I think sometimes we have to bite the bullet and take the RLS so we can have a 'normal' time.
I have ME and sometimes I work too hard and it destroys me but, like an addict, sometimes I think to hell with it and push myself so I can enjoy an activity knowing I will spend the next couple of days doing little other than sleep and post here. It is a pain for those days but for the couple of hours I am 'normal'.
I save the drink for the very odd wedding even though I am in for a bad night its worth it imho.
I miss my normal times. I worry now when I introduce new food/drink in case I react badly. I am so hard on myself when it comes to any medicine too..I like pain obviously ! ;))
But I will listen to you and drink tonight as it is my wedding anniversary! ;))
Or maybe not! Can have alcohol free stuff as I don't want to suffer afterwards do you see what I mean?
Curry depends on whether home made or takeaway. Msg is usually the culprit- I find Thai green curry is dynamite- and I love it- but can't take the horrific rls it causes.
I find Erdinger Alchohol Frei beer is as near to "proper"beer as possible and no ill effects. It can be difficult to source here in Ireland but watch out for it. Any good bottle store should carry it.
Now that I rarely drink I do like to savour an odd beer. I am gluten intolerant too so I get a double wammy form the barely/hops and the alcohol.
I really like Effes - a Turkish larger but it is near impossible to find in my part of Ireland and no one seems to be going to Turkey as much any more so none coming back, (my late mother used to bring me back a couple of bottle regularly). I miss the sunny evenings and a cold beer in the back garden
Looks like I'll have to stick to the oul Cocaine and Heroin
Thanks Bkc1777 that is a very kind offer, but my legs say no I do get it occasionally so I really savour it when I do get it and think its better that way, (my wife agrees as the PLMD ramps up with alcohol too).
That is a great example why this site is so fantastic. Thanks again.
You might be right that it could of been curry as it was in a restaurant. I had curry before with no side effects but that was homemade. So I shall keep an eye on it.
I don't drink beer but thank you for the suggestion.
I know that your comment was a while ago but I have only just read it (so many good comments on this site!) Interesting, as I have come to the conclusion that sulphites do not help RLS. I can drink spirits (though I don't drink often) but wine will set off my RLS almost immediately. In a way you confirmed my suspicions - thanks.
No problem at all. I can now drink it though. My rls has been disappeared since I have started my supplements. Also I have just made the decision of stop donating blood as my rls iron related! Also I get mild rls around the time of the month. Good luck to you ... hope you are as lucky as I am.
Hi I would love to say it's the curry ,but unfortunately a lot can't drink alcohol,it doesn't seem to affect me SO FAR but you never know when you feel game try another spritzer with just a hint of wine
Hi Elisse , yes am lucky so far ,although I don't drink a lot
Happy Anniversay Bkc.!! I would say the drink as alcohol blocks the neurotransmitters, i think i have that right. Nightdancer is best for that type of info. But i know alcohol blocks something which means we will suffer, sad as it is. I used to love having a drink on occasions, but i found its now not worth the bad nights.
I will have a go at it again tonight to see if it was alcohol or the curry. Although we are going out to Chinese restaurant for the anniversary so i might not be so sure if it is alcohol that triggers it. Cause I believe Chinese food have msg in them?
Pretty sure there's MSG in Chinese plus lots of salt. Can't eat it myself as I get awful reflux. Think there's lots of vinegar too- same with BBQ sauces- in gact all bottled sauces.
Thanks for the reply. I agree with you but as I don't have any back up medicine to calm my rls down, I feel that I must be very careful what I eat and drink. I believe it makes such a difference.
B.
I'm good with alcohol, as long as I drink the same amount every night! If I don't drink for a few weeks my legs will be sore after the first drink. If I drink one bottle most nights for a month, but then have a session ill have savage pain the next day.
Only know what works for me. I've always put it down to fluctuation creating an imbalance of dopamine. I'm the same for caffeine, Ok as long as it’s consistent. This said, I’m having a bad spell at the moment and no idea why, so going to keep a food diary. The link between food and RSL has been the biggest revelation since joining this group
I am ok with the same amount of alcohol too...just a glass or two of red wine sometimes is fine in the evening, then later some bicarb in water to stop the acid reflux!! little difference on the dry nights....yet some nights are hell but cannot discover why....often if I have a social time....and possibly cheese....have gone off curry, so thats not a problem...
I drink a lot of water after alcohol for the dehydration but never tried bicarb a go! Will sure try to remember next time. Thank you
B.
• in reply to
One bottle....beer, wine, vodka, poteen? Constant alcohol use, even low use can cause health problems later in life, not to get all preachy but the liver likes a day or two off a week!
If you have to say ‘not to get preachy’, you know you’re getting preachy. I have kids, so it’s one bottle of beer a night and the very occasional night out. But there are others on this group who may drink more, or take other substances, so maybe avoid any comments which might stop them from discussing their RSL.
• in reply to
This is a site that deals with health and RLS - drinking every day is not advisable for people with RLS and indeed not advisable for anyone, (even one bottle a night).
I said not to get preachy as a way of trying to avoid the defensive attitude people adopt when you mention their recreational drug use!
I have been very open about the drugs I use and why and have had plenty say they wouldn't touch them but I am an adult and know I am being supported. I wish you no harm and by all means continue your habit, if you read any of my posts you'll know I encourage chat - you appear to be stifling it!
Hi i did not believe for a minute that foods could trigger rls but defo say for me curry and cheese make me worse tho not entirely the cause .hope that helps.
It is interesting isn't it? I am experimenting with food and drink everyday since I have given prami. So far it was the alcohol/curry that triggered it. I will see how I get on.
You can google to what foods can increase dopamine. But never heard of anyone being able to increase dopamine which would reduce any symptoms. Its not that we dont have ENOUGH dopamine cause we do, what we have gets blocked, so it cant reach to where it should do.
Funnily enough when I have the 5 am RLS, I have discovered that getting up and having coffee allows me to get some more sleep. Having looked it up,caffeine is said to increase dopamine...??? ( haven't tried it at bedtime )
You need to try that a bedtime. I am wondering if it was the being up and moving around that actually let you get back to sleep. Let us know how your experiment goes.
Really? I cut out all the cafeine in my life as much as I can ! But before the rls I could of have all the cafeine in the world but still be able to sleep! That was normal me then.
There is a limited edition coffee ice cream with salted caramel swirl and chunks of chocolate its my current fav, but I enjoy all ice cream except for raspberry ripple, never liked it.
Would never be fit to do the exercise that would allow me to eat all the ice cream I'd like to.
Its was my birthday yesterday and my family treated me to a chinese takaway, i am happy to say chinese food has no effect on my RLS, and i have eaten it on more than one occasion. For me, i have found NO foods that are a trigger for my RLS.
Happy belated 🎉 birthday . I am happy to report that Chinese had no effect on my rls too. Had one and a half glass of red wine (with loads of water beside) too and actually went to sleep fine and woke up in middle of the night with little twitches and took my iron tablets and off to sleep after that.
After finding E202 to my my main trigger, with coffee as a mild trigger, I've been suspecting chilli as a mild trigger. Sad, because I hate bland food, and chilli is one of my favourites. 😢
When I was on Klonopin, I couldn't have any alcohol at all as it made my symptoms much worse. I weaned myself off of Klonopin with my Doctor's blessing, took six months and was horrible, but now, I can have a glass and not a problem! At all!! I only take hemp oil now. NO thc.
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