Curry or wine spritzer or BOTH :)) - Restless Legs Syn...

Restless Legs Syndrome

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Curry or wine spritzer or BOTH :))

Bkc1777 profile image
90 Replies

Hey everyone,

I had my first alcohol taste after nearly 3 weeks! Also had a curry!

When I got home my legs were very twitchy ! So tell me it was curry what triggered my RLS! (Please :))

I am finding it fascinating when introducing food/drink slowly and find out what makes it bad or no effect at all. I shall carry on experimenting.

Have a lovely day peeps,

Or have a lovely long weekend and happy May Day!

Thanks again to all of you who gave me a hand on my journey!

B. X

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Bkc1777 profile image
Bkc1777
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90 Replies

I'd blame the drink.

A simple experiment - have a curry tonight and see what happens OR have a feed of beer :)

Bkc1777 profile image
Bkc1777 in reply to

I am sure it was the drink too! Cause I had curry before and I was fine! :)))

I was hoping you would lie and say "curry " ;)

Thanks Raffs,

So I shall pay a price if I want to drink!

B.

in reply to Bkc1777

I think sometimes we have to bite the bullet and take the RLS so we can have a 'normal' time.

I have ME and sometimes I work too hard and it destroys me but, like an addict, sometimes I think to hell with it and push myself so I can enjoy an activity knowing I will spend the next couple of days doing little other than sleep and post here. It is a pain for those days but for the couple of hours I am 'normal'.

I save the drink for the very odd wedding even though I am in for a bad night its worth it imho.

Bkc1777 profile image
Bkc1777 in reply to

You are right,

I miss my normal times. I worry now when I introduce new food/drink in case I react badly. I am so hard on myself when it comes to any medicine too..I like pain obviously ! ;))

But I will listen to you and drink tonight as it is my wedding anniversary! ;))

Or maybe not! Can have alcohol free stuff as I don't want to suffer afterwards :) do you see what I mean? :)

B.

Madlegs1 profile image
Madlegs1 in reply to Bkc1777

Hi- yes- definitely the alcohol (sulphite).

Curry depends on whether home made or takeaway. Msg is usually the culprit- I find Thai green curry is dynamite- and I love it- but can't take the horrific rls it causes.

I find Erdinger Alchohol Frei beer is as near to "proper"beer as possible and no ill effects. It can be difficult to source here in Ireland but watch out for it. Any good bottle store should carry it.

All the best- and Happy Anniversary.

in reply to Madlegs1

Now that I rarely drink I do like to savour an odd beer. I am gluten intolerant too so I get a double wammy form the barely/hops and the alcohol.

I really like Effes - a Turkish larger but it is near impossible to find in my part of Ireland and no one seems to be going to Turkey as much any more so none coming back, (my late mother used to bring me back a couple of bottle regularly). I miss the sunny evenings and a cold beer in the back garden :(

Looks like I'll have to stick to the oul Cocaine and Heroin :) :p

Bkc1777 profile image
Bkc1777 in reply to

Efes is a fine beer! Tesco sells it here in the U.K.

I can send you some?

B.

in reply to Bkc1777

Thanks Bkc1777 that is a very kind offer, but my legs say no :) I do get it occasionally so I really savour it when I do get it and think its better that way, (my wife agrees as the PLMD ramps up with alcohol too).

That is a great example why this site is so fantastic. Thanks again.

Bkc1777 profile image
Bkc1777 in reply to

Anytime, remember I am the person if you need Efes :))

Bkc1777 profile image
Bkc1777 in reply to Madlegs1

Madlegs,

Thank you!!

You might be right that it could of been curry as it was in a restaurant. I had curry before with no side effects but that was homemade. So I shall keep an eye on it.

I don't drink beer but thank you for the suggestion.

Might have to find some alcohol free wine.

B. X

Eryl profile image
Eryl in reply to Madlegs1

I make my own curries and avoid msg anyway, and I've been suspecting chilli.

Bkc1777 profile image
Bkc1777 in reply to Eryl

When I make my own had no problem with rls but this was at the restaurant with some wine so not sure what the actual trigger was.

I will test it soon.

Thanks for the reply.

B.

Wendy1 profile image
Wendy1 in reply to Madlegs1

I know that your comment was a while ago but I have only just read it (so many good comments on this site!) Interesting, as I have come to the conclusion that sulphites do not help RLS. I can drink spirits (though I don't drink often) but wine will set off my RLS almost immediately. In a way you confirmed my suspicions - thanks.

