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Restless Legs Syndrome

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Living with pain

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I'm cool I live with quite a few medical conditions and I also been diagnosed with sleep apnea and restless leg syndrome on top of everything else that im have and it's just nice to meet others in the same boat and would like to know your experiences of it

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LotteM profile image
LotteM

Hi madpull , welcome. That sounds like a lot on your plate. Do you realise that some conditions may actually cause or bring about RLS? Low iron is foremost, but also peripheral neuropathy, some low back problems, varicose veins to name a few. And then there are many medications that have RLS as a side-effects, such as most antihistamines and antidepressants.

Have a look around; there is a useful search function. And don’t hesitate to ask specific questions. We all try to help by sharing our knowledge and personal experiences.

in reply to LotteM

I have damage to my lower spine my L4 and L5 I have a spinal cord stimulator in to help me walk maybe this is why I have it it's just nice to be able to talk to us with it

LotteM profile image
LotteM in reply to

I hope you find some good suggestions that will help you. It’s a nasty thing, the RLS.

What the video of me at the sleep clinic showed was me physically taking off the bed with my restless leg syndrome so I just don't know what to do after I've most things but so far not a lot to work

craigm1114 profile image
craigm1114

My wife had apprised me that I was kicking like crazy every night. After a quadruple bypass, I had a sleep study and found that I stopped breathing 90+ times. You didn't mention anything about CPAP machine. CPAP is fabulous for sleep apnea. RLS is a horse of a different color. I am on at least the 6th medication. All lead to argumentation. The new neurologist wants to put me on straight gabapentin for RLS - that train left about 8 years ago. Now use gabapentin to quiet neuropathy in feet from diabetes. The negotiation now begins in earnest to find a treatment for RLS. Last weekend was in emergency and hospital - couldn't get tramadol or pramipexole - walked the hospital halls all night.

To be honest I would really like to go back on ropinirole. I don't drive anymore and I would take the meds and then be out for 6 hours or so. Not bad as far as I'm concerned. Better than being up and down, up and down all night with prami.

I going to start looking into marijuana.

This is not a sprint. Keep the long view in mind. Hah! I should take my own advice.

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