Restless Legs Syndrome
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Sleepless in Surrey

Stress so much a part of this syndrome. We have to drive to Scotland at weekend for a family do and the last few nights I have been up with legs and also butterflies in tummy. Thought the CBD was working a bit but I so anxious it doesn’t stand a chance. Think I just need to take extra painkillers in middle of night and ride it out till after Christmas

Thank goodness some good plays to listen to on bbc radio I player. My eyes get too tired to read or do puzzles. I try to tell myself it doesn’t matter if I am awake. If only these worms under my skin would go to sleep

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Stress is definitely a trigger. I'm up with the wriggly legs at 5 am despite oxycontin & pregabalin. I still get RLS nearly every night but manage to fit in enough sleep eventually.

Hope you manage to get some sleep over the Christmas period.

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Thank you. God bless

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It is a truly dreadful condition, Smiffy. I really feel for you. Like Jules, I experience it most nights and I don’t know what I’d do without my audiobooks. Usually I manage to use something in my arsenal of drugs to get a few hours sleep but it’s so unpredictable. Sometimes the legs seem impervious to everything and I feel like a total zombie the next day. Other nights a very small dose affords peaceful rest.

You might find the drive goes better than you anticipate. There will be distractions and you can always stop and take a break if it becomes intolerable. Fingers crossed for you.

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Yes, I agree, stress is definitely a trigger so make sure you are well prepared with packing early and everything is organised with no last minute panics. Have you got a player or a tablet or something to play audiobooks? As involuntary dancer has said these provide good distraction when you get into the story.

If possible keep the car well ventilated but not cold or too hot and take regular walk-breaks. As you might imagine I have the same problem and am now better in a car but i have a trip to Germany planned. The plane is always crammed so I am hoping my pregabalin will see me through (together with music in my earphones).

Have a good time in Scotland but be wary of the whisky :)

Best Wishes

Neil

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Don’t drink sadly doesn’t agree with me. I am always packed days ahead and traveling doesn’t bother me but hubby leaves everything till last minute and never leaves home till mid afternoon. He doesn’t like driving in the dark so I will have to take over when we get off motorway. That is what stresses me. He had prostate cancer and there is a positive in that as we now need to take toilet breaks where we used to not stop

No chance of ventilation as he smokes all the way and likes heater full on. Thankfully my legs don’t usually bother me in the car so I will probably nod off

Home circumstances main cause of my stress

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Yep anxiety definately makes it worse.Lotsof love to everyone struggling with this challenging disease.x

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Smiffyliz, in that case I hope you do nod off in the car and have a safe trip when you take over the driving. I understand; sounds like 50/50 would do you better.

I hope also you have a good break and can relax a bit.

Best Wishes

Neil

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