PiP claims in uk

[nick-the-turk]

Hi all just wondering if anyone in the UK has tried claiming PIP personal independence payment and if so did they get any success i was talking to someone and they said RLS might come under neurology conditions that effects your day to day abilities and being under the neurologist it may be worth a chat with the neurologist on my next visit any opinions would be appreciated

[Typicallygaslit]

I have it because of several conditions. PIP is not so much about the diagnoses as how they affect your day to day life. They have to affect you substantiallly.

[nick-the-turk in reply to Typicallygaslit]

OK it was just a thought as I was explaining to them how RLS effects me with feeling tired all the time whilst holding down a full time job as a postman with maybe 3 hours of broken sleep a night standing up all evening unable to sit and relax rolling around when I eventually get to bed etc etc we all know the symptoms lol and they said chat to our doctor or neurologist next time you see them maybe worth a chat

[Typicallygaslit in reply to nick-the-turk]

It’s not easy to get a disability benefit and you would have to prove that you can’t work or that you need help in order to work. And just taking some medication doesn’t count as help. You basically need to be on death’s door before they support you. Sorry. In the meantime, you should try and get medication but it may not be an easy ride, either.

[nick-the-turk]

On medication thank you suffered with RLs for over 20 years and under a neurologist and later this month to under go a EMG ! running out of options and medications now, I'm not looking to get anything for nothing being a week of 62 and never claimed anything of the state in my working life

[SueJohnson]

The following may help RLS. They may have side effects you cannot live with. They may not be appropriate for you based on your medical condition or other medicines you are taking. As always discuss these with your doctor:

clonidine (Kapvay, Catapres), dipyridamole, perampanel (Fycompa), ketamine, ,various anticonvulsants:[ Tegretol (carbamazepine, Equetro, Epitol, Carbatrol), Oxcarbazepine (Trileptal, Oxtellar XR), Lamotrigine (Lamictal), topiramate (Topamax, Qudexy, Trokendi), valproic acid (Depakene, Depakote, Sodium valproate, divalproex sodium, Epilim, Alti-Valproic (in Canada), Convulex), levetiracetam (Spritam, Roweepra, Keppra), Wellbutrin (Bupropion, zyban), buspar (Buspirone, vanspar), botox, Bambuterol, Naltrexone (LDN,Vivitrol, Revia), Piracetam, Propranolol (Inderal, Hemangeol, InnoPran) a beta blocker, - Provigil (Modafinal)

OTC: GABA, valerian, lemon balm, passionflower, l-theanine, magnesium, taurine, green tea, chamomile tea, black tea, and oolong tea all increase GABA, Selenium, Radix Paeoniae Alba (RPA)

They are listed in the order of the ones most likely to help first

Https://pubmed.ncbi.nlm.nih.gov/36873914/

[SueJohnson]

Did you ever get your ferritin checked? Have you tried dipyridamole?

[nick-the-turk in reply to SueJohnson]

Yes neurologist said they were ok to be perfectly honest he is being really good and digging deep into everything he can do ive had scans including CT scan blood tests my arm is nearly dry lol I can't fault him talking to doctor about his suggestion on trying Buprenorphine or similar

[SueJohnson in reply to nick-the-turk]

Do you know what your ferrritin is? Doctors will tell you it is OK but what is OK for others is not OK for those of us with RLS. Ask him what it was.

[nick-the-turk in reply to SueJohnson]

I will ask Wednesday when I have to dicuss meds with doctor and let you know thank you