Hi am new to this site and I have had RLS for about 3-4 years. I get all the time, morning and evening. It kills me. Lately my hands have really shaky. My legs shake inside though. This condition has changed my life, can't do what I used to do. Am 42 with 4 children and am married, Hubbie works away so it's hard when am not well.
Is it just me or do other people rely on the medical really badly? I can't manage without tramadol or co-bendopula (I know it's spelt wrong) and all the others. Am fed up and in pain today
Sorry you are in pain today. If your meds are not working then a trip to your doctor to discuss this and the shaky hands and shaky legs from the inside
HI Sarah sorry to hear about your suffering. I think everyone on this site can really and truly sympathise with you in some shape or form. RLS is just horrible (not really a strong enough word) and can ruin a life. What other meds have you tried? Have you got a good/sympathetic GP and/or consultant? Take care x
Hi Sarah, I have been on the Fibromygelia part of this site for years and only stumbled across this part by a web search. I have RLS too, have done for about four years. Not sure if it's a fibro symptom or completely seperate best guess is linked as all to do with pain and nerve endings.
I am always trying to find natural alternatives to Prescription drugs. The best I have found to help is magnesium. I take a supplement three times a day but apparently it's best absorbed trans dermally so I use magnesium oil and magnesium bath flakes. I struggle to get in and out of the bath and so don't do it often enough, a friend suggested I sit and soak my feet for thirty minutes so I'm going to try that. I think the oil is fab, it gives relief for the RLS in calves and also pain I get in my knees.
Unfortunately the best relief I get is from the prescribed Diazipam, two 5mgs daily. It relieves about 80% of discomfort for me. I regularly stop it for a few days, just to show myself I can, but whilst not getting any withdrawal symptoms the RLS comes back with a vengeance and have to take strong painkillers too.
In my opinion, for me, the long term use of the diazipam outweighs the pain and suffering of RLS.
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