Thank you to all for your suggestions with my problems with xeloda went to Dr Monday and he put me on lower dose and one week on one week off feeling this may be doable after talking to all of you how it made a big difference.
Wishing everyone well🥰 This site is the best medicine ever!
Well doneI had written you a long email and was suggesting the same but somehow it all got deleted. Good luck with the new regime. It worked for my feet, but Ihad to stop because of tummy troubles x
Oh sorry to hear that it is rough on stomach that was my problem too hopefully not with lower dose for me. Thanks for the email that got lost too happens to me too lol
I’m glad you are okay with Xeloda now😄
Only first week but I have high hopes! Thank You
That's interesting. I'm on highest dose of Ibrance but was told cure was not possible, it would always be there. However my lymphodema specialist who researches all of these things told me that everyone has bad cells in their body, our problem is that the lymphatic system has failed to keep them in check for some reason.Anyway I think feeling well is good as it makes you more positive , so you're right about having correct dosage for the person concerned. Good luck, Carolynx
No cure for cancer period
If you don’t have metastatic cancer have cancer in one spot that did not spread then it can be cured unfortunately once it spreads it becomes metastatic and best you can do unfortunately is keep under control
No cancer is ever cured! It always remains in lymphatic system waiting to break out. It annoys me that doctors have told patients for years that they were cured when they always knew better. But I feelLike remission is As good as a “cure”. I have gone with that in mind for 23 years
Just wondering what dosage you are on now. My oncologist would start me on 1000 mg. of Xeloda as Ibrance lowered my immune system badly even at the lowest dose and regimen. I have opted to stay on Ibrance/Faslodex one week on/one week off or switch from Faslodex to Exemstrane. Hoping one of these work. Best wishes to you. Take care.
Cheers, June S.
2000 but one week on and one week off. I was taking 3000 with no time off
Best to you also🙂
Thanks Barb. That is quite a difference from my suggested regimen of 1000 mg. I don't know how she would regulate that each week. I haven't started Xeloda yet.
Cheers, June S.
I’m doing 1500 in the morning and same in the evening with two weeks on and one week off and tolerating that pretty well. I have more energy than on Ibrance, but still find myself nodding off when I’m not engaged with something. Good luck on your new dosage.
So happy for you! Hope this works for a good long time !!
That’s great news so pleased you are giving it a go xxx
I have been on the 1 week on, 1 week off Xeloda plan since April - 1500 total each day. Chest and lung Mets gone and liver Mets are smaller. The side effects aren’t terrible, but when I get the urge to go to the bathroom, I do not hesitate!
Thank you wishing you the same
Glad you found a solution to your Xeloda problem. Hope the treatment does it's job and it kicks that damn cancer's butt!
Hi Sandra how are you doing? I hope your pain has improved. Nice to see you back.Clare x
Thanks Sandra, it makes me feel a bit better to be reminded that somehow I have managed, by the grace of God, to stay alive to raise my four children, youngest now 25 (only 2 at the time), 28,30 and 40. I do feel guilty to put my family though this suffering over and over again. But then, some women (far too many) never have the chance to go so long. My first bout was stage 3+ with bilateral/tram, A/C,Taxol and radiation then 10 years of estrogen stopping pills. Then stage 4 in 2017 to pleural fluid. I only did Ibrance for a few months and stayed on letrozole for the 3 years until it didn't work. Now three years later I am in the fight again, not having positive emotions and working hard in attempt to correct that. I am back on Ibrance 125mgs and now Faslodex for two weeks and seeing some liver function markers trend down. I am cautiously optimistic. You ladies help me a great deal and I am so grateful.Bonnie
Hi where are you located? In the UK they refuse to put you back on ibrance due to the cost even though it seems to work again free a break. I did well for 18 months on it
Im in US. Ibrance costs me big bucks in copay, $2600 for two months $1400 next then $650 each after for the remainder of the calendar year! It is wrong! If I was not on medicare I would not be paying. And in the states, Medicare premium is paid each month. Not like I don't pay for insurance.
Xeloda
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