I've posted I once suffered RLS so know your pain . I've had a really stupid idea , RLS mostly gives most grief at night --- I had a freind that re climates end type thing his pet hamster to sleeping at night and playing in the day , could it HELP if you change your active part of the day to night and the resting period to day , would that make things more bare able ??? I found when I had to move and exercise at night because of RLS its eased the pain side of things , so if your normal active period was at night maybe it would help a great deal, or not . Just thinking aloud .
CALL ME STUPID: I've posted I once... - Restless Legs Syn...
Sorry, refuse to do that (call you stupid).😀
I've wondered that too though have a feeling that our bodies can't readjust our biochemical rhythms to that extent as they're driven by light etc.
But I myself can sleep 1st thing in the morning when I've had an awful night which is most nights. Of course that doesn't work if you have to work etc and needs the rest of the household to leave you in peace till 9 or 10.
But it makes the world of a difference to the rest of the day being able to drift off naturally from 6 or even 7.30am, depending on when the last restless spell was, and being able to then wake up naturally after a couple of hours.
I believe in sleeping IF you can when you can after a bad night, not good if you have to work. I dont listen to what some websites say, to NOT nap in the day, they are wrong when it comes to having RLS.
Absolutely! The sleep specialists who advocate no sleep during the day should be talking about everything else except RLS. In RLS there isn't primary insomnia. In my experience you simply suffer from lack of sufficient sleep hours and being woken by the stupid movements and odd sensation when a sleep cycle hasn't finished. getting a wee catch up during the day time makes all the difference in being able to function. On the days I can't manage that I sleep no better at night.
I am sorry, Eryl. But that is your personal hypothesis, which doesn’t accord with all the available knowledge. It has been known for quite a long time that all/most substances and activities in our bodies vary according to a circadian (=about daily, =about 24h) rhythm. And neurotransmitters are an important group among these ‘substances’.
From my personal experience, whether I eat or not, even wen I eat sugarloaded things in the evenings or at night, I do get RLS at night. Tried and tested. I do agree with you in so far as that eating activates digestion and all ‘substances’ involved (enzymes, hormones, neutransmitters and whatever more). And this digestive process affects other hormone/neurotransmitter mediated or regilated processes. As all processes in our body are in a way, directly and more often indirectly, connected.
I agree. I'm pretty certain RLS is due to some circadian rhythm. I'm not sure if we know which yet. I understand iron levels alter during the 24 hrs for a start. I've often thought that changing sleep from night to day won't work for that reason, though a small shift to the early am seems to work but that doesn't take account of light etc
Eryl, then I wonder if you have true RLS, diagnosed by a neurologist, or allergies to certain foods that trigger simiar symptoms? True RLS is still thought to be a neurological, dopaminergic issue, so most foods would have no impact on that system. At least, not in the amounts of normal consuption. Caffeine and alcohol can be a problem, and sugar if a lot of it. Whatever the cause, I’m delighted for you that your symptoms are relieved most of the time. Cutting out sugar, caffeine, etc, has done nothing to help my RLS. I’m still trying to understand all the complexities of RLS - including the differences between symptoms caused by the dopamine issue, and secondary issues that may aggravate the symptoms but not cause the RLS (like venous insufficiency).
Does it matter whether it's 'true rls' or rls like symptoms? all I know that the diet works for me and some others. It won't do any harm to try it, but it must be followed rigorously, and would do a lot of people some good, even if it doesn't eliminate their rls, and not cost them anything, so what is there to lose?
I drink a half litre of fresh coffee and sometimes three cups of instant coffee as well, daily, and am still rls free. The only thing that has triggered it recently was bread spread with margarine containing E202 and a curry made with a sauce containing E202. When you've been rls free for months it comes as a real pain. This week, because of social events, I've drunk two or three pints of beer on three occasions and haven't suffered any rls. It probably wouldn't be the same in the first few weeks of following my diet, but by now my body seems to be able to handle the extra carbs. I probably won't touch alcohol for weeks after this.
No, it doesn’t matter in the long run. Your relief from symptoms is wonderful, and I meant no disrespect. I try to encourage the distinction between having RLS, and having RLS-like symptoms. Both are debilitating but the more we distinguish between them, the better an understanding of RLS we’ll have.