Madlegs1 profile image
Madlegs1 in reply to Wendy1

Good to see that some people (the highly intelligent ones , of course!!) are doinf their research. Glad you got some beneficial info!!

Bkc1777 profile image
Bkc1777 in reply to Wendy1

No problem at all. I can now drink it though. My rls has been disappeared since I have started my supplements. Also I have just made the decision of stop donating blood as my rls iron related! Also I get mild rls around the time of the month. :) Good luck to you ... hope you are as lucky as I am.

Take care.

B.

in reply to Bkc1777

Happy anniversary - if ever there was a need to drink it is on wedding anniversaries :)

You could always stick to the ecstasy and avoid the problems alcohol brings :) :D

Bkc1777 profile image
Bkc1777 in reply to

Raffs,

"Are you married?"

"Don't rub it in! " :))

I don't know where to get any ecstasy, I have only got the agony. :)

B.

in reply to Bkc1777

Ah I am, its not so much the marriage that makes me want to drink more the teenagers :)

Harry Enfields Kevin wouldn't have a look in.

Bkc1777 profile image
Bkc1777 in reply to

We got some of those! The joys of having teenagers. Love it!!! 😓

NoMoRLS profile image
NoMoRLS in reply to

Bwahahaha

Kaarina profile image
KaarinaAdministrator in reply to Bkc1777

Congratulations Bck on your special day. :) Well worth marking the occasion, one way or another. ;) :) Enjoy your day. :)

Bkc1777 profile image
Bkc1777 in reply to Kaarina

Thank you! Will mark it for sure! :) anything to make Rls go away ;)

NoMoRLS profile image
NoMoRLS in reply to Bkc1777

Happy Hitchin day

Enjoy

Bkc1777 profile image
Bkc1777 in reply to NoMoRLS

Thank you. Xx

NoMoRLS profile image
NoMoRLS in reply to Bkc1777

I drink kumbacha. Over here we have a brand called Dr Brew. Very tastey. Bubbly.

I don't drink because of bad reflux but I can handle kumbacha. It's festive. 🥂

Bkc1777 profile image
Bkc1777 in reply to NoMoRLS

Haven't heard that either. Will look into it :) thanks

Jaywell profile image
Jaywell in reply to Bkc1777

My silver anniversary Tus day so hoping I can have just one small drink but will see how brave I feel!😃

in reply to Jaywell

Them small drinks are dangerous! I have lost count of the nights I went out for 'one small drink' and din't manage to get home til the next day :)

Bkc1777 profile image
Bkc1777 in reply to

You sure love your drink? Or you are a real party animal? . :)

Or I blame the teenagers. :)

B. X

Bkc1777 profile image
Bkc1777 in reply to Jaywell

Go for it :)

B. X

Mopsy1950 profile image
Mopsy1950

Hi I would love to say it's the curry ,but unfortunately a lot can't drink alcohol,it doesn't seem to affect me SO FAR but you never know when you feel game try another spritzer with just a hint of wine

Bkc1777 profile image
Bkc1777 in reply to Mopsy1950

Will do , tonight :))

in reply to Mopsy1950

A lucky one who can drink.!! :)

Mopsy1950 profile image
Mopsy1950 in reply to

Hi Elisse , yes am lucky so far ,although I don't drink a lot

Happy Anniversay Bkc.!! I would say the drink as alcohol blocks the neurotransmitters, i think i have that right. Nightdancer is best for that type of info. But i know alcohol blocks something which means we will suffer, sad as it is. I used to love having a drink on occasions, but i found its now not worth the bad nights.

Bkc1777 profile image
Bkc1777 in reply to

Hi Elise,

I will have a read Nightdancer's post. Thank you.

I will have a go at it again tonight to see if it was alcohol or the curry. Although we are going out to Chinese restaurant for the anniversary so i might not be so sure if it is alcohol that triggers it. Cause I believe Chinese food have msg in them?

Jaywell profile image
Jaywell in reply to Bkc1777

Pretty sure there's MSG in Chinese plus lots of salt. Can't eat it myself as I get awful reflux. Think there's lots of vinegar too- same with BBQ sauces- in gact all bottled sauces.

Bkc1777 profile image
Bkc1777 in reply to Jaywell

That's what I thought but I was fine! Lucky I guess :)

datsoon1 profile image
datsoon1

well done ,life is too short for me to worry about foods triggering the rls,i will not let it rule me,have a good weekend

Bkc1777 profile image
Bkc1777 in reply to datsoon1

Thanks for the reply. I agree with you but as I don't have any back up medicine to calm my rls down, I feel that I must be very careful what I eat and drink. I believe it makes such a difference.

