At Last - ONJ appointment: Yay, at last... - SHARE Metastatic ...

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At Last - ONJ appointment

18 Replies

Yay, at last I have an appointment for my ONJ. Nearly 6 months from referral. I’m nervous but pleased. I nearly said I didn’t want the appointment as I’m so worried about the COVID but the nurse said I would have wait a long time if I cancelled.

Appointment is mid November so I have time to get used to the idea. I’m so pleased we have a calendar. It’s full of appointments.

My Dad loved Robins and when he passed the Robins were called Barney Birds. His name was Barney. So, here is a picture of our favourite bird to remind us winter is coming.

18 Replies

Another gorgeous pic!! My gosh, you all took that? And I love the Barney connection (heart)...

I'm also glad that you're moving ahead with the ONJ! I know I always feel better after getting things taken care of!

Best,

Lynn

Sunnydrinking profile image
Sunnydrinking

Hi

Thanks for sharing the beautiful picture of the robin.

Pleased you’ve got an appointment sorted and I wish you well.

I’m expecting a call from an oral surgeon today to discuss next steps. Whilst I could do without this, it’s better to get it sorted sooner rather than later.

Strangely enough, I have no pain at all from the wobbly teeth & troublesome side of the mouth but another tooth is now playing up!

Jo

in reply to Sunnydrinking

Jo all my teeth ache at some point but it goes away. I use the toothpaste I mentioned before and rub it over the gum area and it seems to help. I’ve had the treatment and bone removal before so I’m hoping it’s the same procedure

I’m nervous about going into the hospital also. It’s the one where all the cruise people went into quarantine when the virus first came out.

I hope you get some satisfactory results from you problem. I still think it’s the Denosumab causing the problem.

I will take a deep breath and go for it.

Take care

Cheryl

Hi Lyn,

I must confess this isn’t my photo.

The Robins come onto our plot and are so tame. They sing away and hop about picking up the insects. We never see two at a time though. My shots of the Robins are not as clear as this one.

I don’t like tattoos but decided they are body art. So when Dad passed I had a small Robin tattoo done in his memory. Crazy as it sounds I feel Dad is by my side all the time. He passed away a week before my diagnosis. My news wouldn’t have helped his state of mind. Things are meant to be.

I am nervous about the hospital but it has to be done.

Best wishes

Cheryl

mariootsi profile image
mariootsi

Thank you for the beautiful photo. Glad you finally got your appointment.

jersey-jazz profile image
jersey-jazz

Dear Flower Fairy

Excuse my ignorance but what is an ONJ?

MaryCos profile image
MaryCos in reply to jersey-jazz

My question, too!

in reply to MaryCos

Osteonecrosis of the jaw. Xx

MaryCos profile image
MaryCos in reply to

Thanks so much for the clarification! (Still so much to learn!) xo

in reply to jersey-jazz

Osteonecrosis of the jaw. Sorry should have spelt it out.

in reply to jersey-jazz

Osteonecrosis of the jaw x

What a fine specimen of a Barney bird.

Try not to worry about going to hospital for an appointment as most staff are very vigilant about keeping safe distances and cleaning. I have gone back to work one day a week in a hospital and I feel very safe, probably more so than anywhere else - we clean everything thoroughly twice a day, and everything we touch as we go along. Most clinics that are running make sure no patients are in at the same time, or walking along a corridor at the same time. Glad you have an appointment anyway.

Clare x

in reply to

Thanks for the reassurance Clare. I needed that x

in reply to

You will be fine Cheryl

X

Beryl71 profile image
Beryl71

I don't know what ONJ means?

in reply to Beryl71

It Osteonecrosis of the jaw. Not nice x

Beryl71 profile image
Beryl71

So sorry. Good luck. X

in reply to Beryl71

Thank you

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