Natural treatments?: Hi, I just wanted... - SHARE Metastatic ...

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Natural treatments?

Jac-genova
Jac-genova

Hi,

I just wanted to ask if anyone has tried any natural/complementary treatments or therapies for their cancer. I know there are many out there, but wanted to hear directly from you guys if you've found anything helpful.

68 Replies
oldestnewest

Hi there

I’ve tried a few things...I had acupuncture for night sweats and back pain...it worked for the sweats but not the back pain...I have many bone mets though so live on painkillers

I take many supplements including vitamins D..C...E...curcumin..glucosamine..ginger...cod liver oil..coenzyme 10 ..folic acid calcium

Also have an infrared mat....whether any of this lot makes a difference I’m not sure but take them anyway

I took most of this before mbc diagnosis just to make sure I was healthy...that’s a joke as I reckon I’ve had mbc for years

Barb xx

Hi Jac-genova -

Like Barb, I take supplements, e.g. D3 (this is essential (truly) for bone mets, I've recently learned on this site) and K2. I have supplements of curcumin, ginger, garlic, tumeric, but I use so much of these in cooking, I generally don't bother to take them in pill form.

On the less scientific front, again like Barb, I use an FIR heating pad, focusing on area where my mets are, on very high heat.

I also do intermittent fasting, i.e. 16/8, meaning I eat only during (at most) eight hours each day. Easier than it sounds...

Plus I'm vegan.

You can google any of these + cancer to see studies, etc., plus if you enter the words into the search bar (upper right of the screen here) you'll see lots of discussion.

I often say "If someone told me that jumping in circles on my left foot might help, I'd do it!". So some of this stuff falls into that category, i.e. might help/won't hurt. My docs' reactions range from non-committal to supportive...

Good luck with it!

Lynn

Jac-genova
Jac-genova in reply to LynnFish

Awesome, thank you so much Lynn!

LynnFish
LynnFish in reply to Jac-genova

OH!!!! Plus exercise! How could I forget this!

I currently do 1-1.5 hours in "cardio" or "peak" range (on my fitbit) of mostly biking, supplemented by running, rowing, swimming, jumping jacks to achieve that goal. I recently added this after years of starting/stopping/sitting around for a few more months, and am feeling very optimistic about it. We've got a bunch of bikers on the site...again, search bar will take you to the posts! :)

AnnaP668
AnnaP668 in reply to LynnFish

Lynn, what is an FIR heating pad? I've read that high heat therapy is very effective in Germany but not approved in US. I do use my heating pad on high nightly bit don't know if I'm doing any more than maybe melting some of my belly fat! 😄

LynnFish
LynnFish in reply to AnnaP668

Hi AnnaP668!

That's interesting about Germany (they seem to do a lot of interesting treatments there...), I'll have to look into that. I think this is different from "high heat therapy" (maybe) but there's stuff online about "heat ablation", too, for specific tumors...

..."FIR" = far infrared and it's not only hot but also emits some sort of waves (wait! let me guess at this...infrared waves, I'll bet! :). So these/the heat penetrates the body more deeply, e.g. up to several inches. From what I understand/remember, if there are tourmaline or jade stones embedded, the penetration is better/deeper...

They're available on Amazon, different sizes, and with different stones...

Re: melting fat, wow, I hadn't thought of that potential benefit! I'll need to add a segment to my "treatment" where I apply it to my hips! :)

AnnaP668
AnnaP668 in reply to LynnFish

Thanks for the info, Lynn. Happy melting!🤣

Ann

AnnaP668
AnnaP668 in reply to LynnFish

By the way, in Germany they heat the whole body up to 104 degrees. I'm not sure how they do this or for how long. Sounds pretty unpleasant but if it works.......

Ann

girlsptz
girlsptz in reply to AnnaP668

Ann I have an in-home infrared sauna and although not everyday during the summer months I do use it daily in the fall and winter. I stay in it at 120 degrees for 35-40 minutes. I'm pretty toasty when I get out but it is amazing for joints and I also picture it zapping some cancer cells or at least they are struggling hard.

