Ropinerole

Dr had put me on Pregabalin/Lyrica 200mg twice dailly, but RLS still havoc and being in a wheelchair [MS] doesnt allow me to walk it off [if you can] Dr has added about subject drug .25mg 3 x a day first week, 2nd week .50mg etc up to 2mg. Hope this makes sense, request any comments +/- thanks in advance

[nightdancer]

I am guessing that you are titrating UP on the Ropinerole? People with MS do tend to develop RLS

with a greater frequency. If those meds do not do it for you, there are other meds to try. Being in a wheelchair is everyone's nightmare when it comes to RLS. I am so sorry! Can I ask what neds you may be on for MS? some of them can actually make RLS worse...........like the antispasmodic class of drugs, whihc makes no sense except that the MS meds work on the muscles, and RLS is not muscular at all even if it feels like it.

[Hidden]

thanks for replying - other meds - as my earlier message pregabalin/lyrica - getting off baclofen thats was 10mg 3 x a day - plus clonazepam as night 2 x .5mg and thats it - no supplements, minerals vitamin d3 during the winter

[Mishmashed]

I take Ropinerole - or did - I am slowly coming off it to use the Neupro patch. I used to take 2mg twice a day but augmentation set in yet again and I now have to change. I found that the Ropinerole is as heavy going as the other medication prescribed, and taken at the same time they used to make me sick. They were very effective when I first started to take them but we are all different with our tolerances to these medicines.

[Hidden in reply to Mishmashed]

thanks your reply, 'neuro patch' tell me more..?

[Mishmashed in reply to Hidden]

I found out about the patch from this site. So I meandered down to the doctor who had never heard of it but he did look it up on his trusty computer and told me it was licensed and that I could have it...Yay!!..and on repeat. I take 1mg so far but I am still in the process of switching over.

I have take Gabapentin, Pregabalin, Pramipexole and Ropinerole previous to this so I hope (fingers crossed and touch wood) that it works for me. I like that I don't have to remember when to take my tablets, or how many to take...oh..and that I rattle less when I walk.

[agneta]

Ihave been taking Ropinerole for 5 years its been a godsend as i was so exausted through lack of sleep ,i thought of giving up my job,i have had RLS for 15 years pills dont work with alchol ,i have to take pills before a long flight or long car journey ,i cant describe the sensation of my legs wanting to move ,when i am tired and want to relax ,the only way to stop the uncomfortable sensation is to walk around ,or at leaste stand and move my legs ,sometimes the pills dont work ,and i am up all night ,there dosent seem to be a long term solution to this problem at leaste the pills work most of the time ,i have had to increase them. and i think i may have to again ,The only people who understand how TIRING ,FRUSTRATING AND UNCOMFORTABLE RLS is ,are other sufferers as its difficult to describe to others.If anyone out there has a better solution then taking ropinerole i would be glad to hear from them

[Hidden in reply to agneta]

appreciate all what you say, early days on the ropinerole [first week .25 3 x a day] fingers x

[Hidden]

Hi agneta, if you keep increasing the Ropinerole, it will ony work again for a while then it will stop working as you are finding out. The highest dose for that med. is 4mg.

There are other medications for RLS. Pramipexole and the Neupro Patch are the first type that most doctors try first aswell as the Ropinerole.

So, you may need to change meds to get better relief.