How to live with RLS

[Histology2020]

Update: Back on the Rotigotine Patch. RLS is getting worse, (if that is possible?) It has taken and continues to take so much from me. It has beaten me. GP/Specialist cant/won't help me either. There is just no hope for us RLS sufferers. I am owed about 5yrs sleep, most people dream of winning the lottery, i just want to be able to sit down for longer than 5 mins or cuddle up with my husband and watch a 2hr movie. Sleep in my bed would be a bonus. Sounds silly but oh so true. If any one out there finds a cure PLEASE let me know.

[Caperry]

it is horrible, im on the neupro patch 3mg lots of irritation from patch and gabapentin, last night was horrible lots of restless leg and walking, wish there was a cure doctors just give more drugs some nights I sleep but going to bed is a dread instead of pleasure, sorry you are having so much trouble I cant see light at end of tunnel!!

[Histology2020 in reply to Caperry]

Thanks for your reply. X

[hungryorca98]

i know how u feel fir the most part i also cant sleep and sit but i read how they wont or refuse to help but i have also talked to a doctor it sucks and it only gets worse every day and cause u are older then i am i cant imagine what pain it is

[Histology2020 in reply to hungryorca98]

Thanks for your reply. X

[Felicity21]

Hi Histology, I combine my DA (Mirapex) with 2 co-dydramol which you could get on prescription from your GP. To prevent constipation I have some soft prunes with my breakfast and I take one high strength Senokot before bed. I am also on Clonazepam which helps with sleeping. My nights are fine now. Do also check your ferritin level because RLS is caused by a lack of iron in the brain and be aware of the usual triggers. Good luck.

[Baoba]

Sorry for your suffering.I know very well that it might make your nights hell.I'm on rotigotina, Neupro 4 , plus gabapentina 400 , plus 4 drops of rivotril. It's working, for the moment .But if I don't follow de exact hour, or if i take any medication like predsin, then it starts all overDon't forget to make a lot or exercises, daily. Keep your legs and feet warm. In extreme, a very hot shower or get into hot tub. socks for airplane long flighs, helps .sex also helps.

[Histology2020]

Thank you 🙂

[Joolsg]

There’s still no cure but it sounds like you’re suffering RLS in the daytime- which would indicate augmentation.

Has your GP warned you about augmentation?