Sandra

Jac-genova
Jac-genova in reply to girlsptz

Thank you! What type of infrared sauna? I'm looking for an economical one - I've heard relaxsauna is a great brand!

girlsptz
girlsptz in reply to Jac-genova

Mine is a Saunajen brand and we bought it years ago but it's like the one in the link below...sorry it was costly even when we bought it and now they can be quite pricey.

infraredsaunainfo.com/blog/...

Relax sauna is a portable one and I know much more affordable. One of the ladies (Barbteeth) bought a similar one from Amazon. It's like a tent that keeps your head out. I think whatever you purchase you have to commit to using it regularly to make it worth your investment. If you have somewhere where you can sit it up and leave it always at the ready I think that's also important. On days when you might not feel the best or just lazy if you have to go to the effort of getting it out, sitting it up etc you may not bother. Good luck. I love mine.

Sandra

Jac-genova
Jac-genova in reply to girlsptz

Thank you!!

AnnaP668
AnnaP668 in reply to girlsptz

Thanks for that info, Sandra.

viennagirl
viennagirl in reply to AnnaP668

Hi Anna,

I bought my Wave Mat from a company in New York. I went on line and googled Wave Mat and up came the details of how to order. Mine is filled with stones like Jade, Tourmaline, Amethyst, etc. that give off some kind of healing vibrations. I find mine comforting and use it quite often in the afternoon when I take a book and read or I just nap on my couch. I don't seriously know if it helps but it is soothing and gives me a much needed chance to relax. I highly recommend the Wave Mat. Mine came to just under $1,000. CDN.

I know some of the Integrative doctors do recommend using that type of technologiy.

Hugs Marlene

AnnaP668
AnnaP668 in reply to viennagirl

Thanks! 💕

Jac-genova
Jac-genova in reply to LynnFish

Thank you so much Lynn!!

Me again

Reiterating what Lynn posted...exercise is so beneficial...I do yoga at least twice a week and ride my horse ( when pain isn’t too bad) and try to walk as much as possible...I’ve noticed that the pain improves if I exercise although motivating myself is tricky and I have to force myself...just getting out in nature is beneficial mentally...I have various pets who are all therapeutic to me

All the best

Barb xx

Hi!

I'm doing many of the things already mentioned, primarily to help my body/mind/spirit deal with conventional therapies. Having been diagnosed from the start with extensive bone and liver mets, I was never tempted to forgo conventionals. I do think the complementary therapies have a big impact on quality of life, but that's a subjective call.

Supplements: Many of the ones already mentioned...mushroom and curcumin extracts, D3, B6 and L-glutamine to help with neuropathy, Astragalus for immunity, K, B12.

Green juice: I usually juice a combo of carrot, green apple, celery, cuke, a little greens, and mix it with a tsp of green "superfood" powder.

Exercise: daily mile+ walk, tai chi, qigong

Acupuncture: every other week. Now focusing on preventing neuropathy, but also for liver support and general immunity.

Food! I love to cook it, eat it, learn about it. I eat lots of veggies at every meal (yes, breakfast too), whole grains and beans, some fish and occasional meat, very little sugar, almost nothing processed. (I make exceptions for dark chocolate bars with raspberry or orange peel! And I love my English breakfast tea.)

Naps: I try to lie down every afternoon, whether I think I'm tired or not, and I usually sleep for 30-60 minutes. I think it's important, healing is hard work. And my cat loves it!

Mistletoe injections: I just began this in February and find it pretty intriguing. I've known about it for decades, very common in Germany as a complementary cancer therapy. I do a subcutaneous injection twice a week, seems to help with my white blood count but also has some effects against cancer. Here's a link to one study about it:

bmccancer.biomedcentral.com...

