The rls

[Cataanddogs]

Does anyone have this in other parts of their body I'm sure I have it in my arms the Dr said I can't get it in my arms.

[Joolsg]

RLS can affect other body parts. Some people who have never taken meds mention it.However, the most common reason is the drugs prescribed for RLS. Ropinirole, Pramipexole and the Neupro Patch cause RLS to worsen and move to the arms and other body parts.

Are you on any of these drugs? What other meds are you taking?

[Cataanddogs in reply to Joolsg]

Yes I'm on ropinirole amongst many other tablets.

[Joolsg in reply to Cataanddogs]

Only solution is to get off Ropinirole. Reduce by 0.25mg every 2 weeks. Your RLS will continue to be severe until you stop taking dopamine agonists.

[SueJohnson]

You asked this question 8 months ago and were told yes you can get it in your arms. You were also given great advice then. healthunlocked.com/rlsuk/po....

[Cataanddogs in reply to SueJohnson]

Oh yes sorry but I can't get any help

[Madlegs1 in reply to Cataanddogs]

In the case of RLS, we have to help ourselves.

Most medical bods have very little knowledge about this problem - mainly because they have not been taught it in med school, and the official advice is mainly out of date.

You have had really good advice on this site.

You need to act on it.

Good luck.

[Joolsg in reply to Cataanddogs]

Doctors won't help you..as Madlegs says, we have to help ourselves.

I've just seen that you were given all this advice ages ago but haven't acted on it at all.

Your GP won't help as he knows zero. So follow the advice, and get off Ropinirole.

Most of the people advising you have been through withdrawal without help from doctors.

First, change GP surgery and find a better GP. Or ask your GP to look at RLS-UK website.

[bumblebee_tuna]

You can get it in other parts, I have it in my arms. It's very noticeable if my legs are confined (like driving).

[Fingerandus in reply to bumblebee_tuna]

hi yes i have it in my arms and torso it comes when i first take my pill then jumps for about 3/4 hr then settles sometimes it wakes me up when i drop off sat up .i worry cause it seems to make my heart jump its mostly left side

[67Waterman]

Your doctor is wrong. For years, whilst my RLS is mainly is my legs, it can also affect my arms and chest, or just arms, or just chest ... there seems to be no reason ....

[Jumpey]

I definitely sometimes get it in my arms.

[Bramble2000]

When mine is really bad I can feel it in my arms

[Danni54]

Like other's here, I get it in my arm's. Please try to follow any advice you get from people here. I , really, believe that we know more about our bodies than medic's do and advice from people who have been going through this hhell for year's is worth listening to. Good luck with your health. You have been through terrible times but there are so many people here who will help and support you.

[Mover43]

Restless arms syndrome: prevalence, impact, and management strategies

Elisabeth Ruppert1,2,3

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Abstract

This literature review focuses on restless arms syndrome (RAS), an upper limb variant of restless legs syndrome (RLS). RLS, also known as Willis-Ekbom disease, is a frequently occurring neurological disorder characterized by an irresistible urge to move the lower limbs often accompanied by unpleasant sensations in the legs, worsened at rest and in the evening, improved by movement. Extension of leg restlessness to the upper limbs is frequently reported in typical patients who had RLS only in the legs and usually occurs later in the course of RLS, restlessness remaining most invalidating in the lower limbs. In RAS, the arms are predominantly affected with little or no involvement of the legs. Cases of restless shoulders syndrome or periodic arm movements without arm restlessness were not considered. A total of 9 articles with 10 cases were included and analyzed for the adherence to the five essential diagnostic criteria of the International RLS Study Group (IRLSSG) classification, as well as for the additional supportive features. All of the reported cases were classified as having definite RAS. The clinical history and disease evolution of two previously reported patients were completed and updated. Overall, the clinical picture of RAS does not differ from that of RLS, except for the symptoms localization on the upper limbs. Underlying mechanisms of the spread of RLS to upper limb restlessness and of RAS remain unknown. Whether RAS is a phenotypic variant of RLS or a separate entity needs further investigations. RAS likely remains underdiagnosed and according to IRLSSG diagnostic criteria RAS should be considered when RLS-like symptoms are present in one or both arms, especially when they have a circadian pattern and are improved by movement and dopaminergic therapy. Clinicians should be aware of this rare condition, especially as treatment using dopaminergic agonists proves to be very

[Munroist]

if my legs are bad I will occasionally feel the urge to move in my arms as well, but my arms never feel twitchy on their own.

[Grammieof4]

I have it in my hands AND arms.