Bad tonight: Sorry but I've jumped... - Restless Legs Syn...

Restless Legs Syndrome

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Bad tonight

Polesden11 profile image
7 Replies

Sorry but I've jumped in from the MSA page in the hope that someone is around oon here. Anyy bright ideas what might 🤔 hellp? Hot, 🥶 cold stretching, curling up.

Just lying looking at my 2 bottle of morphine and thinking 🤔 I should take take the lot..x just ignore me iii simply needed to speak to people who would understand.

Good night

Sue

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Polesden11 profile image
Polesden11
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7 Replies
Madlegs1 profile image
Madlegs1

The time difference doesn't help- I'm in Ireland. Joe has just left ,declaring he will run again. The energy of the man.He obviously does not have Restless legs!

I hope you got through to your morning ok.

Our thoughts are with you.

💚

Polesden11 profile image
Polesden11 in reply to Madlegs1

Thanks madness

SueJohnson profile image
SueJohnson

Check out the Mayo Clinic Updated Algorithm on RLS which will tell you everything you want to know including about its treatment and refer your doctor to it if needed as many doctors do not know much about RLS or are not uptodate on it atHttps://mayoclinicproceedings.org/a...

Improving your ferritin to 100 or more helps 60% of people with RLS and in some cases completely eliminates their symptoms. When you see your doctor ask for a full iron panel. Stop taking any iron supplements including multivitamins that have iron in them 48 hours before the test, fast after midnight and have your test in the morning. When you get the results, ask for your ferritin and transferrin saturation (TSAT) numbers. You want your transferrin saturation to be over 20% but less than 45% and your ferritin to be at least 100. If they are not, post them here and we can give you some advice.

Some things that can make RLS symptoms worse for some people are alcohol, nicotine, caffeine, sugar, carbs, foods high in sodium, foods that cause inflammation, ice cream, estrogen, dehydration, MSG, collagen supplements, electrolyte imbalance, melatonin, stress and vigorous exercise. Some things that help some people include caffeine, moderate exercise, weighted blankets, compression socks, elastic bandages, masturbation, magnesium glycinate, low oxalate diet, selenium, 5 minute shower alternating 20 seconds cold water with 10 seconds hot water finishing with hot water for another couple of minutes, hot baths, distractions, applying a topical magnesium lotion or spray, doing a magnesium salts soak, vitamins B1, B3, B6, B12, D3, K2, if deficient, and potassium and copper if deficient, massage including using a massage gun, using a standing desk, listening to music, meditation and yoga.

Many medicines and OTC supplements can make RLS worse. If you are taking any and you list them here, I can tell you if any make RLS symptoms worse and if so may be able to give you a safe substitute.

Polesden11 profile image
Polesden11 in reply to SueJohnson

Tkks for Yr rapid and full reply Suem I see my MSA consultant tomorrow and will run through it with him then.

Jumpey profile image
Jumpey

Sending love and hope you find some light and hope today. Sue J. Has posted great advice.Hope you can contact someone for support.x

Kakally profile image
Kakally

🤗❤️

Eryl profile image
Eryl

All the sympoms of MSA indicate to me that it's due to long term damage caused by refined foods such as sugar and white bread, basically all processed food including refined sed oils. It's doubtful wehether the damage can be reversed completely, but some of the symptoms can probably be reduced by avoiding processed food and taking various vitamins to help the body build new tissue.

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