What has helped me the most in navigating all these options is working with a naturopathic oncologist. I met with one the same day I first say my oncologist in Oct 2017 and he's been so helpful as I move through treatments. He helps both with therapies to help with side effects and advice when I am facing decisions about conventional treatments. I'm lucky to live in Oregon where one of the naturopathic colleges is located, so there are a few ND's here who specialize in oncology. If there isn't one in your area, you may be able to do an online consultation.

Hope that helps. I didn't start all of these at the same time....things fall away and I try new things. And I'm not religious about doing them all daily - I don't want my life to become a checklist of things I have to do to stay alive. But it's actually really easy to remember to take supplements after a meal, and I enjoy the walking and naps and such.

Let us know what works for you!

Patty

LynnFish
LynnFish in reply to MacroMom

Patty,

Thanks so much for bringing up the mistletoe and sharing the study. I've just contacted a nearby holistic healing center to inquire about it...

8576
8576 in reply to LynnFish

Hi Lynn; Can you let us know what you find out about the mistletoe?

Cheers, June S.

LynnFish
LynnFish in reply to 8576

Hi June,

The place I contacted (seemed the most "medical"/likely to do injections of my local Dallas options..) replied and said they don't do the mistletoe. I think I'm going to let this idea sit for a while...I'm very needle-phobic and, after I sent the email I thought, "What am I doing?!? "...The last thing I need is another needle! :)

Lynn

Hi,

Along with standard of care treatment (letrozole, zoladex, zometa) I am also following an integrative approach. I know that standard of care treatment is not enough to cure me of metastatic breast cancer, which is why I do not rely on it alone to improve my prognosis. I take lots of supplements, off-label drugs, exercise (I workout most days, and walk for hours each day), make time each day to relax, juice most days, am careful with my diet, and I follow my integrative doctor's advice with regard to other aspects of my lifestyle.

I like to add Epsom salts and essential oils to my bath every night to help me relax and sleep better. There are more things I would like to add, such as buying an infrared sauna (it's such a wonderful experience), intermittent fasting (I am currently at around 14/10, but want to work up to 16/8) and so on. This is just a sample of what I have done to improve my life. I feel that it has made a difference, as my last eight CT scans have shown stable disease, with shrinkage of the primary tumour. The last few scans have shown that it is hard to detect. I also feel much healthier and more energetic than I have done in years.

Sophie

Jac-genova
Jac-genova in reply to SophSP

Thank you! What type of infrared sauna did you buy? I'd like to get an economical one too - I heard relaxsauna is a great one

SophSP
SophSP in reply to Jac-genova

You're welcome! I have not bought an infrared sauna yet. I told my husband I want one as an anniversary present next month. Actually, it will probably be 10 anniversaries rolled into one, as they are not cheap!! I tried the infrared saunas while I was on holiday in Iceland and I have read of the health benefits, so I will probably buy one. I'm still dithering and wondering whether it was fair to ask for one as an anniversary present.

Sophie

Hi Jac-genova,

Oh yes, I do loads (all home based and as cheap as I can manage)! Largely because I do not accept the received view that stage 4 cancer is always incurable. There are people with stage 4 cancer who are in remission and living a very long time and I believe many of these are the ones who go above and beyond orthodox medicine (which as we know does not aim for a cure). In general terms I eat whole foods prepared from scratch at home with a heavy lean towards plant-based but with absolutely no rules. So if I fancy some meat, cake or wine, I have it! I think habits rather than the odd exception are what matters.

I take fenbendazole on 3 days per week . For anyone unfamiliar with Joe Tippens story here is a link:

mycancerstory.rocks/single-...

I also take high dose melatonin, around 150mg per night about an hour before bed. I have only started doing this recently, as I have only just found out about it. Here is a link to a Youtube video:

youtube.com/watch?v=Roh4lQX...

by Dr Frank Schallenberger. It's an hour long but you can skip some bits as he deals with other cancers later in the video. There is also one by Russell Reiter who has been working with melatonin for over half a century. He is not a great speaker but the content is fascinating. Helpful against cancer in at least 8 different ways, this is a big gun which may also keep other degenerative diseases at bay.

youtube.com/watch?v=I7YIRqT...

