Update after Pramipexole

[Maymount]

Just to summarise my story as I have been in touch before. Was on 6 x .008 prami and increasing if my GP had her way. Thanks to this forum I gradually(since May) reduced prami to 2 a night with the help of tramadol. After my hols 4 weeks ago I decided to go cold turkey and quit prami. I had a script for pregabalin. I took 2 tramadol(50mg each) at 5oclock and 1 pregabalin(50mg) at 9oc. Praised be to the Lord its working like a dream. Side affects slight fatigue if I sit during day but I'm fairly active so it's manageable. In time hoping to test reducing tramadol or pregabalin or both. For now not going to rock the boat. Maybe I'm one of the lucky people. Hope this might be of some help to somebody. Thanks to all for sharing and helping.Eithne

[SueJohnson]

That's great! So pleased for you.

[Madlegs1]

Grand girl ye are ,Eithne!👍

Powerful and impressive.!☘️☘️☘️☘️☘️💚

Respect.🍀

[Maymount in reply to Madlegs1]

Go raibh mile maith agait! Oiche mhaith! 🙂

[Joolsg]

Brilliant news. I'm so pleased for you!

[Jumpey]

Brilliant. Well done.

[Munroist]

That’s brilliant. Thank you for posting, it’s really good to hear about when it goes well and gives hope to others. That’s a fairly low dose of pregabalin as well which is also great.

[tarrynws]

thanks for this. I am down to just under 2 pramipexole. Need to make a move now and be brave like you were

[Maymount in reply to tarrynws]

Good luck with it! I find tramadol fantastic in controlling rls. I know I'm not going to go mad(at this hr of my life!!) and I will give anything a go initially. In fact I might try taking 2 more tramadol at 9 instead of pregabalin soon n see how that goes. Prefer to be on just one med if possible. I will post it when I do. Good luck.

[Purpleyam in reply to Maymount]

Good for you! I'm curious, as my pharmacy is very strict about dispensing my Tramadol prescription to the exact day that I would run out. I was only allowed to take 50mg per night. How are you able to experiment with doubling up your dose of Tramadol? Thx

[Carolinetidy]

that’s such good news and a very low dose of pregabalin. Interesting that you take tramadol so early in the evening but if that works for you that’s great

[Plien47]

i h ook pregabaline een tijd genomen,ook weer mee gestopt.pami helpt ook niet allemaar bijwerking,jeuk en overdag lamlendig,nu neem ik niks meer gaat iets beter 2, s,nachts eruit.Tp al 56jaar

t

[SueJohnson in reply to Plien47]

It would be helpful if you could post in english please so we can all understand what you said.

[LotteM in reply to Plien47]

Hoi Plien, als je een keer tegen iemand aan wilt praten en advies wil over hoe de rls te bespreken met je huisarts, kijk op de website van Stichting Restless Legs stichting-restless-legs.nl/.

Onderaan op de pagina staat een nummer dat je kunt bellen (doordeweeks ‘s avonds tussen 19u en 20u). We hebben ook een lijst van neurologen die goed op de hoogte zijn van RLS en de behandeling ervan. Het kan echt beter dan wat je nu beschrijft en eerder beschreef.

[Arizonajan]

yes. I have been using both pramiprexole low dose 1/2 of .25 and 1 50 mg tab Tramadol at nite with excellent results. I have run the gamet, neurologists, movement disorder clinic at the Mayo, iron infusions, back injections with little relief except for the pram and Tramadol.

Drs don’t argue with me and r happy I have found something that works after 45 years.

no issue with the Tramadol rx at all

[Madlegs1]

Not in my house !😎

[Ulstergal]

Don't be an asshole!!

[MrCrow in reply to Ulstergal]

Lol, I actually don't even know what it means. Some Irish players online keep saying it when they're about to win.

[Ulstergal in reply to MrCrow]

It means up the IRA aka supporting the terrorists who bombed and murdered innocent men, women and children in NI and Britain.

[amrob123 in reply to MrCrow]

It's a very inflammatory statement and probably best only used by those with an understanding of its cultural and historical significance.

[MrCrow in reply to amrob123]

😳

[Mustgonow]

Hi, I am an 81 year old woman who suffers slight RLS which has been kept under control with Pramipexole over about 10 years now and I am up to 5 a day. I would be very interested to hear how you reduced from 6 per day by use Tramadol. Did you reduce by one tablet per day, i.e. cutting down to 5 a day plus a Tramadol then 4, etc. etc. If so how long did you stay on 5 before moving down to 4. Many thanks for any help you can give. Irene🙂

[Maymount in reply to Mustgonow]

Firstly why are getting off Prami? Have u augmentation? Or have u been upping prami over the years to 5 a day? Thanks to Joolgs n Sue I will tell u how I reduced. I asked my pharmacist to half my Prami(R) tabs...088. Since May last I reduced my intake by half a tab every 2/3 weeks over the Summer by taking 1 tramadol(50mg) around 5/6oc each eve. Took the Prami around 9oc. It was a tedious task but had to be done. When I got down to 2 x(.088) after a hol I had enough of weaning off n went cold turkey. It was exactly 4 weeks ago. I took 2 tramadol(50mg) around 5/6oc and 1 pregabalin(50mg) at 9oc. Touch wood alls going well. Thrilled to be off Prami. Will keep this up for the mo but in time maybe reduce tramadol n up pregabalin. Will hope for advice from Joolgs n Sue. Good luck.

[Mustgonow in reply to Maymount]

Many thanks indeed for your very helpful reply. I haven't augmented yet but am thinking ahead of it possibly happening. As you suggest, I will check with my Doctor before making any changes. Best regards.

[Myteamo]

On my 3rd night taking pregabalin 50mg, had no good effect yet. Due to start taking 2tablets one in the morning and one in the evening in 4 day time. Still awake 3/4 hours with RLS. Have been off Ropinirole for 9 weeks. I’m so afraid I will get similar side effects from pregabalin as from ropinirole. . Anyone got any advice or tips.