Hello.
After 12 years of RLS, last night I attended a sleep clinic and, devastatingly for me, I was too anxious to sleep or relax and therefore had one of about 10 nights over the last 12 years where I had no symptoms. Has this happened to anyone else during a sleep study? And does anyone know of a way I can track my symptoms at home to show my consultant at my follow-up appointment?
I'd appreciate any advice as I am massively stressed that I will be written off as healthy.
Thank you.
Hi Sampsie
Would either of these links from the RLS-UK website be of any help to you?
Since the majority of symptoms will affect you while you are awake, then a simple diary/ journal recording those symptoms will be extremely valuable.
Even more helpful to you, will be a food / intake diary at the same time, which will undoubtedly throw up coincidences between triggers and rls episodes.
Many people have found this practice to be life-changing.
I presume you have addressed all the issues regarding rls triggers and causes that are detailed at length on the conversations on this site.
Cheers.
Hi you can record your RLS symptoms whilst awake by using the tools Kaarina suggests or simply keep a diary as Madlegs suggests.
However the purpose of a sleep study is to study what happens whilst youre asleep. Obviously, you can't do that yourself. So unless you've got a partner who's willing to stay awake all night watching you, you're a bit stuck.
However, if you have one of them fitness watches, monitor things, I had one once I couldn't get it to work and it wouldn't talk to my phone because it was the wrong colour of Bluetooth, or something like that
BUT
They often have a sleep monitor in them dah darrrr!
If you haven't got one, they can be a bit expensive,
Hi Manerva, thanks for your suggestion. I do have one of those watches and it does show when my legs start and wake me. I think given I 'failed' my sleep exam I shall show the consultant some of my readings as I don't want to be taken off my Gabapentin. Thanks for the tip.
I had great difficulty with a sleep study. I think I had about 30 electrodes on my head with leads all over the place. I did get a couple of hours and in that time Periodic Leg Movement was recognised although not as much as I thought it was. A very unpleasant business! Interestingly it showed I had sleep apnea which surprised me. I have a device on my wrist which records sleep but I’m not sure it is accurate. I record my sleep in a general way in a diary but I am not sure how much notice anyone would take.
Hi Martino, I found all the gubbins I was attached to so uncomfortable too. What with that, the noise outside, needing to call the nurse each time I wanted the loo and my anxiety about the whole thing I just couldn't relax. Sorry to hear about the sleep apnea. My father has it. It was good to know you also found it all difficult too - not just me! Thanks.
Use your phone and record it
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