I get melatonin from Werone (internet) or Purebulk (American company that post to UK).

High dose fish oil (I get mine from Nature's Best) for omega 3 to reduce chronic inflammation and help maintain bone health.

Iodine (essential for breast health yet most of us are deficient in it). I eat a small piece of dried kelp each day but iodine drops and supplements are available.

Selenium, vital to fight cancer. I simply eat 1 or 2 brazil nuts each day but again supplements are available.

Turkey tail mushroom (Paul Stamets, a mycologist gave his mother Turkey Tail while she was on Chemo. Her 'incurable' stage 4 breast cancer has not been measurable for 13 years or so and she is now 87 I believe! You can find his story on Youtube). I take 4 capsules per day (I buy the powder from Bulk Supplements on line and make up my own capsules, size 00, significantly cheaper than buying them ready made).

Moringa powder (in bulk from Bulk supplements). This is known in India as the Tree of Life and has been revered for centuries for its medicinal properties. It seems to give the immune system a substantial boost. 2 (homemade) capsules per day for me.

Magnesium - I apply (homemade) magnesium oil topically every day. It is well absorbed through the skin and magnesium is involved in over 300 processes in the body. As with so many minerals, our over used agricultural soils tend to be deficient and thus so do we.

I take a good probiotic each day.The role of the microbiome in health and disease is only just beginning to be explored but it makes sense to me!

Passionflower - I take a 500mg capsule each day as it helps to regulate oestrogen in the body, reducing the amount of 'bad' oestrogen in the body.

Sea buckthorn (Nature's Best). Contains omega 7 and various phytonutrients helpful against cancer.

Vitamin D - if I am not going to spend time with bare skin in the sun I will take a hefty vitamin D supplement (Nature's Best). Crucial to fight cancer, again many of us are deficient in it in these days of manic sunscreen application!

Sodium (and potassium) bicarbonate. 1/4 of a teaspoon first thing in the morning with plenty of water. You will find a lot of information on the internet that says bicarb doesn't alter the pH of the blood. This may be true but it does seem to alter the pH of tissues in such a way as it prevents cancer cells from going dormant (as they typically do in the middle of a tumour). Whilst dormant they are resistant to treatment so preventing this seems to enhance the effectiveness of anything else you are doing. See this study by Ludwig Cancer Research:

ludwigcancerresearch.org/ne...

There is also work done by Dr Sircus, who suggests adding the potassium bicarbonate so that the sodium/potassium balance of the body is maintained.

I also take care not to overload my liver with cosmetics and other things applied to the skin. My only moisturiser is extra virgin olive oil for instance and I just use a simple soap in the shower along with as natural a shampoo as I can find. I use a minimum of cleaning products and always with rubber gloves.

It sounds like a lot of stuff to take but in reality it's just a handful of supplements at breakfast, a much smaller handful with dinner, bicarb first thing and melatonin half an hour or so before bed.

In addition I meditate & practice yoga daily (Adriene Mishler, free on Youtube) and love how much stronger, fitter and calmer I feel. The work of Dr Joe Dispenza, among others, is invaluable in demonstrating how destructive chronic stress and negative emotions and thoughts can be to health.

Sorry this is such a long post and all about me! But one year on from my diagnosis of stage 4 lobular breast cancer with extensive bone mets, spots on liver and hazy mesentery, the disease is no longer measurable, tumour markers well within normal range. So I feel my efforts are paying off and hope they will continue to do so for a very long time. Hope that helps (if you haven't nodded off by now!) xxx

PS Love your Wellthoughts website xxx

Jac-genova
Jac-genova in reply to LouisaMay

Thank you SO MUCH!!!

