Pramipexole experience: I am on 3 x... - Restless Legs Syn...

Restless Legs Syndrome

21,296 members14,929 posts

Pramipexole experience

Spurdog1 profile image
18 Replies

I am on 3 x 0.088mg and reducing, and I wonder if others have experienced what I have, one thing in particular.

I love to read, and often. In this lockdown, I have read many books. Sometimes your mind considers their situation in the story, and suddenly you may think "oh, I must do the washing up" (for an example),....distraction.

But what I find is a very different kind of distraction of late, Where I find myself in a totally different story, not one provoked by the book, but a totally different thought, a different story. Then I realise I have drifted away. I cannot even remember what I have drifted to!!! Am I just getting old, or is this something to do with Pramipexole? It doesn't frighten me.

And I've experienced (momentary) hallucinations, It has stopped, but again that has not spooked me.

What experiences have you guys/gals had?

Written by
Spurdog1 profile image
Spurdog1
To view profiles and participate in discussions please or .
Read more about...
18 Replies

Hi.

Just to reassure you, I had the same experience on pramipexole.

When we are dream sleep deprived the brain tries to make up for it in the next sleep period.

In addition, pramipexole causes "sudden" daytime drowsiness.

I often used to go from being awake straight into a dream in a split second.

Hallucinations, can be a result of being in a "hypnogogic" state, the twilight zone between being awake.

Hallucinations can occur with pramipexole. This is because it raises dopamine levels, a known factor in psychosis.

All this should fade as you withdraw from the pramipexole.

Spurdog1 profile image
Spurdog1 in reply to

Thanks, Manerva. No, rest assured I am not nervous or frightened, just searching for the situ. I am now down to three per eve, and the next drop on the 20th, so..... "not far away". I'll be stopping at two per day.

In a way I liked the hallucinations sad bugger that I am. Suddenly awake, and seeing my wife beside me, then she's not, she's sat on a sofa opposite me. (Said for other peoples' benefit).

So my experience can be called dream reading, I know it's different to an ordinary daydream.

I hope I don't offend you, but if you were my neighbour, I could listen for ages in the local pub with you.

I've had some odd experiences, nothing really terrifies me anymore. I soak it up and enjoy it. Thanks for your time Manerva

in reply to Spurdog1

Hallucinations can be entertaining, I know. They're only a problem if they're either nasty, i.e. voices telling you to do something, or are so distracting that you lose touch with what's going on around you.

My latest odd experience is technically called "glossolalia" or speaking in tongues.

It happens when I'm half asleep in bed and have to adjust my position for one reason or another. Then I find myself uttering a rhythmical string of meaningless syllables and half words. It seems to be completely involuntary, it just happens.

Luckily, my wife is a deep sleeper and she's only heard me once. She asked, "what did you say?" I had to say "I haven't a clue."

I can't see it has any connection with anything else that's going on and I've never had it before.

When I was younger I used to experience "sleep paralysis". I looked it up, I was studying psychology at the time. What would happen is I would be having a dream, sometimes I'd dream someone was trying to push a steel rod up my spine.

Then my brain would wake up, but my body didn't and I couldn't move, paralysed! It was quite frightening at first because I thought I'd be stuck in this paralysis, unable to move and unable to respond to anybody.

One time I even imagined there were two vague grey figures looking over me and one was saying, "He's dead." The other said, "Yes he is." I was struggling to say "No I'm not", but of course, I couldn't move.

I did read that this was sleep paralysis and stopped drinking so much.

I missed out really, could have made a lot of money writing books about how I was abducted by aliens.

Sillylily profile image
Sillylily in reply to

I found myself talking about the chickens being out of the chicken coop and we must go round them up. I do not have chickens and have never "rounded" chickens up!

I usually woke up to my family saying that I was sleep talking again.

Glad I was not alone in my ramblings.

in reply to Sillylily

No you're not.

Spurdog1 profile image
Spurdog1 in reply to

Interesting wife's experiences with ghosts are the same. I had a few experiences with spirits at our last place. BTW, radio signal packed in hence absence (IT network down)

in reply to Spurdog1

Some of the experiences of ghosts are due to subsonic air vibrations of about 7 cycles a second.

I recall seeing a programe in which a scientist kept seeing things out of the corner of his eye and sensing a presence.

Then he detected a vibration in piece of metal.

