Low dose Ropinorol : I thought that... - Restless Legs Syn...

Restless Legs Syndrome

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Low dose Ropinorol

Burrelle profile image
8 Replies

I thought that very recently I saw a post about supplementing gabapentin with a low dose of Ropinorol. I am currently taking 1500 milligrams of gabapentin and I have breakthroughs about 2 out of 3 nights. I don’t want to increase the gabapentin because of balance issues. Earlier this year, my doctor suggested adding low dose time-released Ropinorol which I had been hesitant to try. Is that a safe way to go? If so, what amount is considered low dose? Would Horizant work better than gabapentin using an equivalent dosage?

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Burrelle profile image
Burrelle
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8 Replies
Joolsg profile image
Joolsg

Dopamine Agonists are no longer prescribed by experts because they all cause severe worsening of RLS.Are you in the UK?

Gabapentin can cause dizziness. How and when do you take it?

Burrelle profile image
Burrelle in reply to Joolsg

I am in the United States. I have CMT (Charcot Marie-Tooth) which is where the balance issues start from. I take 300 mg gabapentin at 5 PM, 600 at 7 PM, and 600 at 9 PM. I know Ropinorol is an agonist but I thought I saw on this forum (by Sue maybe?) that a low dose would not cause augmentation. Or maybe I dreamed it!

Joolsg profile image
Joolsg in reply to Burrelle

I see Sue has replied.

SueJohnson profile image
SueJohnson

You can add ropinirole two times a week without danger of augmentation but no more often. As far as Horizant, you don't have where you live on your profile. It is not available in the UK. It is available in the US but is expensive although there is a way to get it for about $165 for 3 months. Insurance doesn't usually cover it. If you decide to go that route I can tell you how, Since Horizant is basically gabapentin in an extended release form. It can cause balance problems too but might or might not to the same extent.

A low dose would be .25 mg

Burrelle profile image
Burrelle in reply to SueJohnson

So glad to know that I wasn’t dreaming that! Thanks Jools and Sue for your always knowledgeable and helpful advice!

I looked again at my profile and I see that I have the US listed.

SueJohnson profile image
SueJohnson in reply to Burrelle

Strange because I just looked and I don't see it.

Burrelle profile image
Burrelle in reply to SueJohnson

The “hide” buttons were checked.😉 Should be good now!

SueJohnson profile image
SueJohnson

Unless you have RLS during the day there is no need for a timed release ropinirole.

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