LouisaMay
LouisaMay in reply to Jac-genova

PS I should add I was on Ibrance for about 9 months and letrozole for 10 or 11 months. Not on any orthodox meds now. xxx

Jac-genova
Jac-genova in reply to LouisaMay

God bless! Louisa - would you mind speaking with my mom?

LouisaMay
LouisaMay in reply to Jac-genova

I have sent you a private message. x

Jac-genova
Jac-genova in reply to LouisaMay

Also how do you take baking soda each day? With water? How much?

LouisaMay
LouisaMay in reply to Jac-genova

I dissolve it in a glass of warm water. Then drink another glass of warm water. (I don't like cold water). At first it tastes vile so I used to hold my nose but I don't mind it at all now. This needs to be separate from any meals as it temporarily neutralises stomach acid. I wait at least 30 minutes before breakfast. x

vallergirl
vallergirl in reply to LouisaMay

Well done!

LouisaMay
LouisaMay in reply to vallergirl

Thank you my lovely! x

Not really, unless we count STAYING FAT as a survival strategy. (I will explain below.) I am age 60 with stage four metastatic invasive ductal carcinoma with diffuse lung mets. I take 2.5 mg of Letrozole and 125 mg of Ibrance and I have been stable for over four years. I am a college professor and will be retiring in August. (As many of you know, prior to Ibrance and the latest oral chemos, all they used to have for us was infusion chemo----so I am very grateful with what science has brought us.) I do think that decent healthful eating and good sleep habits are obviously good for all people but am not personally a believer that any juicing or supplements are going to make a difference on overall survival for me at this point.

One of my best survival tips for y'all, and this is substantiated by research, is if you were plump when you were diagnosed with breast cancer is to go ahead and STAY PLUMP! I am a big reader and huge consumer of medical research studies. One of my favorite research areas is about the "breast cancer obesity paradox." It might seem unexpected to you, but research shows that women who lose weight after their breast cancer diagnosis DIE SOONER than women who remain overweight. Now, if you have been stressing about your weight, isn't that fantastic and cheering news?! Go ahead an enjoy that mocha and your donut.

Woohoo. Isn’t that something? My cancer actually reared it’s ugly side after a 4 year “sleep” after I did multiple 3 day fasts. I have learned to be okay with my rolls for now. I was kinda hoping to lose some weight during chemo but my body seems to want to hold on to it all. Thanks for sharing that.

What did the research say about women who put on weight after diagnosis ?! I fall into this category , as I have put on a stone since my diagnosis in late 2017. My onc did say it was not a bad thing for me as I was a little too thin at diagnosis ! I blame it on the Letrozole ...and I used to go to the gym and watch my diet more ! !

I take Paul Stammet's Defense Host Turkey Tail supplements; 6 grams per day (12 capsules). It has made a tremendous improvement on my energy. I was on Ibrance and Letrozole but that combo stopped working at about 1 year. Will be starting Afinitor and Aromasin. My doc said she is very confident in this new treatment.

Turkey tail is also believed to support the immune system and protect healthy cells from chemo. There is a ton of research on this and the FDA began trials with its active ingredients PSP and PSK. Here is the research article below. In summary, these mushrooms upregulate essential pathways and down regulate other pathways to control/stop cancer cells from proliferating. Interesting read! BTW, Turkey tail is compatible with most chemos and there are so many patient testimonies stating how this supplement helped with their treatment as in integrative approach!

ncbi.nlm.nih.gov/pmc/articl...

Wow! I am impressed with the last post. Mine is quite different. I have stage 4 breast cancer with metastases to my hip and other smaller lesions. I have had Cancer since 2011 but only diagnosed in 2013. This year, January I had the left breast removed because the tumour had pressed through the skin. Excellent surgeon, she removed the breast plus lymph nodes under the arm. So now I am left with the tumour in the hip, (inoperable) and a few lesions.

I don't take any supplements except I have just started to take Calcium with D. I am 80 yrs. old and have always been told to take calcium but I didn't like it so never did. Now my Oncologist has mentioned it again so I just started taking one pill a day.

