My name is Rosie and I am an administrator for this forum and Vice Chair of RLS UK. Unfortunately it has been necessary to delete some comments today which were not in the spirit of the forum and also named individuals. On the message screen it asks that people posting comments:
•Be true and correct to the best of your knowledge and experience
•Be in the spirit of the site: to share, inform and support
Please don't do this:
•Name and shame identifiable individuals
•Be abusive, malicious or deliberately misleading
The comments made were not helpful to people suffering with RLS. We all find life more difficult than those not suffering with the condition and we need to be as kind, helpful, supportive and tolerant of each other as possible. Of course we sometimes annoy each other but we have over 700 members registered with this site and it is therefore inappropriate for them to read what should be kept between a handful of individuals. In the case of this forum, the old adage is true – if you can’t say anything nice, better to say nothing at all! Apart from causing offence, in extreme cases, comments about individuals could potentially result in people being sued.
For the record, the administrators of this site and the 6 trustees of RLS UK are volunteers. Most of us have jobs or families or both and it is sometimes quite tough to also fit in the RLS work too. We do not want to intervene in the forum more than absolutely necessary and frankly, we do not have the time. However, we do this because we feel strongly about raising awareness about RLS amongst the medical profession and the general public. We also want to do whatever we can to help and support those suffering with the condition (we are also sufferers ourselves). We are a small charity and we have a long way to go. The HealthUnlocked forum has been a huge success and a good source of information and support to many sufferers. We want to do all we can to ensure that it stays that way. Therefore can we ask that everyone respects the rules of this site and that messages sent to individuals are not likely to cause offence. If you have any issues which are not relevant to the wider membership, please bring them to the attention of the administrators in the first instance, rather than posting them as questions or blogs.
RLS UK (rls-uk.org), would be very grateful to hear from anyone who would be willing to help our charity, in whatever way you feel able. Many thanks, Rosie
vicechair@rls-uk.org
