Geeeewhiiizz am i fed up ppffttt! blumming RLS can take a jump Ha! whooops! just read on side Nice Grammar makes for easy reading you'll have bear with me my grammars rubbish blame it on being hearing impaired anyway....... RLS always bad and drives me nuts just like everyone else on here at the moment its been really bad last few months only sleeping twice a week then burn out roughly once a month feel like a blinking zombie and talking gibberish found myself looking for my dog last night wouldn't mind but she died 10 yr ago crazy rubbish going through my mind and to top it off my asthma real bad too and i can't use the reliever puffer gives me thrush down my throat ohhh happy days
Meds do sweet naff all neuro dr the same and im a mess , only came on here to let off steam as i know there's many of use in same boat and i feel for you all xxx
not looking for sympathy im just ranting sometimes helps eh!
going back to bed again.................. try get some kip nearly that time i won't go really hate the thought of folk thinking im lazy and sleep after a certain time wonder if anyone else feels that hmm...
sorry babbling away here
lub ya all
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gypsy49
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Hello Gypsy, Loved your post as you have summed up how we RLSers feel time and time again. I know you said you are not looking for sympathy but you have my warmest good wishes. You have a lot on your plate to deal with. If we only had RLS alone it might be easier to sort but all our other ailments added in make life a struggle. By the way do not worry what people think if you are not up early - take rest when you can and don’t ever worry what other people think!!!!!! Hope your good rant helped you - it certainly helped me.
Hi Jelbea........ cheers for that aye RLS bad enough but damn asthma really not help at the moment mouth sore as hell ggrrr from the reliever can't use any of them to be honest all do same thing sore mouth RLS always blumming nuts pain in the rear happy to know i got a couple hours kind of lol think im a shape shifter the way my bed looked
always worried what folk think i think with living in a small village folk knows when your up and around mind you not so bad in winter cos my front doors shut most the time but summer it's fully open all the time specially when im not in bed just hate anyone thinking im lazy but that's just me i guess most do know i suffer with sleep disorder not saying they understand though lol they just nod ohhh aye..... right ... ok... lol about their limit i think
i think you've got to laugh with this thing RLS otherwise it'd get you real good and proper same goes for fibro ggrrr that needs a kick too . Aye the rant helped as always and good to have somewhere you can do that knowing others know what your on about and going through the same thing. Hope you have a fab day
ohhhhhhhhh wow madlegs how the heck do you get all the little icon thingies i can only manage 3 i think hmmm oooooor maybe 4 lets try where you get em
i feel like what i feel most the time but comes a point where you got to let some of the humour take over or it gets you real down wouldn't it be cool if RLS was more known about and folk outside the RLS world had more understanding ohhhhh including the doctors hmmm... and so call neuro dr oh boy.... be ok if i was green with things sticking out my head and pointed ears lol hmm wonder if there's an icon thingy for that im sure there is . living with RLS and fibro and everything else is hell and im sure there's more that suffer more than most .
im going hunting now for these blumming icon thingies specially that little devil one ,
Thanks for getting back to me hope you have a fab day x
Hi Gypsy, sod the neighbours,, i have had days where i dont even get dressed, do the neighbours gossip about it, ? i dont think they do, my neighbours are nice, and some , like each side of me do know i suffer with not sleeping at night. and any others can do one. I know you have tried all the meds and in know none seem to work for you,. You might have said already, but have you tried Targinact..?
Good to hear from you as always I know i should say sod the neighbours but you've known me long enough now to know as much as i try i just can't do it guess its how im made up always putting others thoughts before my own guess because they all work i feel lazy i did try once lounging about in my pj's for the day by lunch i had get dress just didn't feel right lol wish i was more like you , hmmm Targinact new one on me i'll look that one up see what it is i've tried so many lost count what have tried and whats made things worst deffo know anything Dopamine Agonist i can't take ggrrr to me they're evil big red light flashing on them . I'll go look that one up you've said thank you for that one , Hope your days going well even if it is peeeeeeing down blumming weather not good for asthma i know that :/
No chance here getting cbd even tho they have made it legal on prescription for certain conditions, and no one with those certain conditions can get it! RLS isnt one of the conditions.
