hints when on a medication or treatment plan. Continue to tap your resources here. We are all in the same boat and need each other for support and guidance. You need to be in the boat to know how it feels.

Blessings to you. Reach out anytime. Privately message me or we can chat if you’d like to just talk. Sometimes this helps the spirit.

Best. One good at a time. Reenie

[Hidden]

Hi, 24681. Would you please let me know how long you had been on Ibrance and was it your numbers were not good or a reaction from it. I have been sick since Thursday with diarrhea and I am so afraid it is the Ibrance. The doctor on call told me not to take Ibrance for a few days. I look forward to hearing from you. I hope your new med works out. You will be in my prayers.

[24681 in reply to Hidden]

Hi coraeel, I ve been on ibrance & faslodex 2 years, just had a pet scan and told there is progression. I’m very sad, the ibrance was wonderful, really no side effects, except I would get sleepy during the day. Pharmacist told me to take them at nite and it was great! I hope you will do well on it. God bless you.

[Hidden]

Thank you.