Ferritin Levels: Question for Joolsg... - Restless Legs Syn...

Restless Legs Syndrome

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Ferritin Levels

Dires profile image
5 Replies

Question for Joolsg please.

I’m seeing my GP next week to discuss various health issues my RLS included.

To be well prepared, are you able to point me in the direction of research/evidence regarding ferritin levels of over 200ug/L or is it anecdotal?

Thank you 🙏

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Dires
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5 Replies
Madlegs1 profile image
Madlegs1

Not to be getting your hopes up too soon.

But high ferritin levels only help about 50% of sufferers .

Check out triggers first.

Dires profile image
Dires in reply toMadlegs1

I appreciate that, but I might be one of the 50%🤞

I have checked out triggers. Many thanks though.

SueJohnson profile image
SueJohnson

If serum ferritin values could be increased to more than 200 μg/l in RLS patients, iron concentrations in the brain might reach levels seen in normal controls

sciencedirect.com/science/a...

Sorry for deleting former post saying the same thing but I decided to check the article after posting and at first couldn't find where it said this but after deleting the post and checking further I found it.

Also this is not research but Dr Buchfuhrer in response to Graham3196: "some patients need to get their ferritin levels above 200-300 in order to drive enough iron into the brain"

Dires profile image
Dires in reply toSueJohnson

Thank you Sue as always

Joolsg profile image
Joolsg

youtu.be/G62qr1S5g_M?si=vdp... Berkowski, a top expert talks about RLS patients benefiting from higher levels of serum ferritin.

sciencedirect.com/science/a...

This research paper above shows that patients with serum ferritin of less than 300ųg/L benefit from iron infusions.

So show the research paper to your doctor AND the iron therapy page from RLS-UK website . It's under 'useful resources'.

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