Espresso coffee: Coffee really helps... - Restless Legs Syn...

Restless Legs Syndrome
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Espresso coffee

Memmy
Memmy
30 Replies

Coffee really helps my rls. A strong espresso when I feel my legs starting. I hope it lasts. I had stopped drinking it thinking it was a trigger but no.

30 Replies
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Manerva

Coffee seems to be something that makes RLS worse for some and better for others.

You might assume it's the caffeine in the coffee that's the active agent, but I'm not so sure. People say "coffee" more than they say "caffeine", but tea has caffeine in it too. Not many people say "tea".

It could actually be the coffee, NOT the caffeine.

It's a mystery!

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Lapsedrunner

I have caffeine tablets by my bed now instead of a flask of coffee...for me it’s the caffeine!

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Amelanchier
Amelanchier
in reply to Manerva

I also find caffeine a help rather than a hindrance, but in the form of tea, as coffee gives me tummy cramps. I often make myself a strongish cup at night when rls kicks in and gain relief . The whole remedy scenario is a mystery tho, I agree. What works like a dream one night can be totally useless the next!

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involuntarydancer

As you know, I too find a small strong coffee a useful tool when the beast strikes. If you read the study on dipyridamole and RLS by Drs Garcia-Borreguero and Ferre, it seems that it is because caffeine operates on the adenosine receptors which are implicated in RLS. I think this is the scientific basis for the good effect.

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Manerva

Great, then it's the caffeine in the coffee, not the coffee. I still prefer coffee to other sources of caffeine.

Say this fast

All I want is a proper cup of coffee made in a proper copper coffee pot.

Iron coffee pots and tin coffee pots, they're no good for me.

If I can't have a proper cup of coffee made in a proper copper coffee pot,

I'll have a cup of tea!

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Memmy
Memmy
in reply to Manerva

I dont think tea has enough

caffeine but I may be wrong

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Manerva
Manerva
in reply to Memmy

There is more caffeine in tea leaves than in coffee beans, nut more caffeine in brewed coffee than in brewed tea.

It gets lost in the brewing!

driftaway.coffee/is-there-m...

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Eryl

I can understand that, as coffee contains polyphenols and other anti-inflammatory compounds, and I believe that rls is most often caused by chronic inflammation. The problem is that drinking too much coffee can lead to high blood pressure, headaches and palpitations. The real answer is to find the cause of the inflammation which is usually some foods, like sugar, dairy products, gluten, and in some cases nightshades or artificial preservatives. Also vegetable oils (apart from olive oil can be a cause of inflammation) as can low level poisoning with heavy metals or herbicides and pesticides.

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Manerva
Manerva
in reply to Eryl

It's more likely that it's the caffeine content of coffee that's the real answer, since caffeine is known to have a direct effect on the nervous system e.g. on the adenosine receptors.

I admit it's tempting to come up with theories that manipulate facts and combine them often in very complex and convoluted ways, simply to demonstrate that your world view, however bizarre or outlandish, is the right view. Such is the stuff that conspiracy theories are made of.

It's not too hard to see how, as human beings, we are prone to erecting internally coherent and self supporting belief systems that sometimes unfortunately don't correspond with a shared reality that most people agree on.

Not to say that the shared reality is entirely true. Truth isn't a democratic decision. However, it does help social cohesion to agree about some things.

Scientists do say, especially theoretical physicists that the best theories are both simple and elegant.

Which elegantly brings me round to saying that my theory is that it's the caffeine in coffee that affects RLS, not polyphemols, anti-inflammatory agents or even its sugar content, because it's a simple theory.

In contrast

en.m.wikipedia.org/wiki/The...

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Eryl
Eryl
in reply to Manerva

Then you'd better ague it out with people like Livestrong.com and the authors of The Iowa Women's Health Study.

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Katti703

Are you drinking with caffeine or without? I love Espresso and want to try this ☺️

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Memmy
Memmy
in reply to Katti703

With caffeine

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Katti703
Katti703
in reply to Memmy

Thanks, but that would keep me up all night. 😔

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involuntarydancer

This recommendation is mainly for those whose rls will keep them awake all night anyway. Once my rls starts it doesn't settle until 5am at the earliest; sometimes 9 or 10am. I would rather be awake due to alerting from caffeine than with the awful urge to move.

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Memmy

I agree completely. Nothing nicer than being able to lie in bed with quiet legs

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Katti703

I get some sleep by taking 50mg of Trazadone at night.

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Alex2308

For a year or so I used to drink 2-4 espressos along with L-theanine to smooth the effect but still it irritated my stomach. For the last 2 months though I've only been taken 200 mg caffeine pill first thing in the morning and that's all. No RLS whatsoever while I'm loaded with caffeine, feeling great and alert, but I can't sleep in such a state. In the evening all caffeine is already out of the system and usually, being tired enough, I sleep alright.

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Memmy
Memmy
in reply to Alex2308

So it seems caffeine really helps

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LotteM
LotteM
in reply to Alex2308

Alex, that is an interesting experience. Is your RLS mild or severe?

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Alex2308
Alex2308
in reply to LotteM

pretty mild

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Sara_2611

I gave up coffee years ago for a very different reason

When I was working I sat on a bank of 4desks & my then colleagues drank coffee every so often & drank lots of it - so did I & next thing I knew my heart was beating 200bpm & thankfully there was a couch on the coffee room so I had to lie down on it until my heart returned to normal. So I've never drunk it since

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Memmy
Memmy
in reply to Sara_2611

I drink an espresso after lunch and one after evening meal which isnt a lot

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Sara_2611
Sara_2611
in reply to Memmy

That's good I'm not going to start it up again

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Manerva
Manerva
in reply to Sara_2611

Many substances have good and bad points, it's just a matter of balance, is the good it provides is better than the bad. Caffeine does have a bad effect if taken in excess, but in small amounts, it seems it can help RLS.

Conversely, although Curarine , for example, would be very effective in stopping RLS -

- it would also kill you!

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Sara_2611
Sara_2611
in reply to Manerva

What is curarine? I think I ll stick with my Balneum Cream I had an attack of it Thursday night which woke me up so I've put it on & "they've relaxed again

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Manerva
Manerva
in reply to Sara_2611

Curarine is a drug which is used for some surgical procedures. It's benefit is that it relaxes muscles completely, which sounds brilliant.

However, it relaxes all muscles including breathing muscles.

Not a good idea unless you have a ventilator available.

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Sara_2611
Sara_2611
in reply to Manerva

Hi Manerva

Thanks for the reply- Oh no -I dont have a ventilator -so they'd definitely not be suitable not to mention a possible clash with the medication Im on for blood pressure & epilepsy -I just wondered what it was .I've learned something there -so much obliged

Cheers

Sara x

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involuntarydancer

Death from any cause will bring about a resolution of RLS. This seems to be borne out by the recent study that links RLS to an increased suicide risk.

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Memmy

Never heard of curarine

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funnyfennel

Interesting, as I too found coffee helpful. When awake early ,5 or 6 am, having coffee and going back to bed seems to feel so relaxed and I can sometimes get a nap...!! However, the strong coffees they serve in town seem to give me migraines if more than one a day.....ho hum....good luck everyone x

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