RLS: I take Ropinirole tablets ,and... - Restless Legs Syn...

Restless Legs Syndrome

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RLS

kimpusan profile image
18 Replies

I take Ropinirole tablets ,and find that if i take 1 at 0900 -1 at 1300 1 at 1700 1 aT 2100

and usually I wake up about 0300 and take 1, thats 5 in 24 Hrs and I dont get that awful twitching .

Ive found that I need more Dopermine and this gives me it.

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kimpusan
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18 Replies
jumpylegs profile image
jumpylegs

You say you are taking 5 tablets, what dosage are these tablets, as the max dosage daily is 4mg.

kimpusan profile image
kimpusan in reply tojumpylegs

Hi jumpylegs thanks for your note on Rapinerole, the max dose is 5mg and my doctor said I can take up to 6 tablets a day but I manage to keep it to 5.

All the best

ffrwdwin profile image
ffrwdwin

I, too, take them through the day but stick to the 4mg daily dosage. If necessary I take one at midday, one at six o'clock and TWOat night. I have had at least 7 hours sleep most nights. I'm only praying it will work at least for a while. Good luch to everyone else. I have had this for 30 years and was almost beside myselg.

kimpusan profile image
kimpusan in reply toffrwdwin

HI ffrwdwin

thanks for your note on Rapinerole , I wish I could get 7hours sleep as the most I get is 3 then up to the toilet then another 2 or 3 hours ,I find I go to the toilet quite often through the day as well, perhaps its the other Tablets I take like the water tablets Furisamide. all the best

kimpusan

curlycock profile image
curlycock in reply toffrwdwin

A lot of you just talk about the twitching of legs. I also get that but not much. I do get severe pain that last for about 5/10 minutes and this can go on for 3/4 hours and sometimes has me in tears. So does anybody else suffer this much or have you done and found something that helps.

Depending on how long you have been on the ropinerole. You could be experiencing augementation, not that you need more dopamine. When was the last time you had to take more ropinerole. Augmentation, is when the medication doesnt work so well and you have to up the dose to get the same relief., then that works for a while then you have to up the dose again.

kimpusan profile image
kimpusan in reply to

I have been on Ropinerole for about 2 years I used to take 4 but over a period of time Iv'e found that in 24hours if I take 5 which controls it much better which i have used for the last 5 months with no problems to date (fingers crossed)

jumpylegs profile image
jumpylegs

I believe that Dr Buchfuhrer on his web site states that 4mg is the maximum. As this would not be sufficient to cover my 24/7 symptoms I supplement with tramadol and the occasional codeine.

kimpusan profile image
kimpusan in reply tojumpylegs

Hi jumpylegs thanks for the comment Iv'e not heard of any supplements that replace the shortage of Dopermine in the brain as I understand thats where it controls the need to stop the twitching

jumpylegs profile image
jumpylegs in reply tokimpusan

When I say I supplement with tramadol and codeine, I mean that I take them as well as the ropinerole. Tramadol and codeine are lower end opiates and opiates are excellent for controlling rls symptoms.

kimpusan profile image
kimpusan in reply tojumpylegs

I will look into those Opiates you mention, and thanks for the information.

Chris12 profile image
Chris12 in reply tokimpusan

Try Vitalcalm it worked for me stopped my RLS from first day I took it,it increases the dopamine levels.just search Vitalcalm hope this helps

curlycock profile image
curlycock in reply toChris12

I am trying to find a seller of these but nobody seems to have any and it seems the company has gone bust. So where can I buy these.

curlycock profile image
curlycock in reply toChris12

Where can I but Vitalcalm as nobody seems to have any in stock.

Tiredparent profile image
TiredparentRestless Leg Syndrome in reply tocurlycock

Just a word of caution, Vitacalm has been discussed on the forum previously and it is generally thought that it is of little or no benefit. People have also had little luck establishing what is in the product and Vitacalm have some quite aggressive selling techniques which have also annoyed people!

curlycock profile image
curlycock in reply toTiredparent

Thank you for that information.

harecatcher profile image
harecatcher

I take 3mg on an evening - tried spacing it over the day in 1mg intervals but it sends me to sleep - I wouldn't be able to work

Do others taking it throughout the day get drowsiness?

kimpusan profile image
kimpusan

Hi harecatcher , thanks for the comment, I'm thinking of trying take my ropinerole in the evening as I get drowsy during the day. Let you know when Iv'e tried it.

Cheers kimpusan.

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