Paclitaxel: Saw oncologist today. Again... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,669 members8,206 posts

Paclitaxel

gillyflower1 profile image
6 Replies

Saw oncologist today. Again she wanted me to wait another 2 weeks until after scan then more weeks to see her again. Couldn't give me fulvestrant as she said it takes 3 months to get into your system and then probably won't work. So I go on paclitaxel chemo tues. Has anyone been on this please and if so was it a bad experience. Thank you all for the support you give.

Written by
gillyflower1 profile image
gillyflower1
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Bestbird profile image
Bestbird

Is this your first line of treatment? If so, the standard of care is endocrine therapy (Fulvestrant or an Aromatase Inhibitor) and a CDK4/6 inhibitor such as Ibrance, Kisqali or Verzenio. That combination is recommended as the first treatment unless there's severe problems with the cancer causing considerable organ disease. And, as always, a second professional opinion is always a good idea!

gillyflower1 profile image
gillyflower1 in reply to Bestbird

Hi thanks for replying. Had letrozole up that stopped. Took exemestane 2 months and never worked. Because of my advanced age and heart problems oncologist didn't want me to have treatment but the tumours are out of control so I opted for chemo as a last resort. I thought I would be offered another tablet but was just told to wait till next month for scan. Waiting so long with no treatment has caused it to spread. This is the uk and cannot ask for another opinion. This is my last hope before the tumours take over completely.

Bestbird profile image
Bestbird in reply to gillyflower1

I hope you respond very well to treatment!

LisaT23 profile image
LisaT23

Hi, I just finished 17 cycles of abraxane (paclitaxil) 2 weeks on 1 week off. So that was 51 weeks, before it stopped working. I found it to be “easier “ on me, and it worked well on the cancer. I am sorry it stopped working.

I had done gemzar, and erubilin and couldn’t handle them, needed blood transfusions and lost at least 60 pounds since I was so sick. Once I started abraxane my appetite came back and I was able to eat and keep food down. I gained back some weight. I did not even need a transfusion for the whole year. Just make sure to drink enough water. I got my Dr to give me a litter of fluid with each treatment, so even constipation was not so bad.

My hair even partially tried to grow back. It looks like a bad short cut, but any hair is better.

Sending positive thoughts.

Lisa

queeneee profile image
queeneee

Have you tried Capecitebine (xeloda)? its a pill.

Thatflowerlady profile image
Thatflowerlady

Hi I just finished 12 treatments of Paclitaxel 2 weeks on , 1 week off . It has been tolerable for me . I started treatments in January and finished in May . Side effects that I have had are hair loss , very slight neuropathy of a few fingers & fatigue .

Do you have a port/ pic line for IV medications to be administered ?

If not I would highly suggest it as it can save a lot of needle pokes if you have bad veins .

If you have any other questions let me know .

Luann

You may also like...

Paclitaxel Acute Pain Syndrome

Gabapentin and dexamethasone. I am now pain free just week as a kitten. Scott did the research and...

Paclitaxel, Taxol, Onxal IV chemotherapy treatment anyone?

of side effects. My oncologist wants me to have IV chemo therapy. Every three weeks 4-5 hours need...

Mixed response to treatment , not the results I was expecting from Paclitaxel,perjeta & herceptin.

with my oncologist yesterday afternoon about my recent Ct & bone scans , these were the 1 year...

November to remember...

responses I read to her, and it gives her comfort that she's not alone. Again, thank you for...

Ibrance low nwutrophils

as it seems to be working! She had to text him He said take a week off again then start. I’m just...