RLS: Very disappointed with the long... - Restless Legs Syn...

Restless Legs Syndrome

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RLS

42myown7 profile image
6 Replies

Very disappointed with the long awaited programme about RLS. Did we really need

to see so many examples of it. We know all that! Why didn't the 2 consultants offer

any help or advice. They didn't suggest anything that would help sufferers to live

with it.

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42myown7 profile image
42myown7
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6 Replies
Vonnie70 profile image
Vonnie70

I was disappointed too, didn't help those suffering, just talked about a few peoples hell and nothing more. 😕

Madlegs1 profile image
Madlegs1 in reply toVonnie70

Yep- join the club.

JaneyTips profile image
JaneyTips in reply toVonnie70

Yes, agree no positive help in the programme at all

RLSpam profile image
RLSpam

Like you, I was watching waiting on what can be done to alleviate the symptoms, advice from doctors, from sufferers who had alleviated the RLS, nothing.

Kaarina profile image
KaarinaAdministrator

Hi 42myown7

I am sorry you were disappointed with the RLS programme. It was to promote awareness and it certainly appears to have done that when seeing the big flutter of extra postings on this forum since last night and the RLS FB page went crazy. I know that Dr Spinks was interviewed for 2 hours as he posted on the RLS FB page yet he was only on the programme for a few minutes. The same probably goes for Mr. Leschziner. What was decided to go into the programme was decided by the programme editors.

42myown7 profile image
42myown7 in reply toKaarina

I can understand that the RLS programme was intended to promote awareness,

but why spend the whole hour on some ridiculous examples. If your husband

doesn't want your feet on him, why keep doing it? Don't they have any other chairs

RLS can change your life and you have to be prepared to make some changes

to combat this. A great opportunity was missed with consultants 'on hand' to at

least suggest some forms of treatment. Clearly, the programme editors have no

personal experience of RLS and left out what was most important to sufferers

looking for help.

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