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Restless Legs Syndrome

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Help needed

Bigrob1 profile image
10 Replies

Good day you wonderful lot I was wondering if anyone takes anything that can help with restless legs as I can't get in to the doctors due to work commitments and not being in my own town in the day. But have a 5 hour flight coming up in the next 2 weeks and am dreading it as I no my legs will kick off. All the helps much appreciated

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Bigrob1 profile image
Bigrob1
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10 Replies
SueJohnson profile image
SueJohnson

Book your flight for early in the day and book an aisle seat so you can get up and walk around and preferably an emergency exit or bulkhead. Pack activities that serve as distractions. If you belong to the Restless Legs Syndrome Foundation, download the Restless Legs Syndrome Special Accommodations Card to give to the flight attendant. You can join for $40 even if you don't live in the US and it is well worth it. RLS-UK also has a medical alert card available to members for things like flights. Otherwise be sure to talk to the flight attendant and explain that you will be walking a lot.

You really do need some medicine to help out. Just a couple of pills of ropinirole or pramipexole for each flight would solve your RLS. I'm not from the UK but is there any way you can go to the emergency room or a clinic or whatever to get them? Or if you have a doctor in your home city can you phone him/her to ask for it and have them phone it in to a pharmacy where you are currently.

What part of the UK are you in?

ChrisColumbus profile image
ChrisColumbus

You've presumably not had time to have a ferritin test or to wean off omeprazole and to try Gaviscon Advance or Double Action?

Even so, if might be worth popping into a health shop or chemist and buying some Gentle Iron (ferrous bisglycinate) if you haven't already done so. While packaging may say not to take more than 1 tablet or capsule a day, take 50-75 mg in combination with 100 to 200 mg of vitamin C or a glass of orange juice once every second day. Iron is best absorbed on an empty stomach. Some find that this gives immediate relief from RLS symptoms - it depends what's causing them.

Bigrob1 profile image
Bigrob1 in reply to ChrisColumbus

Hi Chris only take the omeprazole if I realy need to now days a box of 30 can last me months I changed my dies cut out larger and greasy foods. I am going to call my doctors tomorrow and will just need to take a day off if need be. But will try the Iron and vitamin c

ChrisColumbus profile image
ChrisColumbus

Further to Sue's Post, if you're not as yet a member of RLS-UK you can purchase their medical alert card (which you'd receive in the membership pack if you joined):

rls-uk.org/product-page/rls...

Beyond this: I found that my RLS was linked to a sensitivity to too much sugar, too much caffeine (although some find that caffeine helps them), and too many diet drinks (aspartame). You may not share any of these sensitivities but it may be worth experimenting with cutting back, particularly in the evenings and possibly in the lead-up to your flight. May not help you at all, but nothing ventured...!

50568789 profile image
50568789

All the advice given so far is right and proper. You could consider alternative or additional methods. I no longer take any meds specifically for RLS as I have been able to manage it using a Therapulse. If I feel RLS coming on I strap the T to a leg , turn it on for 5 or 10 minutes and the RLS subsides. OK, it doesn't do it for everyone, but at £40 it's been a marvellous investment for me. Ideal to pop in your onboard bag and use in flight as and when?

Bantamdyno profile image
Bantamdyno in reply to 50568789

Do you find the trigger point with theTherapuls,

50568789 profile image
50568789 in reply to Bantamdyno

What do you mean?

Nikos64 profile image
Nikos64

If you have RLS never take any over the counter motion sickness tablets on a flight!

Long time ago, on a 6h business flight from Chicago to London I took one tablet of diphenhydramine and I had the most miserable flight of my life. I ended up getting drunk to deal with the intense restlessness which gave me some temporary relief, but I ended up paying for it dearly in the form of intense RLS when l landed.

Antihistamines and alcohol are terrible for RLS !

Jumpey profile image
Jumpey

You could try buying cocodamol which has a small amount of codeine in it. It may help.

kmc12 profile image
kmc12

Hello there - a few months ago a friend suggested CBD oil capsules for my long standing intense RLS. . Gabapentin did nothing for me . I take 16mg it on a bad day 22mg about 9.30 pm and it has worked for me .😁. I do buy them myself but they are worth every penny !

While I was taking opioids for pain a while back I didn't have one twinge for the entire time I was taking them so that could be worth a try from your doctor as well 👍. Good luck

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