SEROQUEL

[Phogan]

Hi all ... thought some of you might be interested in the outcome of my appointment that I had today with my psychiatrist. He has taken me off Clonazepam as it was not helping with my RLS or my sleep. And he has prescribed Seroquel for my bipolar saying that it should help me sleep.

I've been prescribed that before for bipolar, about 2 years ago, and it sent my RLS insane. But this psychiatrist reckons that I must've been given a too higher dose. Have any of you guys had any experience with this drug?

[LotteM]

Hi Paddy, I sat at my laptop - while reading your post on my phone 🤔 - and looked the med up on the site by Dr Buchfuhrer, rlshelp.org.

It says “ several case reports of worsening RLS so caution is advised”. No info there on doses. I guess it will be a matter if wait and see....

[nightdancer in reply to LotteM]

I take it with zero problems with my RLS, for sleep. I also have PTSD but use Mirtazapine for that, and that does not bother my legs either. My sleep doctor is high on using the Seroquel for sleep.

[Phogan in reply to nightdancer]

Taken it twice now slept like a baby both nights. Very happy

[Hidden]

Please be careful P, that can send the legs mad.

At the moment I am evangelising about Veganism as it has stopped my full body RLS. It has been without a doubt the most effective thing I have ever done for my RLS and health in general. Things have gotten so good since I stopped my old animal diet, (although I miss a good barbecued steak - but a small price to pay for having my body quiet. 45 f&*king years of suffering. Nights of extreme pain leading to nights of suicidal ideation - all gone.

Please consider giving it a try as it can work wonders for mental health too. Just make sure to check all labels as it is amazing the way milk products are in everything - many crisps have milk powder - I thought it was potato fried in oil but the baskets have sneaked in milk products and gluten. I am gluten free also and I see gluten in jelly sweets for gods sake!!!

Gimme a shout if you are thinking of going that way and we can have a chat.

All the best

[Joolsg in reply to Hidden]

Wow Raffs. That is brilliant news. Have you stopped the meds as well? I have been wanting to go vegan for ages. Just finished reading Sapiens by Prof Harari and it made me even more determined to go vegan. The only thing I will find difficult is giving up cheese.

[Hidden in reply to Joolsg]

Vegan cheese is pretty good, if you avoid it!! I had planned to start in Jan but was too sick. Had planned it out and although struggle as I am also gluten free and a really fussy eater, I am not going hungry. I made vegan & gluten free carbonara the other day....it was awful, although my wife liked it.

I am still taking Targinact as it is helping pain issues but in another month or so I'll be convinced of the vegan diet and will start a reduction plan then. I have skipped it a couple of times so pain must be well reduced too.

My body is at peace no mad flapping arms no jiggling feet and even when things were at there most settled no crawling sensation bubbling under the surface. Can't get over how much pain and suffering I could have saved myself had I done this 40 years ago . There has been a knock on effect on my mental health and other health problems and I am better now than I have been for a very long time.

I've mentioned it to a few people suffering health problems at the minute, just said it could be worth experimenting with as diet is so linked to health but got no takes - drugs from the GP the preferred option!! Anyway that's there path to suffer on, I'm skipping on mine

[Joolsg in reply to Hidden]

It is absolutely fascinating Raffs. I know it results in low alkaline so maybe that's the reason? I have 2 biochemist friends with MS and they both went vegan 2 years ago for health reasons and swear by it. I would be doing it because I feel terrible about eating animal products. Keep us posted.

[jase318 in reply to Hidden]

I've wanted to go vegan for awhile, but it's not easy to give up meat for me. I'm already dairy free and gluten free. I'll have to think about trying this to see if it helps my RLS. Thanks for your post!!

[Hidden in reply to jase318]

I had been vegetarian for about 15 throughout my life, (mostly to impress a particular girl - a committed vegetarian who at prawns!!!!), but had been eating meat for a couple of years recently.

I miss the ice-cream and my lattes and a nice steak oh yeah I do enjoy a nice burger in a fluffy bun with oddles of cheese, coleslaw, tomato, lettuce and tomato relish and biscuits. wheatabix and not having to plan meals! Oh yeah plus barbecued chicken and salad with lots of thousand island dressing.

Suffice to say I am not doing this out of my love of a Spartan diet! I am a real fussy f**k and believe me if I can have a decent vegan and gluten free diet anyone can mind you I'd spend my days teetering on the edge of starvation rather than suffer RLS!!!!

[kelirock]

Seroquel is a major anti psychotic used mainly for schizophrenia. It is sedating depending on the dose you take. It may not help with withdrawal from Clonazepam. Depending on how long you have been taking the Clonazepam and at what dose you may or may not experience withdrawals which are horrendous in themselves. I don't think Seroquel will help much with RSL.

[nightdancer]

Seroquel is also used for just plain sleep by several doctors in the US. I take it, and it is for sleep for me. Hope it helps your other issues.