Drs need to stop prescribing dopamine drugs to people with RLS

[Kiram]

reading so much about Dr’s still prescribing dopamine agonists really makes me mad , I think the solution to this is ….. every Dr who prescribes these awful drugs should be tied down so they can’t move , while they get their feet tickled all night !!!! See how well they cope …. Just my thoughts 🤣🤣🤣🤣

[Madlegs1]

I hear you! 👍💚

[Joolsg]

👏👏👏👏I absolutely agree.

RLS-UK is campaigning to get dopamine agonists relegated to last position.

I'm sick of GPs knowing zero about RLS or dopamine agonists.

That's why I encourage anyone affected by ICD to sue their doctors. I know compensation comes out of our taxes, but money talks.

There are now hundreds of successful legal cases against UK doctors. They'll soon join the dots.

[SueJohnson]

My laugh of the day "get their feet tickled all night"😀

[Kakally]

The best suggestion ever made…..🤣

[Restylegs]

Works for me been on sifrol a few yrs now , we all react differently to it i suppose, my dr has been trying me on all sorts of stuff sometimes I feel like a guinea pig and sifrol and exercise are the only thing that does it😀

[Greenleaf360 in reply to Restylegs]

Max dose for sifrol is 0.5mg. Sifrol has a powerful and counterintuitive flaw called augmentation. A tiny dose will give excellent relief from RLS. After a time rls symptoms get worse. Doctor increases the dose. Repeat. Repest. The rls is not getting worse. The ropi is aggravating the rls.

[Restylegs in reply to Greenleaf360]

Yes I had augmentation about 4mths ago and it wasn't nice , my cure but not for everyone was to taper my dose and then came off for a couple of days it was quite bad I was cycling round my cycle path at 2am to burn my legs out for relief. Then started back on again, bingo that reset everything for a couple of yrs I hope now I sleep like a baby , I definitely find any leg exercises that give my legs a burn work wonders

[Kiram in reply to Restylegs]

I’m glad it’s working, and I do hope it continues to carry on working for many years yet

[rmbroadh]

Some of us have no other choice due to other comobidites. Gabapentines, opiods are not viable options.

Keeping the dosage as low as possible is all one can do.

I find it difficult to read all the horrible things I have to look forward to if it even happens in my life time.

Even Mayo says it may be given if there is no other choice, closely monitored.

[Kiram in reply to rmbroadh]

I’m glad it works for you , and hope it continues to do so , my GP prescribed as first defence instead of trying other things , augmentation has made my RLS so much worse , and withdrawal was. Just awful, i really do hope you don’t experience this x

[rmbroadh]

What mg were you on and for how long before you started having issues? I'm taking .9 mg a night. Been about a year.

[Kiram]

I was only ever on low dose or pramipexole .88mg , I was taking them for 9 years , I can’t pin point when the RLS got worse or when the shopping started ,it was a gradual thing , when I did realise the RLS was starting earlier in day and much more intense I spoke to GP and he wanted to increase the meds , I did but I couldn’t walk up stairs at night , that’s when I started my research and realised I was augmenting , I had to withdraw on my own has GP didn’t see there was an issue , and Iv had sever Gp’s who has tried encouraging me to take them again since , even tho I have told them I was shopping online more than usual

[Oregonmike]

that’s about as close as one could get to RLS.