I should have said I told them I had developed pain and that is debilitating to the point I had to use hot water bottles and heat packs for the pain as Panadol etc did not work .
I wish saying pain would help getting CBD for RLS, but unfortunately not here in the UK, it was made legal with a prescription mostly because of kids having seizures and mothers having to bring the CBD into the country illegally, these kids using CBD had less seizures and abd a long story cut short the Government gave in but there has only been a handful of people including kids who are getting it on prescription, doctors here wont prescribe it they say they dont know enough of its benefit from anyone using it. I posted a article two days ago on a company who is going to study 20,000 people with certain conditions in the hope that will let doctors see what benefits it CAN be. That i HOPE eventually down the line lead to RLSers being allowed to try it.
aye that's sooooo true even though the government made it legal for doctors to prescribe they still won't give it out i feel for them poor children with epilepsy it's been shown again and again it helps but still the dr's won't give it by saying not enough research gone into it ggrrr what more proof do they need im sure it's the big pharmical companies that don't want it out there because it's so much cheaper but not just people with epilepsy but parkinson's too and many many other disorders it'd help sadly RLS will always be the bottom of the pile
What saves me within a minute every time is full spectrum CBD oil strongest you can get your hands on. I had been on prednisone for 3 weeks and still could not breathe when I first tried it . 60 seconds sublingual normal . I found I had to use it every 4 hours for 2 days then stopped all asthma meds kept up CBD as needed you can tell because you get short of breathe . Within minutes of swallowing what’s left I start bringing up heaps of mucus from my nose and chest .
So now I use it daily just a dose and I have not had meds for months my doctor is really shocked that I have not needed any prednisone.
I do a lot of international travel if I start to feel tight I pick up my use of cbd
Hi Shumbah.... i've asked my neuro if i could have CBD oil he won't let me ggrrrr have tried weed in past worked wonders i have to say knocked me out without going high. where abouts are you? im guessing not in the UK i might be wrong but guessing not lol
had RLS since i was about 8 yrs old might even be before but memory doesn't go that far back and asthma since a small child never been able use the reliever tried them all all either burn my mouth or give me thrush down my throat which makes it feel like shutting off . ahhhh just read the bit where you say you travel international which is most probs why you can get your hands on CBD oil lucky you . glad you found something that works for you always happy when folk find something that works for them hope it continues for you xxx
Feel so sorry for you, know how you feel but just thought my experience would be interesting to you! I have a stoma (ileostomy) due to bowel cancer and because of that I don’t absorb magnesium! When my magnesium is low my RLS is really bad but I have then to go into hospital for magnesium infusion and after I have been topped up my RLS stops! I have heard before that low magnesium can cause RLS in some people and they benefit from a supplement, would it be something you could maybe try, anything is worth a try when you are so desperate! I wish you luck in finding some peace in your life!
I'm ok just take it as life where's yourself sounds like you've been through the wars wow hopefully your through the worst of it and come out the other side cancer is something i wouldn't wish on my worst enemy my father had cancer in his throat normally linked to people that are alcoholics he doesn't drink not since before i was born so about 57yrs ago now he can't lay down has to sleep sat up right other wise everything he's drank or eaten would just flow out he's been in the clear now for 4 yrs , My daughter and sister has RLS too although not as bad as me they've not long started with it so im not sure how many in the family in the past had it too so know it's Primary even if my neuro doesn't listen to me when i tell him lol . I have tried Magnesium but because i suffer with IBS it didn't go down to well for some reason , I wish you well for the future and love in your life x
Hi Siberiancats, please don’t feel you are suffering alone, there’s always a way out of this situation, have you tried magnesium supplements? I found a small dose of tramadol worked for me, are you getting any help from doctors, keep going back here has to be an answer for your suffering! Keep letting us all know how you are!
Try rinsing your mouth after using your inhaler. The doctors here prescribe something called "Magic Mouthwash" made up by the pharmacies which heals thrush.
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aye RLS bad enough but damn asthma really not help at the moment mouth sore as hell ggrrr from the reliever can't use any of them to be honest all do same thing sore mouth RLS always blumming nuts pain in the rear happy to know i got a couple hours kind of lol think im a shape shifter the way my bed looked 
oooooor maybe 4 lets try 
where you get em 
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