My 5 year old daughter has been suffering with restless leg symptoms for about 2 years. RLS has been the only thing we've been able to match the symptoms to but whenever we've mentioned it we were told it was something only older people get... Now reading about it further I realise this is not the case. It's been particularly bad for the past few weeks, not being able to get to sleep, waking in the night kicking and screaming, awake crying for hours. It's so distressing for all of us and we dread night times now. We've been back and forth to the drs over the last 2 years, had iron levels checked a while ago which came back as 18 the first time, we started supplementing her iron and they tested again last week and said they were now 35 (although symptoms have got worse) do these levels sounds significant? We've been told they are on the low end of normal but they don't seem concerned. We've been prescribed different antihistamines with no or worse affect. The last one phenergan gave her RLS symptoms during the day too, which I've now read can be the case. I took videos of the night times to show the Dr this week and he barely looked at them and then said theres nothing more they can do as its prob psychological (which he himself had said previously was 'a bit of a cop out' when they don't know what's wrong!!). I feel so angry after reading on here and realising it is very possibly what we've been saying all along. I'm going to go back and demand to be referred but I feel I need to be prepared. Are there any names of particular doctors we should be asking to see? We are in Hertfordshire so near to London. As it seems quite a specialist area I don't want to wait months to be seen by a neurologist who doesn't know enough about it. Should we be asking to be seen at Great Ormand Street since they specialise in children or are there other doctors who are more specialist in RLS? I'm already so grateful for the knowledge shared in this group, without which we would still be questioning ourselves.