rls doctors in dublin

[brotherinarms]

GPs sympathetic to RLS people in Dublin I would love to get the name names ? of in DUBLIN.Iam nearly at my wits end heres hoping MMC !

[involuntarydancer]

I sent you a pm.

[brotherinarms in reply to involuntarydancer]

hi involuntary dancer tks for the reply !

i gather that u are dealing with ur own GP in dublin r u still on the pyramidole and pregabilin and is it working?are u getting sleep to cope? mot

[involuntarydancer in reply to brotherinarms]

Hi MoT,

I am still following my complicated system which includes dipyridamole and pregabalin. They both help in different ways: dipyridamole helps by quelling the creepey crawley feeling - though, weirdly, not the urge to move. It also makes me feel a lot better during the day - I’m not sure why - I feel less miserable, less exhausted and more ‘myself’; Pregabalin helps me sleep and, I think, contributes to controlling the rls even though when I take it on its own it doesn’t seem to make much difference. But the one that really works to stop the legs is the little dose of pramipexole which is so unfortunate - I hate being on a dopamine agonist and I’m terrified I will augment again. I am hoping if I keep taking iron and I take regular breaks I will avoid augmentation.

It’s not an ideal system but it’s the best I’ve managed so far. I also take ldn which doesn’t seem to help much with my rls (though it has helped some on here a lot) but it makes me feel much more human during the day.

I would love an iron infusion but haven’t found someone who will administer one. I will be interested to hear how things go for you. Are you on any treatment at present?

[brotherinarms in reply to involuntarydancer]

Hi iv

Tks for that yes yes does seem a bit complicated but I’m also beginning to agree that it takes a combination of drugs to have a definite affect

I have been on OxyContin for years.started at 10 mg and was so pleased as I had tried pramapixole and pregabilin and others side effects too bad

This worked reasonably well for. Good while and then put it up to 13.5 to 14 mg and this is where I’m at for the last few hrs. The RLS would Sometimes be not too bad and liveable but sometimes B.B. This last week it’s been very bad.I definitely feel it has its cycles!

Tonight I’m trying valerian magnesium again and OxyContin

I seem to have gone on a bit I am finding it hard to get a sympathetic medic specially as I’m on OxyContin!!!

Thanks. Mot

[Madlegs1]

An article in the Independent (I think) a few years ago, mentioned a researcher in a Sleep institute. She might know of someone.

I asked this question a few years ago, but no references came up.

I did my research here and on the US site and educated my local GP. Luckily he trusted me and I got referred to a pain clinic in Tallaght ( for post spinal operation pain) and managed to get on to oxycontin eventually.

That was a lucky ?? Break!!☢️🤣😎

Good luck.

Involuntary dancer is probably the best authority you will get in Ireland.

But do your research.

Look at possible triggers, lifestyle, medications etc.

[brotherinarms in reply to Madlegs1]

Hi Madlegs

Tks Is the OxyContin working for u and what dose ? M

[Madlegs1 in reply to brotherinarms]

Yeah, the oxy works well. It doesn't last the full 12hrs, so I have to supplement with oxynorm 5mg. The oxy dose is 10mg twice a day.

So-- total of 25mg.

That's within the recommendation by Dr Buchfurer, for long term control of refractory rls.

But,unless you have other pain issues, you are unlikely to be prescribed opioids.

Gabapentin is probably the easiest, if it works for you .

Cheers.

[brotherinarms in reply to Madlegs1]

Tks

Are u a bit dopey then during the day?

[Madlegs1 in reply to brotherinarms]

No, not at all. For the first month, I had insomnia and itching. But that disappeared. That dose is very low.