Burning thigh aching pain non stop - Restless Legs Syn...

Restless Legs Syndrome

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Burning thigh aching pain non stop

Contra21 profile image
17 Replies

Hi all

Unsure if im in the right place but

During and before my period my legs would ache and go away .now 2 weeks non stop pulling burning aching on top of thighs its scaring me. I cant sleep from it. Its driving me crazy! Ive tried hot/ cold walking paracetamol but it burns and aches. Its Non stop relief anyone? walking amd of hot water bottle give ot temporary relief but time passes and boom Burning aches are back.It went away for 3 days but came back. im very sedentary( depressed anxious abusive household and autoummune hypothyroidism but today did 6k steps but always feel hot too. Saw gp got all bloods im always low in iron blood disorder and everything . Pls help an x

Update now pain is crawling down whole leg

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Contra21 profile image
Contra21
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17 Replies
Madlegs1 profile image
Madlegs1

Google " paresthetica meralgia" to see if that describes your experience.

It's a bit like sciatica, in that it involves constriction of a nerve that feeds into the leg. Usually one side, but can be both.

There are different causes.

Hopefully you can follow some of the tips, to get relief-- but it is difficult to relieve completely.

Good luck.

Contra21 profile image
Contra21 in reply to Madlegs1

Do u have this?

Madlegs1 profile image
Madlegs1 in reply to Contra21

Yes-- front of left thigh.

I cannot sleep on my left side.

Itchy to burning pain.

Contra21 profile image
Contra21 in reply to Madlegs1

So how long have you had it and treat it?

Hi Contra, Madlegs may be right, this sounds like it's nerve related, neuropathy/nerve pain

I am surprised your doctor hasn't recognised that.

I'm afraid this forum may not be of much to you as you don't have RLS. I have to say, you've been in a variety of forums about various health problems.

I'm not doubting you have some genuine conditions, but the common theme throughout your many posts seems to be anxiety, specifically your health anxiety.

I'm not suggesting you should stop taking any medication you've been prescribed, e.g. for your hypothyroid. However, I would suggest you seek some professional help with your psychological problem, chronic anxiety.

This would help you deal better with any physical ailments you have and stop you from worrying about every symptom.

You may also find your doctor is more responsive and sympathetic.

Contra21 profile image
Contra21 in reply to

How do you know i dont have rls ?its why i came here and not to be judged on my previous posts. My symptoms are real.I have been seeing a professional 4 years but it doesnt work that way but thanks for telling me what i need.

in reply to Contra21

Sorry if you do have RLS, you don't say that you nave and the symptoms you describe aren't RLS so I presumed.you don't. If you do have RLS it was presumptious of me.

It's not a "judgment" to note that there's a common theme in your past posts which suggests you suffer from chronic anxiety, it's just an observation. If this also isn't true or it was true but now you've dealt with it, then I also apologise for that. Then there's nothing further you need to do.

My comments were intended to be helpful, not critical. If you are struggling psychologically with your health problems then it is known that developing resilience and tackling anxiety can significantly help in promoting general well being.

Comments made on this site aren't intended to be taken as medical advice and I can only make comments on the information you give. If my comments are inaccurate it's because I don't have any information i.e. about your RLS symptoms or I have misinterpreted the patterns I see. Although I am qualified enough to recognise psychological issues, I am, on this site, just another member and can make mistakes.

It's entirely up to you to either reject or accept what someone says on this site. If you don't feel they are helpful, they you can ignore them .

The symptoms you describe and ask for help with are not symptoms of RLS they are neuropathic symptoms. The best advice you could get about this would be from a doctor.

Contra21 profile image
Contra21 in reply to

What is rls what am I suppose to feel

in reply to Contra21

RLS is diagnosed by symptoms alone, there is no test.

The diagnosis however does need to be confirmed by a doctor and this may have to a neurologist.

However as someone who has experienced symptoms for decades and has been diagnosed by a neurologist quite a few years ago and has read the diagnostic criteria I would be able to recognise someone's symptoms as probably being due to RLS. I'd then suggest they consult a doctor to confirm this.

If you describe what symptoms you have then I could say whether that sounds like the symptoms identified in the diagnostic criteria.

Would that help?

Contra21 profile image
Contra21 in reply to

I already suffer from vestibular migraine and am dizzy always. I’m asking you what are the rls symptoms? I just have heavy hot burning aching thighs non stop

in reply to Contra21

Hello again.

Sorry you have the vestibular migraines. Horrible, my ex wife used to have them. I guess the dizziness is connected?

However neither of these are connected to RLS.

The pain/discomfort in your thighs doesn't sound like a symptom of RLS. It sounds more like nerve pain, but I'm only guessing.

What other symptoms do you have?

Contra21 profile image
Contra21 in reply to

How did it stop for your wife?

So what are rls symptoms ?.....?..as I’m anaemic for 20 yrs also .

in reply to Contra21

Hi again Contra

My wife doesn't have RLS, but Graham's does.

If you've been anaemic for 20 years you must have had some treatment for it. Despite this, it does sound as if your iron stores will be low. Another blood test for this would be a Ferritin test.

Low iron stores can cause RLS If this is the case then, with your history, you may need and be able to get fairly aggressive iron replacement treatment.

in reply to Contra21

This is the criteria for RLS, all must be met for a diagnoses, the urge to move your legs a urge you cant resist, if you think you have all the criteria then you have RLS, if not then you dont. irlssg.org/diagnostic-crite...

Graham3196 profile image
Graham3196 in reply to

I would be very upset if anyone suggested my RLS was psychosomatic. For years my wife had to fight stupid doctors who insisted that RSI was a condition invented by lazy people to escape a days work. I hope they all experience something similar and they are given valium for their broken legs.

Contra21 profile image
Contra21 in reply to Graham3196

Drs are clueless .

in reply to Graham3196

Hi Graham, yes I agree, I too would be very upset if anyone suggested RLS was psychosomatic. In fact any condition that has a physiological cause.

I'm not sure however why you make this comment here, has anyone suggested it?

I'm sorry that your wife had to struggle with doctors ignorance for years. In that situation I think it would be beneficial for society in general if they were made to see their ignorance, and be helped to how to show more respect and compassion to their patients. Or be barred from practising.

It might feel getting your own back by mistreating them in return is good If you could do it without feeling guilty.

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