Hey,I am 65 years young,was diagnosed with Invasive Ductal Carcinoma on 07/29/2021,I am ER+PR positive,HER2 negative.I had Lumpectomy 09/13/2021,now receiving radiation.So I relocated from Maryland to South Carolina,wanted to have a better life for myself as I aged,I move here end of 2019,so life started getting better even in the pandemic,I moved into my home and land 06/26/2020.No longer struggling on a fixed income of Social Security,making plans,revisited dreams,goals and aspirations as I settle in.But July 2021,my entire life shifted with Cancer,physically,emotionally,mentally and financially.I live alone,have no friends,family here where I live,also I have no children.I am having this journey alone,have to take care of myself and it is challenging and hard but I have no choice.I get people saying to me I am not alone,my response is unless you are in my shoes you do not understand and I now do not expect it to be understood.I have yet to talk with someone who can identify with my experience.When I am asked how are you,My reply is I Am a BLESSED MESS.For if it were not for God,I would not be able to get through.So,that is a little intro to me.
Newly Diagnosed: Hey,I am 65 years... - SHARE Metastatic ...
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Welcome! Breast cancer has screwed all of us up, and I think you'll find this site supportive and encouraging. I like the "blessed mess" description. I'm going to use that sometime! 😆I've had Stage 4 breast cancer with bone mets for nearly 6 years. I still struggle with loneliness, even among other people. It's hard to make friends as an adult, especially when you may not want to talk about your cancer, or make small talk given the big issues you wrestle with.
It helps me to have fellow breast cancer folks to talk to, or even to read about their experiences here or on their blogs.
Take care,
Amy
Thank you my desire is to have somebody to talk to and hear others experiences.I am physically alone in my home,no visits at all for 2 years I have been here,my support or conversations only over phone right now.
Is there a support group in your area? Any type, such as breast cancer, any cancer, grief?
I have not found one yet,I asked the Social Worker and Nurse Navigator,no response yet from them.
Hi Gotskills65,Welcome to a safe place to share and support one another. I hope your radiation treatments are going well. Best wishes!
Hello Gotskills65,
You and I have the same type of cancer. I looked for an online support group because I wanted to be able to “check in” when I was able, and not have to meet with a group (if there were any groups even meeting during Covid) Every post that I read, I learn something about breast cancer/MBC that I did not know before. I like knowing what treatments ladies are on, after one has stopped working, in anticipation that it might be ME next, looking forward my next treatment option.
I find this site invaluable. Welcome.
Colleen
Thank you Colleen,finally meeting someone with same type,I appreciate your response,for me I need social interactions,via phone,or platforms where I can see and hear others.These groups are good for questions and sharing experiences,but I know what my greatest need is as I fight this battle with cancer alone(physically).
Welcome ! I love your reference to being a blessed mess ! This is a wonderful site of informative and supportive ladies. Each of us have our own and sometimes similar struggles. I’m ER/Pr positive , HER2 negative and have been on Ibrance and Faslodex since Nov 2020. This journey is one I believe God has a purpose in for me. Again welcome and blessings! Xo
Thank you Blessing,I am presently getting radiation.What is the medication you on for?Yes,I am getting much needed education on this journey I am experiencing.Yes,Mother God's plan for my life is Greater and Bigger than I,that gives me Hope and decreases my fears,worries and anxieties of this total shift in my life.
I was diagnosed in 2019 (March) with Stage II IDC. I had a lumpectomy, followed by 4 months chemo, a full lymph node extraction (right breast) and then 2 months of radiation. All that ended in Nov of 2019. A year later, the cancer came back in precisely the same spot as the lumpectomy. Shock ! I was diagnosed MBC in Nov 2020 with it spreading to my pleural lining. So I was immediately placed on Ibrance and Faslodex. Scans thus far show it reducing (praise GOD !) after a year. I have another scan in early December. Blessings to you my dear ! Julia
Welcome to the blessed mess community. Glad you found us. Keep posting. Without this wonderful group of women, I would not have been able to cope with MBC! I pray that you find a support group in your area also!Love,
Marianne
LOL - blessed mess community. I am using this from now on! Thanks to you and Gotskills for the smile
Hi and welcome! So glad you found us. Great group of supportive people. There is also a wonderful live support group at sharecancersupport.org. Under the Metastatic tab, scroll down to find all the marvelous support group offerings. They have zoom meetings and telephone meetings on different days of the week. They may also have knowledge of a support group in your area. Wishing you the best on your journey. And I'm going to steal your "blessed mess" because that says it all!
Warm hugs,
Susan
Thank you I went to that site and signed up for 2 support groups that interest me,greatly appreciate you sharing this with me.
Yay! I hope you find the support and friendship you need.
Take care.
Sending warm hugs,
Susan
I am sorry. You made nice life changes and now you are understandably a "blessed mess." All of us can relate. When I was diagnosed with MBC in June 2018 after 2 prior BC experiences, I was devastated. I crawled into bed and was completely in my head. Somehow, after about 6 weeks, I realized I was not going to die tomorrow. That made something click and I picked myself up and started putting 1 foot in front of the other. I hope you can find that switch too.
We are a wonderful resource when you are worried, lonesome or just need to vent.
Welcome.
I am back to that place where youcan do is to put one foot in front of the other while you try to figure out what. the latest development means.
Oof. Sorry. This roller coaster ride stinks. Good luck. We are here for you n
Thank you!
Sister/warrior I pray GOD will work all things out for you, and place some great friends in your life in S.C.. GOD says as believers sometimes we will go through difficult times on this journey. " Life sometimes gives us lemons," You know the rest. I was diagnosed with Triple negative metastatic breast cancer in 2007, after being misdiagnosed for a year in 2006. I was told I wouldn't live to see 2008. I have had NED for 13 years by Dr. GOD'S grace, and mercy😇🙏 Happy Thanksgiving Sister/warrior/over-comer XoXoXo
Thank you,I am Stage 1
Stage 1? We are all Stage 4 Metastatic BC here.
At Stage 1 with proper treatment, you should live many years.
While we are happy to meet you, we may not be the best forum for you.
You should consider finding a group that aligns with Stage 1 because they can offer more on point advice. You might inadvertently believe that the challenges Stage 4 patients face are hurdles you must manage too. That is not the case.
I’m grateful you are Stage 1 and not on the nasty Stage 4 roller coaster.
Good luck!
I have the same thing. It's good to get genomic testing--I crowdfunded for it. Also good to get help through a university hospital, if possible. I've been on Faslodex, Ibrance and Xgeva for several years now (since March 2018) and they seem to do the trick.
It sounds like you are a believer. I would suggest that you connect with a local church. You may even want to volunteer. I think you would make friends easily and find fulfillment and peace. God bless you in your journey.
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