Nauseous on Ibrance: Hello everyone... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,692 members8,230 posts

Nauseous on Ibrance

Jhshl512 profile image
25 Replies

Hello everyone. First off I wanted to say a big thank you for all your suggestions on trying to help me get financial help ( my copay last month was $2500.00). I have tried everything and I’m working on my application to Pfizer.

My reason for reaching out today is, I’m taking Ibrance and letrozole. The Ibrance is making me nauseous. I’ve tried different meds but found too many side effects. I do drink marshmallow root tea and that helps somewhat. Just wondering how anyone else manages this. Thank you.

Written by
Jhshl512 profile image
Jhshl512
To view profiles and participate in discussions please or .
Read more about...
25 Replies
Ardie1970 profile image
Ardie1970

I am on the same cocktail and have nausea sometimes. I take Letrozole at night and Ibrance in the morning. I have noticed the nausea in the late afternoon. My MO gave me Ondansetron ODT 8mg tablets (they dissolve on your tongue) and they seem to help. I have not noticed any side effects from taking these. I also drink ginger ale sometimes and that seems to help.

Jhshl512 profile image
Jhshl512 in reply to Ardie1970

Thank you!

Barbteeth profile image
Barbteeth in reply to Ardie1970

I was prescribed the same for nausea but only for a week as they’re very constipating which can increase nausea...so beware... I have cyclazine nowNairn’s make an oatmeal biscuit with stem ginger...nice to nibble if you can’t eat...get from Amazon

I’m on Xeloda which has to be taken with food...morning dose obviously a nightmare as I can’t possibly eat a meal so I use the biscuits

Barb xx

Jhshl512 profile image
Jhshl512 in reply to Barbteeth

Thank you. I will try the biscuits.

Barbteeth profile image
Barbteeth in reply to Jhshl512

They’re gorgeous and gluten and sugar free...no guilt!!Barb xx

Justme153 profile image
Justme153 in reply to Barbteeth

Hi Barb so sorry you are having trouble with eating. I have been thinking of you and wondering how you where getting along. Have they said if these side effects will lesson or go away after a time on this treatment? Take care I'm wishing the best for you!! I know some are not into the religious thing but I do believe so I'm saying 🙏 prayers for you.

Rotagirl profile image
Rotagirl in reply to Barbteeth

Those biscuits sound good. So pleased to see you on here (if you know what I mean)! Cheers, Fay😀

Jhshl512 profile image
Jhshl512 in reply to Rotagirl

They are good. I received them yesterday from Amazon. And yes, I do know what you mean. Everyone has helped me so much!

mariootsi profile image
mariootsi in reply to Barbteeth

Happy you are here!

Jhshl512 profile image
Jhshl512 in reply to mariootsi

Me too and thank you!

mariootsi profile image
mariootsi in reply to Barbteeth

Glad you are back.

Kimmykat profile image
Kimmykat

It’s been 3 years being on Both and I had switch to taking IBrance at night and Letrozole in the morning and it helped tremendously !!! Of course I’m also on Morphine 2 X daily and Oxycodone 1 X daily and Medical Marijuana Which is a Big Help !! When I do start to feel nausea I take one hit off the vape and it’s instantly gone , my pain Dr prefers that I don’t smoke But I said one hit is all that is needed and for the body I do 10 MG of edibles 1X daily and I feel like I’ve done a 5 min stretch and my whole body is relaxed Beyond belief for a good 6 hrs . I do work without any problems . I can’t believe that your Dr has not applied for you to be on the Pfizer program it doesn’t cost you anything , of course it has to be renewed every year and I do have to send my tax return / scared me at first because of the amount of money I make But All Good Be Well 🕊🕊🕊

Jhshl512 profile image
Jhshl512 in reply to Kimmykat

Thank you for your advice!! I will try your idea of switching my Ibrance at night and letrozole in the morning. I am waiting for my tax return to be done and the I will submit my application to Pfizer. Like you I am nervous about what we make, but any amount would help. Stay strong!

howsthis profile image
howsthis

I take my ibrance and letrozole together right after dinner, haven't had any nausea, but you'll probably have to figure out what works best for you. ❤️

Jhshl512 profile image
Jhshl512 in reply to howsthis

Thank you. I’m going to try that starting my next cycle.

Bexly profile image
Bexly

I have never had any issues with Ibrance or Letrozole. I take Letrozole with lunch. Ibrance with dinner. It’s important to take these at the same time every day. My phone alarm is set at 1:45 pm and 6:00 pm.

Jhshl512 profile image
Jhshl512 in reply to Bexly

I do take them at the same time, but I think I’m going to take them after dinner to see if that helps. Thank you

love2golfwell profile image
love2golfwell

I had nausea for awhile when I first started taking the Ibrance and Letrozole. I take them at night with dinner. I used ginger chews which I bought on Amazon and organic ginger/lemon tea. The nausea lasted about a week and a half.

Jhshl512 profile image
Jhshl512

Thank you!

Cowgirl1951 profile image
Cowgirl1951

I am single and my oncologist finance office said as long as my income is under $63,000 I would qualify for Pfizer assistance. I have a different co pay assistance till May. I also take my Ibrance at night with Aromasin. This way I will be sleeping during side effects.

Jhshl512 profile image
Jhshl512 in reply to Cowgirl1951

Yes I’m definitely going to switch my meds to the night. Our income is about 100,000 so I’m not too sure they will help but I hope so. We still have a mortgage and car payments among other things🙏🏻🙏🏻

atoth17 profile image
atoth17

I also take my Ibrance in the evening with dinner. I have a few days here and there that I get nauseous but ginger tea really helps. I have taken Zofran for nausea but I get a headache the following day so I will only take it if the tea fails. 😊 I also had my dosage lowered from 125mg to 100mg because of low neutrophils, I have felt great on this first month of 100mg.

Jhshl512 profile image
Jhshl512 in reply to atoth17

I love this forum!!! Thank you for your ideas!

viennagirl profile image
viennagirl

I haven't experienced nausea on the Palbociclib Letrozole combo but I have experienced nausea in the past for other reasons and I know that it is a horrible feeling. So I am trying to come up with something that could maybe help you. I don't know if this would help but maybe drinking ginger tea made fresh with grated ginger or ginger candy. Costco sells some dried ginger. It is really yummy but it has lots of sugar - so that is not good for you - but maybe you could soak the pieces in warmish water and get rid of the sugar. I hope you find a solution because the Palbociclib Letrozole combo is working well for me and is stopping the tumors from growing so I think it is a good combo of drugs. I hope to be able to continue taking it for a long time. I hope the nausea is a temporary effect so you can continue with those drugs. I wish you the best. Hugs Marlene

Jhshl512 profile image
Jhshl512

Thank you Marlene. This is my third month on this and I’m hoping it will get better. I love all the advice I’ve been given. 🙏🏻

You may also like...

To be on Ibrance or not?

on letrozole and go off Ibrance as I’m healthy. She is getting another opinion from the Mayo...

Ibrance

neutrophils stable even on the lowest dose of Ibrance. I’ve been on my second round, after a...

ibrance

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from...

Ibrance

start taking ibrance. Can anyone taking it let me know how you feel about it and are you able to...

Ibrance

the 13th and am just wondering. Thanks and hugs and prayers to you all. Sharon