He tracked the source down to a faulty ventilator fan. When he switched it off, the "ghost" disappeared.

I believe there have been experiments when the military tried to use this a weapon.

The military also experimented with using LSD as a weapon. They gave a squad of soldiers a dose then tried to get them to march.

Predictably, they weren't able to.

Spurdog1 profile image
Spurdog1 in reply to

We bought our house from our daughter. Within a month my wife turned around in the garden to the sounds of footsteps on the gravel. There was no one there. This happened a few times. In the meanwhile, I'd go in the garage and hear footsteps on the gravel, turned around and no one there.. As time went on I got out the drive onto the main road, no gravel, and no one there.My6 wife mentioned it to the daughter, who said "you've heard it". Would that have put you off buying the house, not at all?

Then came the smell.. Burning smell.

Wifey invited her friend, quite eccentric and a gazer to the stars. she stepped through the house into the garden, "Oh, you have a visitor!" She could see the ground that the spirit walked. She'd had no clues as to why visiting. Apparently, the ghost walks a line on earth called a therrick.

We found from the neighbour that a previous resident used to walk up and down there, burning his pipe ashes on his jumper (the smell that we noticed.

He admired his garden on that therrick, and in his life.

There you are, another night-time story

Spurdog1 profile image
Spurdog1

EEEEWWWEEEE, a rod up your own spine, wow that must have shaken you.

I remember a time when I was hugely stressed, work was getting to me, and my marriage was collapsing. Then my health went on the skids.

I then one day was so panicky, I was suddenly looking down at my own body carrying on with work. I couldn't tell you how long it went on for, minutes, 10 minutes...then I was back in myself. My one and only OBE (Out of body experience). It wasn't my time to go....

in reply to Spurdog1

That's quite a common phenomenon. It's technical name is "depersonalisation". It is a symptom of anxiety. I also expereince it now and again.

For some people, apparently, it can be quite persistent.

LotteM profile image
LotteM

Entertaining post, Spurdog and Manerva. Sadly enough I haven't experienced these sudden and weird dreams. Wouldn't mind, though. They sound like a fun experience.

Spurdog1 profile image
Spurdog1 in reply to LotteM

Lol you missed some fun, LotteM

Hoochybaby profile image
Hoochybaby

Hello when I was augmenting with Pramipexole I had two horrible experiences with this drug I had a vivid hallucinations I thought I was paralysed I was in bed shouting and screaming my partner found me trying to climb up the wall in the bedroom

I would not want to go through the same experience again

I have been taking a lower dosage of Pramipexole 0.0188mg but now I cut it in half and will wean off altogether and I don’t intend to go back on it

senders profile image
senders

I would fall asleep behind the wheel of my car when I was on pramipexole

Doings profile image
Doings

I hadn’t related my reading distractions to Pramipexole i put it down to age. Im now off Pramipexole and on Pregabalin, i still find reading more than a few pages a problem and have to re read pages - i have to be careful what i read/watch as any ott violence haunts me and results in nightmares. I dont know if it’s because of medication or just my over active imagination/sensitivity. I dont think that’s hallucinations though.

What a coincidence!

I have just read the BBC news about American diplomats in Vienna falling ill with a mystery condition.

There are claims that this may have been caused by "directed microwaves",

The report also refers to a similar event in Cuba in 2016-17, the "Havana syndrome".

The US accused Cuba of carrying out "sonic attacks". 20 diplomats were found to have signs of brain damage.

The report also links to another article entitled "What is a covert sound weapon?" and another entitled "Beware odd sounds, US warns staff in China".

Some ghosts can be dangerous.

Spurdog1 profile image
Spurdog1 in reply to

LOL stop taking the mickey, i thought i'd cheer you all up with a true event.

in reply to Spurdog1

No mickey taken,

You cheered me up.

You may also like...

Pramipexole experience

Hi 👋🏼 I have had restless leg syndrome since I was about 5 and only recently have been put on...

Pramipexole

taking it. Long time weaning off etc. What sort of drug is it? I read that it helps Parkinson's and...

Pramipexole

Can some one tell me please , I have been taking 268 MCG of Pramipexole for about 2 months it has...

pramipexole

coming off pramipexole med, feel better all round and if anyone is thinking of coming off...

pramipexole

Hello all, I have recently been started on pramipexole and it is working in terms of greatly...