Newbie with post augmentation surprise.

[JakeRLS]

I've had RLS for approximately 10 yrs, and consider it more on the low to moderate end of the scale. I was taking 1mg Ropinirole, and 900 mg Gaba before bedtime for about a year, but about 6 months ago, the symptoms worsened and my sleep Doc and I decided it might be augmentation and to eliminate the DA. That took about 1-2 months. (not fun). I began taking 2 ea tablets of (5mg Hydrocodone/325mg Acetaminophen) at night to help with the withdraw. I took my last Rop about a month ago, and have seen all symptoms improve to the point where I sometimes think of giving up all drugs (still on the Gaba and Hydro/Acet though). The surprise was last night...despite doing all things "normal" for me, (exercise, trigger avoidance, meds ) more sever symptoms returned, and lasted far longer than normal. It was the worst experience I have ever had with this !&^%$#@! condition. I'm at a total loss as to what could be happening and I would greatly appreciate your advice/suggestions.

[Hidden]

Hmmm not sure, it might be you are still having some withdrawals, altho some what delayed withdrawals. Taking your last Ropinerole a month ago, for some withdrawals can take longer than a month. Maybe some one else will have a better explanation.

[LotteM]

My thoughts too, jake and elisse. Sorry to hear about that. I just hope to ifht it will prove to be only a memory.... I had that a week or two ago, an almost out of the blue full blast rls attack. Not funny. Not at all!

[LotteM]

Incidently, “to ifht” should be read as “tonight”.

[Madlegs1]

I've written about similar experience with oxycontin- half hour after taking night time dose- 10mg- I get an rls attack. Not every night but some. I take 250mg of Paracetamol (acetaminophen ) and that clears it. Does not occur at midday.????

In your case I would be inclined to just take the Hydrocodone- without the aceteminophen (ace for short ) and see how that goes? You could the add ace in if and when necessary. The opioid may need to be increased a tad since the ace is a potentiator.

The other option is to look at what happened before this attack? Did your diet change- I've discovered very hot curry seems to burn up the oxy leading to rls attack. Also heavy exercise. If I'm careful with my triggers , I can get away with no attacks at all.

FYI - I'm on 2 ×10mg oxycontin and 5mg of oxynorm pd. That has me functioning fully with virtually no rls- unless I do something stupid like alcohol , fizzy drink and all those numerous triggers that I have to watch out for.

Good luck with your research.

[JakeRLS in reply to Madlegs1]

Thanks for your response ML. I'll talk to the doc about subtracting the ace. I too try to avoid the triggers, but I really hate giving up the bon bons

[LoisTonya]

Hi Jake

I have reduced my Ropinerole from 1.25mg to 1mg and I’ve been very smug that I had got the beast tamed with various supplements. But every time I think I’ve found the cure and plan to reduce the Ropinerole further it comes back with a vengeance. I’m now experiencing visual disturbances so yesterday I dropped all my supplements and last night had a pretty good night. This complaint constantly changes and confuses

[JakeRLS in reply to LoisTonya]

Hey Lois My beast doesn't tame, but must love me because it wouldn't let go. At times I felt I would never get off the Rope, it was too easy to take just one more to quiet the demons. What really helped was adding hydrocodone. I don't see how I could have kicked it otherwise. (if in fact I have Best of luck to you.