RLS: Never have found a medicine that... - Restless Legs Syn...

Restless Legs Syndrome

21,224 members14,893 posts

RLS

galeraper profile image
20 Replies

Never have found a medicine that helps everynight. Last night was a terrible night. My rls usually starts about this time everynight. (7:30) I can't sit and read, watch television, because my legs, and now my arms, won't quit moving. I have had this since my teens, and I am 71 now.

Written by
galeraper profile image
galeraper
To view profiles and participate in discussions please or .
20 Replies

My heart goes out to you.

I was just today, trying to explain to a Dr, (unsuccessfully) about RLS. The Drs know so little its an insult. I had my Iron tested again despite having had this blight my whole life and countless bad nights and good readings on Iron, but it makes the Drs happy to say they've checked it...again!

I'd love to say I'd found one drug that worked but through a mix of a variety I get more good nights than bad.

If you haven't come across it research Kratom, it was literally a life-saving drug for me as I was in an awful bad way.

Good luck.

march1044 profile image
march1044 in reply to

I want to second Raff's comment on Kratom. It has been a life-saving plant for me.

tolene profile image
tolene in reply to march1044

Is this Kratom Legal! I drive for a living! They do ramdom drug testing.

march1044 profile image
march1044 in reply to tolene

It's legal in most places, but has been outlawed in a few: Germany, Australia, Ireland and a few states and a few more countries. You can look it up on the internet.

galeraper profile image
galeraper in reply to

Thanks so much. Will talk to my Dr.

Altair profile image
Altair

I completely agree - - ! My situation is very similar. I have also had it since my teens - I am almost 69. For me, last night was, in fact, good. However, the previous night we went to a concert, and I had to spend the whole time walking around at the back by the door, completely ruining it.

If I am at home, I do find that laying on the floor on my stomach, and then waving my feet about in the air helps a lot. Difficult at a concert! (Or on a plane, train, bus, at the cinema theatre etc, etc!)

BR-OZ profile image
BR-OZ

What time is your last meal?

galeraper profile image
galeraper in reply to BR-OZ

Around 6

BR-OZ profile image
BR-OZ in reply to galeraper

Try having something light before sleep

m1946 profile image
m1946

Just wondering if you have tried one Tramadol 50mg capsule. It is now a controlled drug so you will have to convince your doctor to prescribe it!!

I also take one 50mg Ropinirole tablet and with this combination has resulted in very sound sleep!!.

I am also 70 and just hope that the above meds work forever!!!!!!!!

Beckonwood profile image
Beckonwood

I know absolutely what you are experiencing. I am 73 and have had rls since my early forties. I have had many a night where I couldn't sleep and have paced the floor. I often have found that rocking in a rocking chair has helped. Besides Horizant which have been on for about a month, I take Percocet which gives me the relief I need. I take a 5 mg. pill every night which I cut in half. You may need a stronger does, but the pain meds do help from what I hear from others. I would get your doctor to prescribe this for you. Good luck and God Bless

galeraper profile image
galeraper in reply to Beckonwood

Thank you so much. Does the horizant effect your memory?

Beckonwood profile image
Beckonwood in reply to galeraper

So far havent seen a problem. But then I am 73 and experiencing slight memory problems due to the aging process I feel.

Tease-ah profile image
Tease-ah

I have severe RLS, only medication that works for me is Pramipexole. I tried Tramadol and other painkillers but they have no effect on me. I take my Pramipexole (highest dose) 2 hours before bedtime (can not take them during the day as they give drowsiness). Ofcourse as Altair says certain things such as going to the cinema are things of the past as no way i can sit still for so long.

Pippins2 profile image
Pippins2 in reply to Tease-ah

Tease - ah I was wondering what dose of Pramipexole you are taking as the daily as the recommended daily dose has been lowered to .25mg or 0.088.

Tease-ah profile image
Tease-ah in reply to Pippins2

I am taking 5 tablets of 0,088mg, I am aware that the new recommended dose is lower but as long as the doctor has no alternative i stay on this dose. I finally have a normal life.

johannasuar profile image
johannasuar

Why don't you try taking your meds an hr before the RLS kicks in. I put myself on a schedule and at times forget I even have this problem. I take TRAMADOL which works wonders for me, my dosage is very low, I take one 50 mg tab at 5:30 pm and a second one at 11:30, that gives me plenty of time for the med to kick in before the RLS does. Good luck, the trick is to be a step ahead of the problem.

Jumpy2 profile image
Jumpy2

Indian tonic water has quinnene in it and it helps me for a while before I take ropinorole from doctors . a large glass with a squeeze of lemon if you don't like taste of tonic water. good luck.

funnyfennel profile image
funnyfennel

Nowadays, the amount of Quinine in tonic water is less than it used to be, but perhaps it does help you..? I agree with taking medication at the same time, early in the evening to catch the RLS before it starts. I take my Pramipexole and Targinact at 7pm and the at 9pm. I soon realise if I haven't taken it as the restlessness starts and its harder to combat.

revelion profile image
revelion

have you tried carming your self down like medtation it may help carm down your mid and body movmets.

You may also like...

rls

and my legs have been ok on meds up till now,but now i find myself overdosing on 4 extra a night...

RLS +

Although I started many years ago with RLS I now seem to have progressed to whole body jerks. It's...

Rls

I have been taking cideine 15 each night for rls but it doesn’t seem strong enough now after a few...

RLS

RLS Tramadol has completely stopped my RLS. It also keeps me from coughing all night...

RLS

mg which I am now on maximum, started well for a couple of nights, now up most nights from about...