RLS

[waltraud1]

I take one Ropinerole a day .5mg I want to get of..It does not help my pain at all.

I can't sleep what can i do take it now 1 month?like to ween of

[SueJohnson]

Yes you should get off it. Unfortunately it won't be easy and you will suffer, but it will be well worth it in the long run. Your doctor should never have prescribed it as it is no longer the first line treatment for RLS. It is important that you check out the Mayo Clinic Updated Algorithm on RLS which will tell you everything you want to know including about its treatment and refer your doctor to it at

Https://mayoclinicproceedings.org/a...

Reduce by .25 mg every 2 weeks or so. You will have increased symptoms. You may need a low dose opioid temporarily to help out with the symptoms. Start gabapentin at least 3 weeks before you are off ropinirole since it takes at least 3 weeks to be effective, although it won't help much until you are off ropinirole for several weeks. Beginning dose is usually 300 mg gabapentin or 100 mg gabapentin if you are over the age of 65, although I was 79 and started with 300 mg with no problems. Once you are off ropinirole increase by 100 mg every few days until you find the dose that controls your symptoms. Take it 1-2 hours before bedtime. If you need more than 600 mg take the extra 4 hours before bedtime as it is not as well absorbed above 600 mg. If you need more than 1200 mg, take the extra 6 hours before bedtime. According to the Mayo Clinic Updated Algorithm on RLS: "Most RLS patients require 1200 to 1800 mg of gabapentin daily"

[waltraud1 in reply to SueJohnson]

I took Clonazapam 1 mg before and weened myself of that.So i only take 05 mg of Ropenalin..I start reducing to ever other day now.and then in halve ..But going to see what this Doctor i will see today has to say.I was told something was good but not leagal in my State.Is bad when you can't sleep. now sometimes it starts early in the Day when relaxing a little.Why??? nobody has answer from the Doctors all you hear is meds....

[SueJohnson in reply to waltraud1]

If it starts early in the day then you are already augmenting. The signs of augmentation are when you have to keep increasing your dose to get relief, or when your symptoms occur earlier in the day or when they move to other parts of our body (arms, trunk or face) or when the intensity of your symptoms worsen

[waltraud1 in reply to SueJohnson]

Thats what I am affraid of.....Tiered of meds....also Feet are bothering me a lot

[SueJohnson in reply to waltraud1]

Hang in there. It will get better eventually.

[marysway]

I just started .5 mg. I hate this medication. I really do. I'm looking for something else to take Anything to try. My doctor told me to know off the coffee because it will make it worse. Well I found out I actually sleep better when I drink a cup or less just before I go to bed. Weird. but it's working. I still take that pill but it's because I'm looking for something else to take. the side affects are awful. I went on some website health line or something and I have 21 of them from mild to severe. I've gain weight on it as well.

I was on .25 until last month. All of the other meds are as well the same with the side effects I believe.

I have been in car accidents and I actually have a lot of nerve damage in my legs from my lower back which we believe is what is causing my RLS (I had hesitated my back 3 years ago with the worst nerve damage yet) so there is no getting out of this. I've had it for years, with it progressively getting worse.

I'm looking forward to hearing everyone's stories and will post my soon.