Help for Re-location

[Aire]

Good Morning, I am looking for an e-pal from the Denver area. I will be moving soon and I would love to hear some comments concerning clinics, oncologists and treatment centers. My oncologist will set me up with an oncologist there, but as you know patient comments are always helpful. Thank you.

[PJBinMI]

Hi, I don't live in the Denver area but several years ago I was interviewed for a film called

"The Quiet War", about living with metastatic breast cancer. The oncologist and social worker interviewed for the film were from the Rocky Mountain Cancer Centers. I just looked RMCC up on line and found that they are still there. The oncologist is Dr. Scot Sedlacek and he is at the Rose location. Susan Ash-Lee is the social worker and I could not find which location where she is currently working. The BC Advocate they interviewed is Musa Mayer, possibly the most well known BC patient advocate in the world--I say that based on the fact that she was invited to be the key note speaker of the first international bc conference in Lisbon a few years ago. So I would certainly suggest that if you don't get oncology endorsements from current Coloradoians, that you at least check these two people out. Social workers often know alot about the oncs they work with and if you contacted Ms Ash-Lee, she might help you find an onc in their system that would be a good match for you. Denver is a beautiful city! My mother lived in Cheyenne, Wyoming, about 100 miles north of Denver for the last 20 years of her life and I visited Denver often. My favorite place to visit in Denver was the Art Museum, not sure what it's exact name is, but the building is fascinating and they have some wonderful pieces. I was also able to walk right in the state capitol building there....have no idea if that is still possible! So much has changed...... I hope your move will go smoothly and that you will find an onc that you like, trust and respect.

[Lmrh1959]

I live in Nebraska but am being treated at Anschutz Cancer in Aurora/Denver. Dr Peter Kabos. I was diagnosed with MBC in May after 6.5 years post bilateral mastectomy. Still in shock and went through 3 weeks of radiation treatment in June with faslodex. I will start taking Ibrance next week along with the faslodex. We are doing scans Wednesday so anxious to see status. I have mets to bone and also in both lungs. Very happy with Anschutz and Dr Kabos so far. We are about 4 hours from Denver and I have twin sister that lives in Denver so have a place to stay when I am out there. If I can be of any help to you please just let me know

[Aire in reply to Lmrh1959]

Hi Lmrh1959,

Firstly, thank you so much for the reference of Dr. Kabos at Anschutz. I have been researching like crazy the last couple of days and have found several other specialists who may work.

I have mets from lung in 2014 in shoulder discovered in Jan. 2017. I'm still amazed at this? After three weeks of radiation, then infusions of Zometa and Keytruda (sp) every three weeks. I am anxious for a second opinion of this treatment.

I hope your scan results will come out wonderful. You are a very special lady.

Thank you again for taking the time to answer my plea for help.

[PJBinMI in reply to Aire]

HI, I'm a long term metster--13 1/2 years since mets diagnosis and when I read your note, I wanted to let you know that the friend-with-mets that I've met face to face who had lung mets lived with them for 13 years after diagnosis. We have the same onc and both the onc and I really believe she would have lived longer but about a year before she died, her 30 ish year old daughter died suddenly and unexpectedly from an aneurysm. It totally blind sided her and left her whole family emotional wrecks, as I am sure you can imagine. But I wanted to tell you about her as it was such a hopeful story of living long and well with lung mets! She did not ever look sick, until her daughter died, and had been doing the bookkeeping for her husband's business, baby sitting her little grandson a couple of days a week and entertaining, sailing and the kinds of things grandma's do! She was one of the women who really gave me alot of hope that I would live for years! And I have and I think of her often.

[sabal in reply to Lmrh1959]

Are you having any negative side effects from the iBrance???

[Aire]

Hi Sabal, I think you may have me confused with someone else. I am not on IBrance, nor have I ever been. Sorry