MBC Lobular : Hi Ladies, I am... - SHARE Metastatic ...

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MBC Lobular

LotusAFlower profile image
16 Replies

Hi Ladies,

I am wondering if anyone else has developed a painful to touch round hard mass on the tibia , shin bone. It is not red , not bruised and the skin looks shiny. It is about .5 inch in diameter and tender to touch. I have had it for a month now. I have my Faslodex injections and meeting with my oncologist next week. I do not have any scans scheduled . I do have Mets to my ribs.

Thank you .. this journey has been difficult. It’s so hard to give up all the activities we are use to doing . I allow myself to cry when I have to. I have a little flower garden on my windowsill. It’s what I can manage. I open the sliding door every morning to let my dogs do their business and when I open the door a beautiful humming bird flies inside to visit my garden ! Then she flies back out . It’s the little things that make me know that I can do one more day. One day at a time. Sending you all love.

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LotusAFlower
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16 Replies
LotusAFlower profile image
LotusAFlower

All those beautiful flowers , butterfly and hummingbirds ❤️❤️❤️❤️ Thank you for the response … it’s not movable however I’m doing my Boxed Breathing when I start to feel overwhelmed. I put out a bird feeder for a couple of doves that seem to have chosen my wall outside my bedroom to hang out on..

Lovey Doves
LotusAFlower profile image
LotusAFlower in reply to LotusAFlower

My friend …

Hummingbird in my kitchen ..
Hazelgreen profile image
Hazelgreen

Hello Patricia,I have a number of similar, but smaller bumps under my skin in different parts of my body.

I had a bump your size on my hairline at the back of my neck. I showed it to my GP early last summer as I assumed it was a blocked oil gland at the base of a hair. The GP sent me for an ultrasound and the radiologist said it possibly was a sebaceous cyst so the GP referred me to a surgeon who removed it and sent it for a biopsy. It turned out to be another example of my breast cancer.

Since I have many mets in various organs, I assume that the other bumps under my skin are also mets. None of these bumps are painful, red or oozy so I simply ignore them. I have not mentioned them to my oncologist but I presume he may notice them once inperson interviews resume here.

In any case, I'm glad I had the bump on the back of my neck removed since I'll want to visit a hairdresser again in the future. She or he might have found it awkward to work around.

Your bird visitors are charming!

Warm wishes,

Cindy

LotusAFlower profile image
LotusAFlower in reply to Hazelgreen

Thank you for your response Cindy . I’m sorry that you are in this group with us and appreciate you taking time to share your experience. Respectfully , Patricia

Thatflowerlady profile image
Thatflowerlady

I always assume everything has to do with the cancer , I have to repeatedly remind myself that other medical issues unrelated to cancer can occur . I hope you get some answers soon .

Luann

LotusAFlower profile image
LotusAFlower

Thank you Luann, I’m a flower lady too 🌸. Hopefully next week I can find out it’s nothing to worry about 🤞. In the mean time I will do my best and enjoy the flowers and birds around me.

Respectfully, Patricia

Hazelgreen profile image
Hazelgreen in reply to LotusAFlower

This is what Health Online had to say about ganglion cysts, "A ganglion cyst is a round, gel-filled lump of tissue that usually appears along tendons or joints, especially in the hands, wrists, ankles, and feet. Fluid accumulation can occur due to injury, trauma, or overuse, but often the cause is unknown. A ganglion cyst is common, harmless, and doesn’t cause pain or problems unless it grows and puts pressure on other structures."

LotusAFlower profile image
LotusAFlower in reply to Hazelgreen

Thank you again Cindy .. I did read this in your post above … it is hard and immobile and midway on the top of my tibia not near a joint … feels bony to me. I do have pain ( not extreme) but definite pain 2-3 / 10 that increases when palpated to a 6/7…

Hazelgreen profile image
Hazelgreen in reply to LotusAFlower

Have you tried applying a hot or cold compress to the spot to see if that relieves the pain?

By the way, it may well be worth your time to download Anne Loesser's book, "The Insider's Guide to Metastatic Breast Cancer". It is sold by Amazon, but she makes a .pdf copy free to cancer patients if you read to the bottom of her preface.

Google:

Insider's Guide to Metastatic Breast Cancerinsidersguidembc.com

Bettybuckets profile image
Bettybuckets

Thanks for sharing that impossibly beautiful imagery. I have lobular in bones too but haven’t seen that painful kind of thing. Hope you can get seen to figure this out soon

LotusAFlower profile image
LotusAFlower

Thank you Betty .. I am hoping for it to be an isolated incident . I had a fast growing mass in my lung that on biopsy turned out to be a rare non cancerous tumor . I was so relieved . I have opted not to remove it until I absolutely need to .. on the advice of my oncologist. Sandra guided me through the biopsy process that helped me tremendously.

Thatflowerlady profile image
Thatflowerlady

Your knowledge of breast cancer & nursing skills shine through Sandra and is appreciated by many of us. It is great to see you posting again , sending positive vibes for your upcoming scans .

I am doing ok , thank you for asking .

Luann

LotusAFlower profile image
LotusAFlower in reply to Thatflowerlady

I concur with that statement . I am very grateful with Sandra’s posts .

Thatflowerlady profile image
Thatflowerlady

Flowers are just good for our soul

Hazelgreen profile image
Hazelgreen

Hi Sandra,My intelligent, kind GP trained in England refers most matters to specialists. That seems to be the modern way! Oncologists do the same as all they do themselves is offer support and follow their practice guidelines in prescribing medications, or referrals to radiologists and surgeons.

I went to my GP because I assumed it was a sebaceous cyst and she would excise it (family doctors in my youth 60+ years ago took care of many minor matters). Both she and the radiologist saw me in person. To be fair to the radiologist, his report described the lump accurately, but also said, "Other soft tissue lesions cannot be excluded".

Intelligent patients can find much information online at medical clinics (such as the John Hopkins or Mayo Clinic) and actual medical research sites. I find SHARE helpful to see what others have done or been prescribed for various ailments. It also seems to be supported by compassionate, fun people. Many are very well-educated professionals. However, SHARE is not a substitute for medical consultation or research.

This from the Mayo Clinic: "A cyst is a sac that may be filled with air, fluid or other material. A cyst can form in any part of the body, including bones, organs and soft tissues. Most cysts are noncancerous (benign), but sometimes cancer can cause a cyst."

This is what Health Online had to say about ganglion cysts, "A ganglion cyst is a round, gel-filled lump of tissue that usually appears along tendons or joints, especially in the hands, wrists, ankles, and feet. Fluid accumulation can occur due to injury, trauma, or overuse, but often the cause is unknown. A ganglion cyst is common, harmless, and doesn’t cause pain or problems unless it grows and puts pressure on other structures."

Soft tissue lesions are the least of my problems. I will die only when cancer (or a cancer treatment) shuts down one of my major organs. Until then, I'll continue to do what I can to best live my life.

Best Wishes,

Cindy

LotusAFlower profile image
LotusAFlower

Over the course of the day I have a new visitor … a small red faced sparrow .. oh my heart ❤️ ❤️❤️

Pretty Sparrow

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