B.

I'm good with alcohol, as long as I drink the same amount every night! If I don't drink for a few weeks my legs will be sore after the first drink. If I drink one bottle most nights for a month, but then have a session ill have savage pain the next day.

Bkc1777 profile image
Bkc1777 in reply to

Really? Alcohol is the trigger for most of rls sufferers! Interesting indeed.

in reply to Bkc1777

Only know what works for me. I've always put it down to fluctuation creating an imbalance of dopamine. I'm the same for caffeine, Ok as long as it’s consistent. This said, I’m having a bad spell at the moment and no idea why, so going to keep a food diary. The link between food and RSL has been the biggest revelation since joining this group

funnyfennel profile image
funnyfennel in reply to

I am ok with the same amount of alcohol too...just a glass or two of red wine sometimes is fine in the evening, then later some bicarb in water to stop the acid reflux!! little difference on the dry nights....yet some nights are hell but cannot discover why....often if I have a social time....and possibly cheese....have gone off curry, so thats not a problem...

Bkc1777 profile image
Bkc1777 in reply to funnyfennel

I drink a lot of water after alcohol for the dehydration but never tried bicarb a go! Will sure try to remember next time. Thank you

B.

in reply to

One bottle....beer, wine, vodka, poteen? Constant alcohol use, even low use can cause health problems later in life, not to get all preachy but the liver likes a day or two off a week!

Bkc1777 profile image
Bkc1777 in reply to

Raffs, Raffs...

in reply to

If you have to say ‘not to get preachy’, you know you’re getting preachy. I have kids, so it’s one bottle of beer a night and the very occasional night out. But there are others on this group who may drink more, or take other substances, so maybe avoid any comments which might stop them from discussing their RSL.

in reply to

This is a site that deals with health and RLS - drinking every day is not advisable for people with RLS and indeed not advisable for anyone, (even one bottle a night).

I said not to get preachy as a way of trying to avoid the defensive attitude people adopt when you mention their recreational drug use!

I have been very open about the drugs I use and why and have had plenty say they wouldn't touch them but I am an adult and know I am being supported. I wish you no harm and by all means continue your habit, if you read any of my posts you'll know I encourage chat - you appear to be stifling it!

Bkc1777 profile image
Bkc1777 in reply to

You are only trying to help. :)

Have you tried dulce yet? :)

B.

in reply to Bkc1777

lol nope the Mrs did the shopping :) she's keeping too good an eye on me :)

Bkc1777 profile image
Bkc1777 in reply to

Everyone is different... so I respect you. But Raffs is only trying to help so no offence should be taken. :)

We all are here to help one another.

B.

Jeanniebeannie profile image
Jeanniebeannie

Hi i did not believe for a minute that foods could trigger rls but defo say for me curry and cheese make me worse tho not entirely the cause .hope that helps.

Bkc1777 profile image
Bkc1777 in reply to Jeanniebeannie

Thank you for replying.

It is interesting isn't it? I am experimenting with food and drink everyday since I have given prami. So far it was the alcohol/curry that triggered it. I will see how I get on.

NoMoRLS profile image
NoMoRLS

You know what? I was just thinking about asking the group today is there are foods that increase dopamine....

Anyone follow a plan that increases dopamine?

Cheers 🤓✌

Bkc1777 profile image
Bkc1777 in reply to NoMoRLS

Good idea. Look forward to reading some ideas. :)

in reply to NoMoRLS

You can google to what foods can increase dopamine. But never heard of anyone being able to increase dopamine which would reduce any symptoms. Its not that we dont have ENOUGH dopamine cause we do, what we have gets blocked, so it cant reach to where it should do.

Bkc1777 profile image
Bkc1777 in reply to

Thank you. Will do.

funnyfennel profile image
funnyfennel in reply to NoMoRLS

Funnily enough when I have the 5 am RLS, I have discovered that getting up and having coffee allows me to get some more sleep. Having looked it up,caffeine is said to increase dopamine...??? ( haven't tried it at bedtime )

in reply to funnyfennel

You need to try that a bedtime. I am wondering if it was the being up and moving around that actually let you get back to sleep. Let us know how your experiment goes.

Bkc1777 profile image
Bkc1777 in reply to

Lying down on my knee works for me most of the time!

