I have suffered with burning feet and RLS for as long as I can remember, as a child I can remember laying on the floor in my bedroom with my feet sticking out of the window. I had no idea at all what this was until about 10 yrs ago. I have tried so many ideas, suggestions and medication mostly without joy.
My doctor is fantastic and put me on pramipexole, 2 at luchtime and 3 at night together with 3 amitriptlin and a quinne table. I know its a lot of medication but I take medication for other illnesses. I would much rather take all these tablets and only have less attacks than give up all the meds.
I cannot sleep/cope with my feet covered up, whether that be in bed, at friends, dining out etc. Its not just the burning feet, its the kicking out of my legs that I have no control over.
Im so pleased to have found this group and fellow sufferers...I hope to learn and maybe try alternate treatment...but whatever I now can share on here without fear of been seen as a moaner xx
Written by
MacAng
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The medication list is a long one which includes quick release and slow release morphone.
My health isnt good, I have fibromyalgia, spondilitis, severe arthritus in most joints, have had both knees replaced and my hips need replacing. I have burning feet and RLS and suffer depression, I had a stroke almost 3 years ago so on meds for that too. My mobility has deteriated rapidly so now have to use a disability scooter.
I do occasionally get a bad bout of burning feet and rls and the only way i ease it is walking on the grass to cool my feet down, cool feet is a good start to calming down the rls.
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