I look out of the bedroom window and the street is in darkness except mine
The insomniac rules the dark world
I’m tired,I’m exhausted I’ve read I’ve done the crossword I’ve cleaned the house but the left leg has a mind of it’s own tonight it jumps it aches it crawls and nothing stops it
I’ve tried all my usual defence the meds the creams the massage but not to night my artillery has failed and my defence is wide open insomnia has won yet again
Is there any more my network of spies can offer?
Written by
Hoochybaby
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Got any potassium tabs or iron tabs? If not you got an ottoman? One woman on here would fall asleep with her upper on the ottoman and her knees on the floor with knee pads. Also, sometimes the TV provides enough distraction to fall asleep. The night is young. There is plenty of time to get some sleep.
I reduced my ropinirole by 0.25mg over 2 weeks ago and the past week especially has been horrendous! It's exhausting and relentless so I can sympathise!
Try laying flat face down on the floor with a cushion under your abdomen/pelvis area.
I have horrendous creeping crawling burrowing sensations in my lower back, abdomen and right leg. It is relentless and distressing but this gives some relief!
Worth a try.
Hugs 🤗
Sympathy from me too. Have also tried everything & mine is still on the go now at 7am. It is SO uncomfortable.Am bathed & dressed & on the sofa/pacing around hoping will get some catch up sleep as the morning goes on.
I was the same last night I listened to this app 3 times and did get a few hours sleep. Try this App sleep well and relax. The one I listen to has a sleep ending. There are a couple that are free on the App.
Just type Relax & Sleep Well Hypnosis in google snd you can download the App. Hope it helps. I also keep my favourite songs on my phone and sing along 😂. Also keep some sweets by the bed x
I feel for you. It is my right leg below the knee which is the bane of my life. I have recently added magnesium to my weapons against the RLS. It has made a vast difference. I still have to take the Pramipexole before bed but the magnesium ( plenty of it is needed) does the job during tghe day and evening. I am now averaging just under 7 hours sleep per night which is nearly double what it was before and no RLS during the day.
Hi Hoochybaby so sorry to hear of your suffering. I too suffer from RLS and have done for several years. I find that watching a movie on my phone seems to take my mind off the symptoms or just making myself so tired that I just nod off 🥴
I know we all suffer to different degrees and different ways so hey ho it’s just a suggestion
I do hope you get some relief it’s not a pleasant illness
Hi.when I read your post,I thought that I had written it during my “foggy time”I seem to get take ca.take lots of those!The night is soooo long,esp.when all around you are snoringWe have recently got a reclining armchair ,so either one of us goes on it
It’s taken me ages to write this,due to daft mistakes after another night of pacing….you are not alone.xxxxxxxtake care.
I do apologise for the tone of my last reply to you. I have Aspergers and sometimes words come out without sufficient thought.
You always have my sympathy and I hope you find it helpful to get the supprt you usually get on this site.
Sad to say, it doesn't seem as if you'll ever get the 100% relief you'd like from medication. It may be then that you also have to consider if there are things that can help you cope with your RLS beyond simply treating it.
Hi manerva no need to apologise I know that in your heart you only mean to help people it’s just that it comes over different sometimes Maybe your Aspergers helps you with the very detailed and informative information you give to help
Luckily my Aspergers is relatively mild, but has caused severe problems.
However a positive asset is that I can very easily discern patterns in things which others struggle to see. Which is great intellectually.
Socially, it's a mixed blessing as people struggle to keep up with me.
At my retirement "do" it was said of me
"He boldy went where nobody had been before, and nobody wanted to go".
Seeing the facts and stating them was also a mixed blessing at work. On the one hand I was praised as speaking the facts as they were, on the other hand, in my work dossier, one manager recorded that I was tactless.
It also seems that I am always living in the fast lane. At infants school (kindergarden?) whilst others were struggling to read, "The cat sat on the mat", I had to resort to reading some shakespeare under my desk to relieve the boredom.
in reply to
Aspergers has great benefits as well as the problems it can cause I understand. I’m glad you have mentioned it to us.
So sorry you are suffering like this. Have been there and it is so horrendous as in the middle of the night you feel so alone. Have you tried a foam roller? You will get a deeper massage, I tried it once and it worked, just a suggestion though, as I know we all find different things help us. Good luck!
We are all so different…. I have to have an almost freezing cold shower and spray directly on my legs and back of knees… how I miss my bath. Would leave cool water in over night and get in during the night when needed to. The thought of a hot shower when my legs and arms are going crazy fills me with horror ! It so glad it works for you.
My sister says the same thing. She needs the cold. It is amazing how we all have the same thing but everyone needs a different solution. It's no wonder science can't find a cure for us. Btw, I take a hot shower because my skin turns ice cold shortly after relaxing even though my insides are like hot flashes. It's just crazy.
Most people on here seem to have different rls to me, some suggest watching a movie, or listening to something. I am UNABLE to even sit for one minute when mine is bad
I am just the same, what I would give to be able to watch a movie. When I do anything on my iPad I have to kneel on the floor with IPad leaning against back of sofa. Not very comfortable but stops the constant need to move my legs for 5-10 minutes . This ‘’syndrome ‘ is so much worse than that , it seems to be a totally debilitating disease. I’ve had it for about 25 years now and sick of it , controls my life and is exhausting ! Here’s hoping someone somewhere will discover something with out horrible side effects to ease our suffering 🙏🙏🏽
I also have suffered for 25 years, gradually worsening with age. 4 years ago I injured my back and now have spinal stenosis which I suspect has made my rls worse, BUT I was then put on Targin 10 am and pm and had 3 MONTHS rls FREE!!!!
Oh what bliss, decreased to 10 mg at night and even that is now not working. I try to knock myself out with meds to get some sleep now.
Yes it controls every aspect,of my life with me now dreading the evenings as soon as I wake up.
Oh no, I do the heavy meds bit too,, my brain tells me it’s not the right thing to do, but the sheer longing of being asleep for a few hours wins me over! I also dread the evening , I tend to potter about most of the time so that I can feel exhausted at bed time . Bet it was heaven having no RLS for 3 months, must have reminded you of what life used to be like and could still be like … if only !!Wishing you all the best as we all carry on coping the best way we know how .
I feel for you. I have nights like this. I look out into the darkness and envy all those sleeping people! What I wouldn’t do to sleep! My body aches for sleep and my legs won’t let me.I find I have to do a lot of walking around and things that are fairly active. I do have a hot drink but avoid doing things that are,for me, stimulating - like listening to music.
I sometimes look to see if anyone on the forum is active but try to avoid technology.
Sorry I can’t give you a very helpful reply but I hope you find something that works for you.
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