PIP UK

[gypsy49]

just to let folk know i failed even failed on everything else i have ohhh i got 2 points for being deaf lol im hearing impaired but reg as being deaf , all the lies the assessor put i can't believe but no mention of RLS or fibro or IBS or Anxiety or depression she did put i can concentrate hmmm i lip read so yeah i concentrate so i know what she was saying duh... what to do next i don't know I had DLA for life now nowt .. dreading next that they stop my ESA

[gypsy49]

oh i forgot to mention that the assessor did ask if i went to physio for RLS i asked her if she knew what RLS was she said she did as she has it too lol guess that would explain why she asked if i went for physio for it .

[Leelee49 in reply to gypsy49]

Hi I’ve got an assessment next week for pip. Could you give me some pointers on what they ask pls?

[gypsy49 in reply to Leelee49]

As i've just learnt it doesn't matter what they ask it's how they twist it all I failed by what she put , no matter what i say i don't think it'll help i dont just have RLS and i failed just don't do what i did though i find sitting on the edge of the chair with my elbows on my knees leaning forward calms RLS down because you tense all the muscles my error on that but then if i'd been moving about like i would normally do i would have been in the wrong too because i have severe back problems too so walking about hurts and had i done that i would have still failed because i would have been up and about . Good Luck i really hope you pass keep me up dated how you get on xx

[Hidden in reply to gypsy49]

Can you appeal? If so then do it. Bloody assessors who do this job, have no idea and this one didnt by asking if you have physio for your RLS. and i very much doubt she has it. Never ever heard of ANYONE having physio for RLS and that it can help , in what way.!!!!! grrrrrr.

[Leelee49 in reply to Hidden]

I though that to Elisse about physio for rls, I’ve never heard of anyone having it and it helping. If they bring that up I will tell them.

[gypsy49 in reply to Hidden]

i can ask for a Mandatory Reconsideration if that fails then can appeal which i don't think i could cope with going to court and stuff but going get my daughter phone on Monday ask for a MR , nahhh i know she didn't have it when she asked about physio she just said she has RLS and take Lyrica im guessing she did a quick search saw muscle twitches and Lyrica and put 2 and 2 together came up with 5 cos she looked dumbfolded when i said strange seeing it's a neurological problem . she lied about a few things one being that i know how to read text messages i don't even own a mobile i couldn't get on with one cos i'd nod off trying to text anyone not only that no signal here she also said i walk and visit friends alone hmmm long blumming walk 9 miles i don't thinnnnnnnnnk sooooooo specially on a very busy A road with no path lol ask asked where my bath room was i said up stairs she didn't ask how i manage the stairs or the bath going u stairs not so bad but coming down them i always use my elbow on the rail , she even said i use kettle on the hob as i don't like electric kettles aye that's true but maybe i should have shown her my kettle graveyard lost count how many times i've boiled the kettles dry either forgetting i've put it on or nodded off when cooking i stay in the kitchen apart from when i boil eggs lol friends and family joke about my exploding eggs yep always boil pan dry . she said i walk across the field to my daughters hmmm don't think the farmer would be happy my walking across his crop and me jumping over a stream and nettles . I eat once a day if i remember she said i eat regular and take my meds she didn't ask me how i manage my meds , she said i use hospital transport to take me to appointments i've never used them my step mother always takes me and come in with me because i don't understand a word the neuro dr says . and soooooooo the list goes on full of rubbish .

[Leelee49 in reply to gypsy49]

Thankyou for your reply, I won’t be walking about cos I have back problems aswell, I use a crutch when walking, and I cant walk far. I’ve heard that they twist things, that’s why I asked what they ask. But thankyou for the tips and reply, it’s much appreciated, I will let you know how it goes.

[gypsy49 in reply to Leelee49]

read above give you an idea how they twist stuff Leelee x

[robroy1314 in reply to Leelee49]

One thing to watch for is they usually have an office over looking the car park, so make sure your driver lets you of right at the door, when you get out off the car do it slowly.

Hope this helps and good luck.

robroy1314

[Hidden]

APPEAL - In the north of Ireland something like 50% of initial claims were turned down with 83% getting it on appeal.

They mark you down and hope you wont appeal so they get their bonus, (rotten scum bags - Karma WILL find you).

Appeal and make sure that you have someone from the likes of CAB to help and push your case.

Were you assessed on your own? You should NEVER meet these f*****s on your own - their job is to ensure you don't get PIPS. You need to explain how things are on the worst day not on how you are that day.

When she said she had RLS you should have asked her about it, if she was talking about physio for it she was talking sh1t!

Oh how those type of people make my blood boil.

[Hidden in reply to Hidden]

Good idea, to involve CAB raffs.