I do take a thyroid pill, plus Pantaloc for my stomach and one Oxycocet in the morning and a Lyrica at night for pain. I am on Faslodex/Ibrance and Zometa. Just started on 75mgs. of Ibrance. Hope it works.

I just asked about supplements like juicing, etc. and the Oncologist said she prefers eating healthy instead. I try to eat healthy. I rarely eat processed foods of any kind. Bake my own treats.

The surgeon told me drink lots o f water, low sugar and low salt. I do that now and have lost 20 lbs. Great.

That's it. I feel good except for sleepiness occasionally. Need my afternoon nap.

Cheers, June S.

i continue to practice an integrative approach to health and wellness. Chinese medicine, supplements, mushrooms, juicing, plant based eating, intermittent fasting, teas, detox baths, yoga, shaman, meditation, acupuncture, massage, cardio exercise, strength training, infrared sauna/jade mat, and rest/naps/sleep.

I do a lot of what has been mentioned.

I do Joe Tippens protocol, infrared saunas, pemf mat, and D3 with K2, glutamine, alpha lipoic acid and mushroom tea. I am on Tecentriq and am not supposed to take any antioxidants. :( I have not been able to get acupuncture since COVID. But will start again when able. Very relaxing for me.

What hasn’t been mentioned is homeopathy. I have been on the homeopathic cancer protocol for my situation - breast, lymph, vein and bone tumors. I also use it for side effects from the abraxane. My labs have never gone below normal, I have not had to take the X shot for bone issues and it works great for the bit of nausea I get after chemo.

I just got my scan results and after 3 months on all these protocols my tumors have had complete or near complete resolution! I am staying on all of it for another 3 months and then hopefully I can go off the infusion chemo.

Just take a deep breath (which is another good practice) and take up one thing at a time. You’ll figure out what works for you.

Hugs

Frederica

Jac-genova
Jac-genova in reply to fchrist

Thank you!!! What is the Joe Tippens protocol?

SophSP
SophSP in reply to Jac-genova

Joe Tippens went into radical remission from metastatic cancer after taking fenbendazole (a dog dewormer) while he was also on immunotherapy (keytruda, I think) and some supplements. You can look him up to learn more about his protocol.

Sophie

Jac-genova
Jac-genova in reply to SophSP

Also what type of sauna do you use?

SophSP
SophSP in reply to Jac-genova

I haven’t bought one yet. My integrative doctor recommended one to me. I’ll have to go back and find the email.

Jac-genova
Jac-genova in reply to SophSP

Thank you!

SophSP
SophSP in reply to Jac-genova

I just found the email I mentioned earlier.

get-fitt.com

infraredsauna.com

Sophie

Jac-genova
Jac-genova in reply to SophSP

Thank you!

Jac-genova
Jac-genova in reply to fchrist

Also what infrared sauna do you use? My mom was looking at healthy wave infrared mat? Is that as effective as an actual sauna?

fchrist
fchrist in reply to Jac-genova

I have a Healthy Line mat, the chair one with pemf. It’s wonderful. I also have a sauna that I got a few years ago, the Sauna Fix. It’s just the lamps that I hang in my powder room and rotate in front of for an hour every 3 days (I have a pain patch that I change every 3 days and when it’s off I sauna, otherwise I would over dose on fentanyl).

Jac-genova
Jac-genova in reply to fchrist

Thank you! What type of homeopathy?

it was mentioned above. Google my cancer story rocks and you’ll find his site.

Adding on to my previous post. When I started with Wow! I was referring to the post from Louisa May. I do believe each of us finds our own path through MBC. I didn't mention that I also have 4 pelvic fractures. Not problematic as yet although I had to stop my light exercise program when they occurred. They are slowly healing. I knew it wasn't good. I could hardly finish the class which was twice a week. Too bad. I quite enjoyed it and it was good to keep moving. Now my main exercise is cleaning our 3 story house and cooking/baking and the grocery shopping, laundry. I am happy I can still drive.

