Oh Lord

[Bjolly8]

My mom use to walk the floor at night due to RLS ( there wasnt a name for it back then) and now if i dont take 2 Ropinpole by 3 pm and a pramipexole before going to sleep ( not likely with insomnia) my left leg goes crazy. I had a clogged Aorta in my left leg. they put a stent in and now the RLS is worse. Whats a girl to do ?!?

[SueJohnson]

Have you had your ferritin checked?

[Zedz]

There’s a lot for a girl to do and this one took 10 yrs to figure it out! Check ferritin, b12, folic acid. I recommend getting off those meds and exploring gabapentin- life changing for me. Finally got sent to neurologist and hematologist who got everything to finally work together. I Get iron infusions and B12 and am much more controlled

[DicCarlson]

Ropinpole is nasty when it turns on you (augmentation)! Checking iron status is always a good first step.

[Joolsg]

First, why are you on Ropinirole AND Pramipexole? Both are dopamine agonists. Both cause increase (augmentation) of severity of RLS.Read the pinned post on augmentation.

Raise your ferritin above 100, preferably 200. Get off Ropinirole and Pramipexole slowly over a minimum period of 3 months.

Your RLS will worsen during withdrawal but will then be far less severe and you can start replacement meds like gabapentin/pregabalin or low dose opioids.