I started getting RLS at the age of 8 but of course was not aware of what it was in those days, I am now 63. It was joked that I must have 'Saint Vitus Dance' or I had 'Growing Pains'. I hated the heat and loved the snow/cold surfaces which was the only real relief. It was only four years ago that I found out about RLS and unofficially tried a friends 'Tramadol' tablets, luckily they worked immediately - the 'pain' and 'jerking' I had put up with for 50 years was gone. I also had it in both arms along with both legs which was physically difficult to deal with - rubbing/massaging both legs with both hands can be done but to rub/massage both arms at the same time is impossible.
We need a name that better describes the areas of the body which are/can be affected by RLS. We have enough feedback from Members that legs, feet, hands and arms can all be the limbs affected yet we only specify 'legs'. It is very important that a unified truthful description is formulated and used exclusively when reporting or referring to this health condition on the internet, in speach and in print.
I think the name should be officially changed to 'Restless Limbs Syndrome' or better still 'Restless Limbs Complex' or 'Restless Limbs Malady'.
Whether it is Syndrome, Complex, Malady or any other describing word at the end is very much up to discussion but I would favour 'Malady'.
Noun: malady ma-lu-dee
1. Any unwholesome or desperate condition "what maladies afflict our bodies?"
2. Impairment of normal physiological function affecting part or all of an organism
Upon changing the name it would be quite ethical to send details of the change along with a vivid updated description of the symptoms to Newsdesks, Radio and TV Stations, Newspapers, Magazines, Health depts, Universities, Teaching Hospitals, Doctors/Nursing Associations and any other interested parties throughout the UK. Much needed publicity.
Members views would be welcome. Barried