I to think Yoga is a great exercise. It has many proven benefits for many normal ailments. I love the deep breathing exercise for relaxing and getting to sleep at night. But there are so many poses.

I have always followed Kareen Zebroff. She was a Yoga specialst with her own TV Yoga show in the 60's. Her book ABC of Yoga(still available) is great and tells in detail how to do Yoga and what to do for common ailments. They really work. There is a great move for Sciatic pain I learned elsewhere. Very effective. I wrote earlier that I had lost 20 lbs. after surgery and following doctors orders. That was a wonderful change for me. I was overweight so the loss was good. I believe it is the reason I can still do the things I do easily. I should walk more but have never liked walking just for exercise. Just me! Good luck. You will sort through all the info given in this forum and then select what suits you.

Cheers, June S.

I have been on a naturopathic treatment in the beginning. I was going to a naturopath in Lexington, MA and I trusted him because he seemed to do something. I was getting all kinds of tests, blood, urine, saliva and he was giving me a lot of natural supplements. Everything was costly and nothing was covered by insurance. I was taking over 100 pills every day. One day, one test did not look right he washed his hands off me. And sent me back to traditional medicine.

girlsptz
girlsptz in reply to SMPG

Gosh I am so sorry to read this. Sounds like a total scam to me. You should report him. I'm a realist so I don't believe in taking anything that isn't scientifically proven but we all have to make our own choices. Honestly if someone told me to take 100 supplements a day without any proof they work they would have gotten an earful from me. I am sorry you were given false hope at a big cost to you. I wish you nothing but the best. Take care.

Sandra

I am very similar to yourself in this respect Sandra ... I don’t believe in taking anything that isn’t scientifically proven (tho’ I have no medical background) and I would never agree to take such amounts of pills without actual proof they work . I am a bit of a sceptic / realist and I believe there are many people out there taking advantage of ‘vulnerable’ ladies like us . My husband is in the big marketing industry ... but he dishes out chocolate and not pills ! x

Teddielottie
Teddielottie in reply to SMPG

So sorry this happened to you ...there are some very unscrupulous people out there and I hope the traditional treatment gets you back on the right track .

I have been fortunate , so far , to have done ‘ remarkably well ‘( my oncologists words in her update to my GP! ) on just Ibrance and Letrozole for over two and a half years . The only pills I take otherwise is the Adcal vitamin D and calcium ( prescribed by my onc ) and I take a glucosamine pill for occasional stiff joints , ( caused by the Letrozole) .

I did ask my oncologist if I should take supplements and she said as everything was in balance and I was doing well , her advice was not to change things . So far , so good!...I am stable and my bloods have always been good . 🤞

I believe in getting out in nature , love days out walking ( visiting country houses ) and riding my ebike in the local countryside ,being out in my garden , eating a fairly healthy diet , but no strict rules ! I have always been vegetarian, ( but eat dairy ) for over 35 years ,but this didn’t stop me from getting breast cancer ! I drink lots of water (and decaf drinks ) . I minimise stress and rest when my body tells me to !

I haven’t done any heat treatments , as I am always wary that I am at risk of lymphodema ( having had an axillary clearance with a mastectomy on my right side a couple of years ago ) ... I used to love hot tubs and saunas , but not sure on these now . But I do gentle gardening and just don’t overdo things on my right arm .

Wishing you good results ! x

SMPG
SMPG in reply to Teddielottie

Well, this doctor had a degree from an accredited naturopathic medical school, equivalent to an MD degree. He is still very well regarded and a lot of people swear by him. I decided to go to him when my oncologist was not doing any testing at all when I was due for a checkup. I would go to my oncologist, travel some 2 hrs one way, then wait for her to see me more than one hour and then our visit was 5 minutes and she just asked me how I felt and I told her I felt good but wanted some tests done. She said that she did not recommend any tests. I felt frustrated and wanted tests done. So I went to the naturopath. He is not a charlatan and unlike the oncologist, he was doing tests and prescribing things. I am not a person to be taken in by charlatans but I cannot say that I trust traditional medicine 100%. Before I was diagnosed, I had mammograms religiously every year and when they discovered it, they said it had been there for 5 years, undetected. And my gynecologist had palpated my breasts not even 2 weeks before I was diagnosed and he said I was perfectly fine....

