withdrawal from Ropinerole

[Quinlan12]

My withdrawal symptoms when I stopped taking Ropinerole were hot flashes, sweats, anxiety, shaking, head pressure and brain fog. It is a month since I stopped and still have these symptoms, although they are not as bad. Anyone have these types of symptoms and if so, how long did they last. I took .25 mg for a week and a half for RLS and then stopped.

[SueJohnson]

Are you taking any other medicines or OTC supplements?

[Quinlan12 in reply to SueJohnson]

Am taking lot of other meds. Do you know other meds that would cause these symptoms?

[SueJohnson in reply to Quinlan12]

If youn list them I can possibly tell you.

[Hidden in reply to SueJohnson]

amlodapine, Tramadol, nortryptaline, lorazepam, xeralto, levothyroxine, ezetimibe and a cancer drug. I have not gotten off any of these, but the Tramadol and the ezetimine are the newest. I started them a couple of months or so ago.

[Hidden in reply to Hidden]

Quinlan 1 and 12 are the same person. I messed up.

[SueJohnson in reply to Hidden]

None of them would cause the symptoms you are experiencing. Any OTC supplements?

[Katyparis in reply to Hidden]

I wonder what ratio of mg you came down from and how fast you weaned off Ropinerole?

[Hidden in reply to Katyparis]

I took .25 mg for maybe two weeks and then stopped the Ropinerole. I was off of it for about2 week with the withdrawals and then took one pill because I hadn’t slept for several nights. Then I stopped again and have been dealing with the withdrawals since.

[Hidden in reply to SueJohnson]

I also recently started iron and magnesium after I got the symptoms

[SueJohnson in reply to Hidden]

Those are fine too. I am stumped.

[Hidden in reply to SueJohnson]

a week ago I took a Rapinerole. Within a half hour or so I had a hot flash. The next morning the symptoms were gone. I haven’t taken any more since and the symptoms came back in full force. Any ideas on who I could get help from with this?

[SueJohnson in reply to Hidden]

Ah, by taking one again, you probably started the withdrawal up again. You are apparently very sensitive to it since as Joolsg mentioned taking it for a week at that low a dose doesn't normally cause withdrawal symptoms. They can take several weeks or more to stop.

[Hidden in reply to SueJohnson]

thanks for trying to help.

[Hidden in reply to Hidden]

what do you think about Tramadol

[SueJohnson in reply to Hidden]

It works for many. The only problem is it is the only one that can cause augmentation.

[Hidden in reply to SueJohnson]

I’m already taking it. I just wondered if you think it could be causing these side effects. I take 25mg

[SueJohnson in reply to Hidden]

I guess it is possible.

[Joolsg]

That is unusual. A week on the lowest possible dose doesn't normally cause withdrawal symptoms. Have you had Covid recently? Were you on Pramipexole before Ropinirole?

[Quinlan12 in reply to Joolsg]

No Covid. No Pramipexole.

[Madlegs1 in reply to Quinlan12]

You are not suffering withdrawal from Ropinerol.

Whatever else you may be reacting to.

Please list all your medications- dose and length of time on it.

A lot of medicine can cause RLS ,or withdrawal symptoms when they are stopped.

Hope you feel better soon.

[Hidden in reply to Madlegs1]

the only drug I’ve stopped taking is Ropinerole.

[Hidden in reply to Hidden]

I somehow messed up my name. Quinlan 12 and 1 are the same person.

[Hidden]

levothyroxine 88mcg years on it. Amlodapine 5mg several years, nortryptaline 10 mg years on it. Lorazepam .5 mpg. Years on it. Tramadol 25 mg 4 months on it, Ezetimibe 10mg6 months on it. Xeralto 20 mg several years, cancer drug 8 years

[Madlegs1 in reply to Hidden]

Thanks. I'll let Sue take that on if she has time.👍

[Drls]

could you be augmenting or reacting to tramadol? That does lead to severe symptoms I think and you have only been on it 4 months - D

[Loopylegs in reply to Drls]

Tramadol made my rls symptoms worse too. Worked for about 5 weeks then rls came back worse than ever

[Hidden in reply to Drls]

I don’t believe I am augmenting. My iron was low so I am now taking iron and magnesium at night and wake up a couple of times with RLS. Walking and massaging my legs and feet help. I took the Tramadol for over 20 years and then about a year ago a doctor refused to refill my prescription and I was off Tramadol for about six months and another doctor decided it was ok for me to take the Tramadol.

[Artistickiwi]

How old are you?

[Hidden in reply to Artistickiwi]

80

[AmyMac5]

I see nortryptaline on your list - I thought that made RLS worse?

[Hidden in reply to AmyMac5]

I’ve been taking nortryptaline for over 20 years for chronic pain and never considered that it could be causing RLS.

[SueJohnson in reply to Hidden]

Dr Buchfuhrer who is an expert on RLS said it is fairly safe.

[SueJohnson in reply to AmyMac5]

Dr Buchfuhrer said it is fairly safe.

[AmyMac5 in reply to SueJohnson]

Thanks Sue, I'd always thought it was similar to amitriptyline in making RLS worse.

[Nightwalker6]

a week and a half! I was on a DA for 10 years & withdrew over 4 weeks ( too quickly I think now). Had night sweats, panic attacks, anxiety, agitation, suicidal ideation, listlessness, depression & sleeplessness as well as the exaggerated symptoms of RLS. Never want to go through that again.Not one clinician warned me or told me what to expect. Have recovered, no thanks to the medical profession or drug companies. This group was helpful as was the FB RLS group. I wish you well & hope your recovery is quicker than mine.

[Hidden in reply to Nightwalker6]

oh my gosh. That sounds terrible. Glad you made it through.

[Nightwalker999]

I reduced Ropinerol for over a year, it never stopped the horrible sensations even after 6 month’s finished. It was only Methadone that reduced the cramping and a little the crawling so that I could cope with everyday life. Methadone has given me some sort of life after 7-8 years. I’ve had 2 strokes the last one a year ago and numerous odd episodes unexplained, thinking I was a gonna. I’m with you, prayers sending to all of our fellow sufferers. God bless XXXX

[tagaxel]

The severity and length of time for the withdrawal symptoms are idiopathic. The best way to avoid the insane torture of withdrawing from the dopamine agonists is to use a compounding pharmacy and withdraw from the drugs using a micro taper which would take many months or even years depending on your dose.