[Hidden in reply to Hidden]

Yeah those people know how to navigate the forms and can stand up to the vultures when we can't.

[gypsy49 in reply to Hidden]

going see if i can get an appointment with them hoping they do home visits

[gypsy49 in reply to Hidden]

Im going get my daughter to phoneon Monday ask for a MR hopefully that'll do it if it got to appeal im not sure i would cope with going to court I showed her my sleep diary and told her it's the same every day on the report i got back there's no mention of my back ohhh that was another thing im told i need an op on my back fuse 2 or 3 vertebrae together she asked why i won't have the op i said 1 because i live alone and 2 i know my RLS wouldn't stand the laying about for days her response was ohhh it's only a tiny little cut and you'll be up and about as normal the next day hmmm ... , i wasn't alone when she came no worries there i know not to meet these so called people alone besides anything like going hospital appointments i always take someone with me never alone just in cawe i don't understand whats being said. nowt ever goes right for me just feel so blumming alone right now im tired of having to prove myself should have had my ESA assessment last year but she didn't show up cos she was ill so now im hoping this doesn't trigger all that off too it's a long walk to the job centre from here no buses here only taxi at £20 a go i'd get sanctioned before it got started gggrr yeah me too makes my blood boil and they say their health professions hahaha blumming ha more like devils in dress up .

[Hidden in reply to gypsy49]

Its horrible how they make you feel like a fraud when you are trying to put your case across. There will be no court for an appeal.

Any time I meet these 'people' I have ALL my medical reports photocopied and I give them a ream of reports. I have my wife do as much of the talking they will allow and only explain how I am on my worst days. It is so important that they not think you are any way better than that worst day as they will always minimise what you are saying.

Always treat them as an enemy out to take as much from you as they can and you shouldn't go to far wrong.

[gypsy49 in reply to Hidden]

I know i feel like crap they've made me question myself doubt myself not slept all night 3rd night in row but last night was worst than usual i fell asleep other early hours of the morning in bath thought i'd go for a bath 4hrs later i woke up freezing.

Thought if you appealed it went to court i know Mandatory Reconsideration is done by letters and notes .

I don't have my medical note i know DWP do as my doctor told me when they asked for then when ESA first came out i asked for a SAR's after my NON face to face assessment they sent me everything apart from the assessors notes just a piece of paper saying NOT FOR CLAIMENTS EYES..... and they didn't send my medical notes my daughter phoned them and they said they were keeping them for future ref i won the MR for my ESA but have a feeling i'll get no where with this PIP i went through all my bad days didn't say i have good days and bad days when the assessor went my friend said i came across as aggressive yet the assessors notes said i was calm and relax hmmm... when she first came in she babbled out her name and whatever profession she was so fast i didn't get it i reminded her that i lipread to slow down i asked her to repeat her name she didn't then she was shouting anyone with deaf awareness knows not to shout as it make your face look angry and also makes it hard to lip read i only asked her to slow down not blumming shout at me ggrrrr her attitude stunk call herself a care professional haha doubt she wasn't even a nurse more like an undertaker .

[Hidden in reply to gypsy49]

Dont give up, see CAB get advise from them, they have professionals that help out. I am sure you are not the first one to have this type of problem.

[gypsy49 in reply to Hidden]

I'm trying not to give up but hard really down , come to realise not only lose DLA but also Disabled premium on my ESA and whats the bet i'll have to go through that too , going get daughter to do all the phoning up on Monday see whats what and asked for a SAR's and the whole report from the assessment . Cheers Elisses for the advice and everyone else on here xx

[Pippins2]

Very difficult to get PIP .I know 2 people who got turned down for the mobility side of it .I is partially paralysed the other totally wheel chair reliant but was refused as can move wheelchair using his arms so can mobilise .! Only the most disabled can get it now but wish you luck x

[gypsy49 in reply to Pippins2]

Having read some bits today i see it's getting harder to get PIP one thing is i did read was about the mental health side of it they're not suppose to refuse you specially if you can't travel to strange places alone or if there's a diversion on route to where ever your going causing stress and anxiety , i know i won't get the mobility side of it, feeling i won't get anywhere with it at all they all lie the whole lot of em anything for their bonus .

Thank you

[Pippins2 in reply to gypsy49]

I know they lie. A neighbour had "takes out large dog regularly for long walks " they don't have a dog!

[gypsy49 in reply to Pippins2]

Heard that one a few times where the assessor had said they walk dog or dogs when they haven't got any or said the person can manage the stairs fine without any problems when they actually live in a bungalow so yeah they lie lots time it was blumming stopped the amount of people that had died or killed themselves last count i heard back in 2015/16 was over 10,000 gawd knows what it is now .

[Parminter]

This is just awful Gypsy.

