say goodbye to restless leg syndrome

[Molumoby]

Don't worry for restless leg syndrome.

Add zinc rich food in your diet or zinc supplementation.

Zincum metallicum homeopathic medicine works great in such cases.

[Annieapple]

Thousands of us with RLS all over the world have added zinc in one form or another ... there are NO miracle cures for this neuropathic disease.. somethings may relieve symptoms for some people but often it’s short lived. Even prescribed medication doesn’t help every one.

[Ischmael in reply to Annieapple]

I take zinc every day along with vitamin C for immunity. It has not helped my RLS unfortunately.

[Madlegs1]

I wish.🥴

[Hidden]

Hello and welcome to the community. There are't many members from India, so you're especially welcome.

I hope you learn a lot about how to manage your RLS.

I'm sorry to tell you that quite a few members write that they've found a cure for their RLS.

That isn't entirely impossible for secondary RLS which is due to some other underlying condition e.g. zinc deficiency.

The main causative factor in RLS is iron deficiency.

For most people, especially primary RLS, it is incurable.

Some of the things people claim are illogical or even bizarre. Such as a bar of soap in the bed.

I've observed members claiming something "works", then 1 or 2 months, later write something else works. Then 1 or 2 months later something else.

I usually think if something worked why come back and say something else works, then something else.

It would be good if they came back and said, it didn't work in the end.

Perhaps it could be really help if you were to come back in a month or 2 to say if the zinc is still working or not.

I hope it is.

In the meantime, please do read some of the many informative and helpful posts there are on here. This may give you a more realistic idea of possible remedies.

[Irisfoxglove in reply to Hidden]

Brilliant!

[sudokufan in reply to Hidden]

I think you're so right! I've found things that really helped, and I may have posted one or two things as maybe 'helping' (like spraying my leg with hot then cold water!), but I've never claimed to have found a total cure for my RLS. There isn't one. And I often find after a while my new 'treatment' idea seems to stop working. We just have to follow the science as best we can, keep safe, do our best and help each other. What do you think?

[Hidden in reply to sudokufan]

I entirely agree with you.

I also think that sometimes helping each other includes telling people what's unlikely to work especially when it's expensive or in some cases apparently a scam.

I might be a bit overzealous in this at times.

[1Ginge1 in reply to Hidden]

I posted the following a while back but was interested in your opinion.This iron issue is interesting to me. I at first was diagnosed as anemic and given iron. Then I saw a Hematologist and then diagnosed with Hemochromatosis which is too much iron. It ends up being deposited on your organs so I had to do a phlebotomy (give blood). My Ferritin level is around 450. So I shouldn't have RLS then it seems. Well I do. I am agreeance with those talking about diet. It has a lot to do with RLS symptoms. I am trying to get off Reprinorol . I don't take much 1 or 2 .5mg evening but what I am reading makes me want to get rid of it. It does work for me. I had to come off Tramadol so know how hard it is. I don't want to go through that with the Rop.

[Hidden in reply to 1Ginge1]

Yes I'm afraid it seems that if your ferritin is high you wouldn't expect to have RLS. Unfortunately, there are other folks that have a high ferritin level and still have RLS without haemochromatosis.

It's the transferrin saturation level that's significant with haemochromatosis, not the ferritin level.

Yes it can be hard to get off ropinirole, although the withdawal effects may be a little different to tramadol withdrawal.

The secret is to reduce the dose in small steps over relatively long periods of time..

I wouldn't recommend reducing it any more than 0.25mg at a time, or even less. Also don't reduce it more than once every two weeks, if not 4 weeks. Aim to stop it altogether in no less than 3 months.

You may also need to consider an alternative.

[Arjiji]

You cannot make such radical statements with the RLS, and even less with a nutritional supplement because it generates false hopes in people, causes them expenses and in the end a disappointment that adds to a mood that is already quite depressed by their situation .

I took the homeopathic product "zircum metalicum" and it did not improve my symptoms at all. And as far as I know, what I have read and the lectures by RLS physicians neither homeopathy nor acupuncture work for anyone in the disease at hand.

[Shaunygee in reply to Arjiji]

Hi Arji, I wouldn’t discount anything if I were you. Much like others have said about temporary relief.. I tried acupuncture and I got around 2 weeks of RLS free legs/body before it came back. Yes it cost a few pounds and it came back but that short period was worth every penny.

[Arjiji in reply to Shaunygee]

Every day we are surprised with symptoms and remedies for RLS. As many times it has been said: "there are no diseases but sick people". Coffee, alcohol, melatonin, acupuncture are discouraged for most people, but it works for some.Indeed, no therapy can be ruled out; we are in a process of trial of success and error.

[Cocktails]

I also use the homeopathic remedy zincum metallicum to help relieve symptoms, if necessary. There are other remedies I will use as well because I find that the symptoms are triggered by different foods, such as mayonnaise, potato crisps, too much olive oil; by being overtired; drinking wine that has a lot of sulphites; having to sit in uncomfortable airplane seats; and not keeping to my sleep routine. For those of us that use homeopathy as an alternative to mainstream pharmaceuticals there is an understanding that different remedies work for different people in different circumstances - it's not a one size fits all. What works for one person does not necessarily work for another. To manage my health on a daily basis, I take magnesium and zinc supplements along with vitamin B complex, vitamin D and A. I eat iron rich foods such as liver and beef steak, which I find works better for me than taking iron supplements. I exercise everyday. Many members of my family experience RLS to varying degrees. I first experienced symptoms when I became pregnant and then on and off since then. I experienced a few periods in my life when RLS interfered with my sleep and caused great discomfort. Both periods were marked by extreme stress - not because of RLS but other things going on with my life. Since managing symptoms with vitamins, diet, exercise and when necessary, homeopathy, my overall health has improved greatly. Having seen my mum's health messed up by pharmaceutical products prescribed for her RLS and other conditions, I vowed never to go down that road. She is currently experiencing rebound and augmentation from Pramipexole and has finally found a GP who has her back and is trying to help her come off it. Her consultant at the sleep clinic is trying hard to get iron infusions recognised as a treatment for RLS. At 82 she has not given up hope of finding something that works for her. Having said that, she has survived an ileostomy for colon cancer, operation for breast cancer, double pneumonia and radiotherapy in the past twelve months. We put this down to the amount of supplements she now takes each day, regular exercise and the attention she pays to her overall diet and wellbeing. It's really easy with RLS to forget about the rest of our bodies, but trying to stay as healthy as possible helps us avoid adding to our problems.