Teddielottie
Teddielottie in reply to SMPG

It sounds as if you haven’t had much luck with your doctors ! ...I hope you get good results from Ibrance /Letrozole and that you now have a more understanding oncologist . Take care! x

SMPG
SMPG in reply to Teddielottie

I have the same oncologist. She was rather young before. Now she has matured and got much much better. I am pleased with her. And my treatment so far goes fine. Apparently, I am NED

Teddielottie
Teddielottie in reply to SMPG

That is good to hear ! Glad things turned out ok ....wishing you continued great results ! X

girlsptz
girlsptz in reply to SMPG

Gosh your oncologist sounds so uncaring. I am so sorry to hear that. I can see why you were grasping at straws for someone to just do something. I want to make it clear we all understand the frustration and total lack of control we have with this disease so no one feels you did wrong...me included. You checked their credentials so you did your due diligence. What I cannot tolerate is anyone who preys on the desperation of how out of control we feel with this disease and promises things that often have no scientific background and those that imply that you need to buy supplements that they sell.....in my opinion this is totally unscrupulous. Frustrates me to no end.

Sandra

What an interesting read this whole thread is, and as someone newly diagnosed MBC I am feeling very spurred on to integrate some of these ideas into my every day. I already eat a healthy diet, wholegrains, no white carbs, no processed foods, home cooking and baking only, no refined sugar, a little meat, plenty of salmon and lentils, legumes and fruit and veg, nuts, no alcohol mainly only water and earl grey tea. I do already take vitamin D as prescribed by oncologist as like many of us I am deficient in it. I have heard of selenium being beneficial to us and I'm wondering whether it is ok to take whilst on taxotere chemo and herceptin and perjeta?

Thank you!

Jac-genova
Jac-genova in reply to cazlav

So glad to hear that! I wanted to share with you a few posts I wrote based on my own research so far:

wellthoughts.org/an-integra...

wellthoughts.org/the-best-a...

I take colostrum to avoid that my white cell count go too low like 2 months ago when i didnt take colostrum my neutropenia went down to 0.69

I was told by two doctors who were educated at Stanford and ran a natural health clinic Uchee Pines in Alabama-USA, that the heat treatments are very effective. I went to their clinic in 1990 after having a mastectomy with no further treatment. I had 10 “fever” treatment s where they raise the temp to 104. They said this kills cancer cells and viruses. They educated me on healthful eating and exercise. I fell off the wagon after about 10 years. I am vegetarian but love sweets and cheese. I went 30 years without a a reoccurance. And I firmly believe my reoccurance occurred because my radiology doctor did not update her equipment and was later cited for incompetence due to dementia. Also I stopped following a health diet. My natural doctors said it is harder to treat cancer when it is stage 4. Not impossible, but more difficult. We need to be as well informed as possible and make sure the equipment used on us is up to date. Healthy eating is also vital as is water and exercise.

Madlyn

Do you know what type of heat treatment they recommended? My mom is getting a biomat, but I'm wondering if I should get her an infrared sauna - I heard relaxsaunas are pretty good

I was put in a water bath up to my neck. Ice bags on my head and they slowly increase temp of water until your body temp rises. This needs to be done by a professional. A sauna can do the same thing. cold water always follows after your temp rises.

I read “How to Starve Cancer” by Jane McLelland I take all the drugs and supplements she lists to block all the pathways. Plus I follow Joe Tippins advice. So far so good.

You have to try and see what works best for you. Hope this helps.

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