Hi there I have just been prescribed 50mg Pyridoxine once or twice a day as needed.
The receptionist said they can help RLS it only mentions vit. B6 on the leaflet.
They haven’t helped the RLS. and it is getting quite severe now.Has anyone else been prescribed them ?
Thank you in anticipation,
I have been taking a very low dose of this medication for 8 weeks. It does work well for me as before taking this tablet I wouldn’t sleep for 2 or 3 nights. The problem I have with then is my weight. I am a healthy eater and follow a slimming world eating plan. I have gained 10lb I haven’t eaten more . I am now only taking the tablet alternate nights cont say yet if it will still work as I have just started to cut it down. I hope it works for you as not sleeping in spoils your day .
Taking vitamin B supplements can help with RLS symptoms if you have a deficiency. However it's probably better to take vitamin B complex plus B12 rather than just B6.
Vitamin D can also help with RLS, but again if you have a deficiency.
Generally speaking, supplements of any kind only really help with RLS if you have a deficiency. If you don't have a deficiency, then they won't help.
If you do have a deficiency then I really think.you'd need to take the supplement regularly not just "as needed".
I find what you've written quite worrying. If it was a doctor that prescribed you this vitamin B6, I wonder what it was prescribed for. Did the doctor say it was for RLS? Why is the receptionist telling you what it's for?
Additionally, I believe pyridoxine is an over the counter (OTC) food supplement, not a prescribable medicine and I believe UK doctors are not supposed to give prescriptions for OTC supplements.
If you have severe RLS then it sounds as if you need medication not supplements. I'm afraid your doctor sounds incompetent.
Even if you aren't prescribed medication, there are many other things that can be done to relieve RLS. Your doctor could carry out a ferritin test which is a test for your stored iron level. RLS is known to be associated with low ferritin and many RLS sufferers benefit from iron supplements.
Your ferritin level should be at least 50mcg/L and 100mcg/L would be ideal.
If you think your RLS is severe, there is an RLS severity rating scale you can complete to demonstrate this.
Here is a link to a page which has the rating scale on it. You'll have to scroll down the page to find it.
Additionally, in the UK, there are national guidelines for doctors for the management of RLS, about which your doctor appears to be ignorant. The guidelines clearly identify effective medications for RLS.
Here is a link to the guidelines
cks.nice.org.uk/restless-le...
In addition, you will find the article below gives detailed recommendations for the treatment of RLS.
uptodate.com/contents/treat...
I don't know if the person who prescribed the B6 was a doctor or not, and I don't know if you were seeing them specifically because of RLS symptoms, but it would appear that your RLS is not being dealt with and I find this quite shocking.
I would read and try to absorb the information I've given links to and go and see a doctor, perhaps taking some of the information with you and if they are unwilling to deal with your RLS adequately, ask to be referred to a neurologist.
Hi Mandriva
Thank you for your reply. The Doc
Said it can help and I told him it doesn’t mention a B vitamin on the leaflet and it doesn’t work for me.
He has diagnosed Raynouds Doh! And
Scleroderma on my legs. Had it for 18 months but no one could be bother to look.
My blood test was done properly this time. The nurse wouldn’t record the answer til it went down 3/4-1hour later. Why the wait heard what a shock my thyroid is of too. He just mentioned Gabapentin and other one neither of which help for me. I have also tried all the
Pain medication available.
So really, is that it?
My 16 year old dog died and really both my 26 yo and 28 ye old hate me, think I am making things up and oh best on . I am using the disabled word too much.
I’ve found out they are both lying it to my face. But I trusted them.
I obviously have nothing to live for anymore. I wish Harold Shipman was still around.
I am Dow to be a body donor but how I felt last week and NO ONE understands. I just bow my head and try not to cry.
Obviously have no idea where that came from and hope it can be published
Cheers everyone
Hello bonny, oh dear, I am sorry to hear of your difficulties.
It does sound on the one hand that your doctor isn't explaining things very well to you and/or you're not understanding any explanations.
It is the doctors duty to make sure you understand.
As regards the conditions you seem to have, Reynauds disease, sclerodetma and a thyroid problem. They are unrelated and have diffetentvtreatments. I hope these have been explained to you.
As regards RLS, it's difficult to say from what you write whether you have this at all. You'd have to describe your symptoms in detail. If the medications don't work then perhaps you don't have RLS.
As regards your other issues, I am concerned for your psychological well being, which may be both affected by your physical conditions and may be exacerbating them
I'm sure, with help, these things can be sorted out. I suggest you see your doctor again, clarify all diagnoses and ask if you need to see a specialist about any if them.
You might also ask about being referred for psychological therapy and in the meantime see a counsellor.
Your problems have gee physical characteristics but coping with your situation requires psychological health as well.
Thank you again for your help.
When I showed your reply to my GP as you requested. He wasn’t pleased with your reply and questioned your medical background.
This is always going to happen. Every one has there own opinion.
However when I explained the horrific feelings the whole of my RLS effects.
et al does to me ( et al) used wrongly, cfs/me fibromyalgia and more .
( Deleted by Kaarina)
Have a lovely day, which is something I hope for myself.
Sorry if you have misunderstood what I've written, in my first reply I suggested you print out the information from the links I posted, NOT my reply.
Naturally, I would expect your doctor to question my medical knowledge if it contradicted his own views.
The sources I gave links to are authoritative sources, your doctor should recognise the authority of the National Institute for Health and Care Excellence. Any other comment I made is solely my opinion based on what you wrote.
You also seem to have misunderstood my second post. My intention was to be helpful and was based on some of the issues you mentioned and also on my knowledge and expertise in relation to mental health issues.
If you found that offensive, I can only apologise, it was not intended to be.
I did not suggest you show that to your doctor either.
(Deleted by Kaarina)
No luck
RLS
Dopamine Agonists
Which Anti-depressant tablets do not make RLS worse?
Anyone on Bupropion (Zyban) for depression?