Can you attempt, with the help of family and friends who can write up a storm, to bypass all the Tight-Assed Little Functionaries and go to the top? The very top?

Gather scientific information - published papers - and give them a door-stopper, delivered by a courier.

I'm afraid that this is another instance of 'Give a dog a bad name and hang him'.

[martino]

It is vital that in the first instance you complete the claim as on your worst day. There is a tendency to understate the impact of the condition. Second take someone with you to take notes and when the meeting starts ask if it can be recorded on a recording device. If yes then the interview can be considered and the results notified can be examined with reference to what was said. When my wife and I went through all this I decided simply to take detailed notes stopping where necessary to make sure I had things down correctly. My wife was successful in her claim

[Hidden]

Sorry to hear of your bad experience. Just to reiterate and emphasise, don't struggle on your own with this. Go to Citizens Advice Bureau. They have specialists in the benefits system and possibly an advocacy service.

[Redspot]

This is grossly unfair

I hope you will appeal

Huge percentage of appeals are awarded

[nobobo]

There is a website called Benefits and work.It will cost you about £15.00. To access their guides on everything about PIP.

Absolutely brilliant advice on how to navigate all the forms,plus examples of how to answer questions that D.W.P.will find hard to refute.

[Oscarsaurus]

I am waiting for a reply as i have just filled in another form . I was receiving PIP and ESA for Chronic back pain and joint pain. However i have weaned off the morphine but half way through that process my RLS got progressively worse so i put that down on my form. I am not expecting them to sympathise with me tho as everyone just thinks its nothing and our legs fidget abit . I would advise you to appeal because what do you have to lose . Fingers crossed for you and me now knowing they arent giving you any help

[LotteM]

My information may not be relevant, as I am from NL. Here, assessment is not based on what you have in terms of a disease or syndrome, but how it impairs your daily life. E.g. my lack of restorative sleep owing to RLS symptoms (irrelevant aspects to the assessor) results in my inability to concentrate or read or even sit for more than 20-30min. The assessor then conclydes that this second part limits my possibilities for work dramatically. This example deacribes my situation and assessment in NL just over half a year ago. But then, maybe assessment criteria are completely different in the UK.

Message: inform yourself about the UK assessment criteria and describe your symptoms or effects on daily life accodingly.

[Hidden]

Hi,

Since someone outside of the UK responded, so will I. I currently do not work, so I don’t know how all this works, but I do have lots of experience on how hard it is to get people to believe me.

Here is my (hopefully) relevant experience for you:

It was a few years ago and I was doing so poorly that I was merely surviving (not living at all, but doing what I needed to to keep my heart beating). Here in Norway they have a special team of doctors, psychologists, etc. designed for those in crisis. One has to apply through their GP to get in. My GP knew how dire my situation was, so she suggested that, along with her referral, I write in my own words about my situation. I not only wrote about the facts of my situation, but I wrote how it was affecting me. I won’t go into how I reacted upon getting a letter of denial (apparently, leaving out the words “I will kill myself” was a bad idea...), but I strongly suggest you include in your claim how this is affecting you. I know that you are dealing with bureaucrats instead of doctors here, but what have you got to lose? Fortunately my second application was successful.

[DALLYSALLY]

I really sympathise as I recently had a similar problem with my Pip assessment, said I could lean heavily on my crutches, and bend to my waist even tho I was sitting down, plus that I didn't seem stressed out. What they don't seemed to realise with fibro myalgia do they the strain and exhaustion afterwards trying to keep calm and listen during a 3 hour assessment when you know they are suggesting you can do things, and how long is a piece of string when they ask how often do you get symptoms for and can't do these things , hourly, daily, weekly. However, you can ask for a re assessment if you disagree and the citizens advice can help with this too. If you are still not happy with the outcome you can do an official appeal and the cab office will fill in the forms for you, it does mean going to court however. Good luck.

[DALLYSALLY]

I would imagine Rls, is something the assessors at PIP do not come across very often, like I suffer with which is functional Neurological Disorder where the normal symptoms are like MS, and at worse are like a stroke. My Dla was highest level and was greatly reduced. I really do not think the assessor understood this problem or symptoms. I'm still appealing. Hope you do too.

[gypsy49 in reply to DALLYSALLY]

I would think so too but she said she has it too lol thats why she asked if i had physio for it lol so obviously she doesn't have it . thing is with MS some folk still think old way MS used to be classed as yuppy flu of course most of us know different and know it causes depression too for a very long time . sorry to hear you've had a crappy time too , im asking for a MR first then aye will appeal only thing is i know i couldn't go to wherever the appeal place is my anxiety through the roof at best of times just going shopping is hell . Good luck with your appeal xx