Bkc1777 profile image
Bkc1777 in reply to funnyfennel

Really? I cut out all the cafeine in my life as much as I can ! But before the rls I could of have all the cafeine in the world but still be able to sleep! That was normal me then. :)

in reply to NoMoRLS

All the high fat and sugar foods should increase the dopamine. I tend to crave those at night and I put it down to lower dopamine levels at that time.

NoMoRLS profile image
NoMoRLS in reply to

Oh that is me too. Sugar cravings at night. Crazy sometimes...🤓🍭🍨🍧🍦🎂🍰

Bkc1777 profile image
Bkc1777 in reply to NoMoRLS

If you have the sugary stuff then that would stop you sleeping though wouldn't it?! :))

NoMoRLS profile image
NoMoRLS in reply to Bkc1777

It does bother me. I see a big difference when I cut back on sweets and quality sleep

Bkc1777 profile image
Bkc1777 in reply to

Very naughty Raffs! ;)

in reply to Bkc1777

A full tub of Ben & Jerrys can go like lightening in my hands! I have to watch myself or I'd pile on the weight.

Bkc1777 profile image
Bkc1777 in reply to

Hehe! Cookie dough per chance? :)

If you are exercising than you can eat the whole tub right? ! ;)

B.

in reply to Bkc1777

There is a limited edition coffee ice cream with salted caramel swirl and chunks of chocolate its my current fav, but I enjoy all ice cream except for raspberry ripple, never liked it.

Would never be fit to do the exercise that would allow me to eat all the ice cream I'd like to.

NoMoRLS profile image
NoMoRLS in reply to

Ohhh you're killing me.

I like Hageendaz Dulce and seasonal Carmelized Pear.

in reply to NoMoRLS

I haven't had the Dulce, that's now on my shopping list, (although how I'll get it past the Mrs is beyond me :) )

Bkc1777 profile image
Bkc1777 in reply to

Enjoy! :)

Neil46 profile image
Neil46 in reply to

Surely our bodies burn fuel to keep warm, so ice cream should help us lose weight.......or

nightdancer profile image
nightdancer

Alcohol blocks the dopamine receptors in our brains. That is a proven fact. Sorry! But, it is generally considered high up on the "no no" food list.

Bkc1777 profile image
Bkc1777 in reply to nightdancer

:)thanks. glad I am not much of a drinker in that case. (Apart from special occasions. )

B. X

NoMoRLS profile image
NoMoRLS in reply to Bkc1777

Me neither.

in reply to nightdancer

I KNEW it block something. lol

Its was my birthday yesterday and my family treated me to a chinese takaway, i am happy to say chinese food has no effect on my RLS, and i have eaten it on more than one occasion. :) For me, i have found NO foods that are a trigger for my RLS.

Bkc1777 profile image
Bkc1777 in reply to

Happy belated 🎉 birthday . I am happy to report that Chinese had no effect on my rls too. Had one and a half glass of red wine (with loads of water beside) too and actually went to sleep fine and woke up in middle of the night with little twitches and took my iron tablets and off to sleep after that.

Long it may continue.

B. X

NoMoRLS profile image
NoMoRLS in reply to Bkc1777

That's so nice to hear about the iron for you. Yay

Bkc1777 profile image
Bkc1777 in reply to NoMoRLS

I am so relieved that I can get away without any medicine. I am lucky for sure.

B.

NoMoRLS profile image
NoMoRLS in reply to

Happy bday. ☺☺☺☺

Eryl profile image
Eryl

After finding E202 to my my main trigger, with coffee as a mild trigger, I've been suspecting chilli as a mild trigger. Sad, because I hate bland food, and chilli is one of my favourites. 😢

Bkc1777 profile image
Bkc1777 in reply to Eryl

Oh no! I couldn't live without spices! Saying that I would have to if it was making my rls worse! Anything to have a less twitchy body! :)

I am sure there are some spices you can use that doesn't trigger it?

B.

Bublgum profile image
Bublgum

I have noticed that when I drink any kind of alcohol a few hours before bed then my RLS kicks in

Bkc1777 profile image
Bkc1777 in reply to Bublgum

I thought quinine was for leg cramps not rls.

Thanks for the reply.

B.

Bublgum profile image
Bublgum

Try quinine pills.

Madlegs1 profile image
Madlegs1 in reply to Bublgum

Noooooooooo!

RunswithPonies profile image
RunswithPonies

When I was on Klonopin, I couldn't have any alcohol at all as it made my symptoms much worse. I weaned myself off of Klonopin with my Doctor's blessing, took six months and was horrible, but now, I can have a glass and not a problem! At all!! I only take hemp oil now. NO thc.

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